TLE Sufferers?

[kish002]

Hi,

My name is Andrew, I am totally new to the forum and have a few questions...forgive me if they are redundant, but I am a bit worried.

I have had strange deja vu episodes for a few years (about once a year) I have always passed them off as anxiety, until I researched more a few months ago.

What happens is that I will see or hear something that will trigger what seems to be a memory of a dream from the previous night...for instance, today I drove by a restaurant and remembered that in my dream, that restaurant was supporting some race...then I am overcome by a full body rush of adrenaline, accompanied by a burning in my nose with a strange smell. The episodes last around 30 seconds, and afterwards I am tired and fell a bit "out of it". When I try to explain it, people think I am crazy!

I went to the doctor today, and actually had one while they were getting my blood pressure...it went up to 150/118 and my pulse was 125, also started sweating. 5 minutes after the episode my BP was back down, and pulse was 88. Doctor gave me a few options...a blood test to test my thyroid, a 24 hour urine test for adrenal galnds, ordered an EEG (and possibly a MRI) to test for temporal lobe epilepsy, and a referral to a psychiatrist to explore anxiety.

So, any insight? These Deja Vu episodes really suck!

Thanks!!!

Andrew

[Ann T.]

Hey Andrew! Welcome! :-)

The deja vu episodes are called 'post ictal' periods. Mine feel as though I'm moving in slow motion. I'll write more tomorrow because it's late & I need to get to bed. You've joined a fantabulous forum. Everyone I've met here has been extremely supportive. Take care!

[sinke]

this is interesting book if u have temporal lobe epilepsy: "Seized: Temporal Lobe Epilepsy as a Medical, Historical, and Artistic Phenomenon" by Eve LaPlante

[Loopy Lou]

Hmm... i'm going to have to look for that book, thanks!

[Meetz1064]

welcome to CWE, Andrew!! I'm sure you're going to like it here.

If you follow the link I'm providing you, it will take you to a whole bunch of other posts within this forum that discuss temporal lobe epilepsy. Hopefully that will help you gain a bit more insight into it......

http://www.coping-with-epilepsy.com/.../tags/tle.html
http://www.coping-with-epilepsy.com/...+epilepsy.html
http://www.coping-with-epilepsy.com/...tags/mtle.html

Feel free to check out all the nooks and crannies here. Mr B, our host, has built us an AWESOME home to hang out in!

If you haven't already, PLEASE start a journal....it will help you, and the doctor in the long run.

Take care.

Meetz

[Loopy Lou]

Oh yes... I forgot to say welcome, Andrew!

[Bernard]

In addition to the links listed in Meetz's post, you can use the Search function at the top of the page to find more posts about temporal lobe epilepsy.

Your episodes sound a lot like temporal lobe epilepsy seizures to me.

[kish002]

thanks for all the support and links! I have been researching a lot...will be having an EEG soon. I am glad that I found a supportive forum, I am tired of getting the "you're crazy" look from people I tell about these episodes.

andrew