Coping With Epilepsy Neurofeedback & Counseling Associates
10% off neurofeedback training for CWE members - Las Vegas, NV and Denver, CO
Neurofeedback Partner - Free Advertisement
 

Go Back   Epilepsy Forum > Our House > The Lounge


Reply
 
LinkBack Thread Tools
  #21  
Old 08-21-2008, 07:49 PM
Venerable Voice of CWE
 
Join Date: Jan 2008
Location: California
Posts: 2,341
Thanks: 2
Thanked 45 Times in 36 Posts
Luckily for me, I don't like vaccinations....so I never get a flu shot. It always seems that when I used to get the flu shot, I'd end up getting the flu. So instead, I don't get the shot and I manage to stay healthy every flu season. But yes, vaccinations can cause autoimmune issues. The most likely viruses for my ear issue are being exposed to Measles, mumps, rubella, or Cytomegalovirus (which can give the person flu-like symptoms). Lucky me.....
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #22  
Old 08-22-2008, 12:18 AM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,643
Thanks: 86
Thanked 504 Times in 403 Posts
Send a message via Yahoo to RobinN
There is discussion in other neurologist communities about using methods to rid the body of latent viruses. If you are interested.
__________________
Robin
Neurofeedback - Rebecca's Story
Feedback Matters- blog
Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #23  
Old 08-22-2008, 12:21 PM
speber's Avatar
Recent Blog: Lots of giggin'!...

 
Join Date: Sep 2007
Location: Austin, TX
Posts: 1,330
Thanks: 10
Thanked 30 Times in 26 Posts

Cool Dig it....


Originally Posted by skillefer View Post:
LOL....Only if your music is in the cricket range....
I have written music with crickets in the background!....and cicadas too.
__________________
Music\auditory Stimulus and the Epileptic Brain...List of music/epilepsy related links...CWE Members can also visit Speber's Auditorium where they can vote on how different music affects them in simple polls.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #24  
Old 08-22-2008, 12:55 PM
Banned
 
Join Date: Apr 2008
Location: Odessa, Texas in West Texas, Football Country,& Oil Country
Posts: 222
Thanks: 0
Thanked 0 Times in 0 Posts

Thumbs up I know allt o well.


Skillerfer,
As a child I had severe problems with both of my ears. I couldn't hear hardly at all until in 1980's a doctor here had tried a new eperimerimenal surgery to cover holes in my ears . He took skin graphs from behind the ear s and put it on the inside of both ears and it was successful and I had no problems with my ears or infections! But, now I think I am losing some hearing due to my brain is not complete. But, to you congratulations!
God bless
David
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #25  
Old 08-29-2008, 12:57 PM
Venerable Voice of CWE
 
Join Date: Jan 2008
Location: California
Posts: 2,341
Thanks: 2
Thanked 45 Times in 36 Posts
LOL....okay, time for an update, since I saw the ear specialist yesterday.

He looked at the results of the bloodwork and said there was no sign of my hearing loss being autoimmune related. Also, the only thing wrong with my blood is that my red blood cells are too big. This could be due to seizure meds, B-12 deficiency, folic acid deficiency, anemia, hypothyroid....Anyway, he was shocked at how much my hearing had improved, and told me to keep doing whatever I'm doing. Hooray for vitamins. But, he wants me to get more blood work and then possibly go to Loma Linda and see a specialist to see if there's anything else they can do to help me get my hearing back faster. Oh, and he said I should get it all back. And, in the meantime, he says I can go get hearing aids, but to remember that I may not end up needing them.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #26  
Old 08-29-2008, 03:48 PM
Meetz1064's Avatar
Super Moderator / Fantastico
Recent Blog: Kindness is

 
Join Date: Oct 2007
Posts: 3,678
Thanks: 87
Thanked 226 Times in 204 Posts
Send a message via Yahoo to Meetz1064

Thumbs up Yeah for


Skilly!!!! Yeah for Skilly!! Yeah for Skilly!!!! WHEEEE!!!!!!!!!

That is such GREAT NEWS!!! I am very happy for you! Cool beaners!!
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #27  
Old 08-29-2008, 07:35 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,643
Thanks: 86
Thanked 504 Times in 403 Posts
Send a message via Yahoo to RobinN
Awesome news.
Now I am confused... who said it was autoimmune related? Was that just a guess?
__________________
Robin
Neurofeedback - Rebecca's Story
Feedback Matters- blog
Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #28  
Old 08-30-2008, 02:19 AM
Venerable Voice of CWE
 
Join Date: Jan 2008
Location: California
Posts: 2,341
Thanks: 2
Thanked 45 Times in 36 Posts
Yup Robinn, it was the doctor's guess. Autoimmune is the most common reason other then being exposed to loud noises.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #29  
Old 08-30-2008, 09:31 AM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,643
Thanks: 86
Thanked 504 Times in 403 Posts
Send a message via Yahoo to RobinN
interesting
I have a relative that lost his hearing overnight. He has a round physique and now I wonder if it could be reversed from the inside out. He chose to have an implant, which helps him to hear.
__________________
Robin
Neurofeedback - Rebecca's Story
Feedback Matters- blog
Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #30  
Old 09-08-2008, 11:05 AM
Venerable Voice of CWE
 
Join Date: Jan 2008
Location: California
Posts: 2,341
Thanks: 2
Thanked 45 Times in 36 Posts

Update 9/08/08


Hi everyone! Well, in case you're curious, I went to see another audiologist Saturday. She spent 2 hours with me, and according to the test, I gained at least another 5 decibels of hearing from the last test I had on 8/18/08. Right now, I'm wearing loaner hearing aids....and after 5 months of relative quiet, everything seems so loud....*sigh*
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #31  
Old 09-08-2008, 11:08 AM
Venerable Voice of CWE
 
Join Date: Jan 2008
Location: California
Posts: 2,341
Thanks: 2
Thanked 45 Times in 36 Posts
Actually Robinn, according to the ENT, I've regained too much hearing to qualify for a cochlear implant. The new audiologist thinks that the problem might be in my eustachian tubes, and is encouraging me to get a second opinion on the current ENT.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #32  
Old 09-08-2008, 07:53 PM
Meetz1064's Avatar
Super Moderator / Fantastico
Recent Blog: Kindness is

 
Join Date: Oct 2007
Posts: 3,678
Thanks: 87
Thanked 226 Times in 204 Posts
Send a message via Yahoo to Meetz1064

Wow,


this is an odd turn of events, Skilly. I'm glad you're getting your hearing back though. Are you going to go get the 2d opinion?
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #33  
Old 09-08-2008, 08:14 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,643
Thanks: 86
Thanked 504 Times in 403 Posts
Send a message via Yahoo to RobinN
Keep doing whatever you are doing ... seems to be working
__________________
Robin
Neurofeedback - Rebecca's Story
Feedback Matters- blog
Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #34  
Old 09-09-2008, 10:17 AM
BuckeyeFan's Avatar
Super Moderator / Grandpa
 
Join Date: Feb 2008
Location: Ohio - Buckeye country
Posts: 1,885
Thanks: 12
Thanked 99 Times in 60 Posts
for the continued improvement.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #35  
Old 09-09-2008, 02:07 PM
Venerable Voice of CWE
 
Join Date: Jan 2008
Location: California
Posts: 2,341
Thanks: 2
Thanked 45 Times in 36 Posts
Don't know Meetz. If my insurance will cover it, then maybe. Can't afford the House Hearing Institute or Scripps out of pocket.....but I think Loma Linda takes my insurance. And the audiologist I spoke with this weekend said Loma Linda also has great doctors. She recommends that I go back in October and have my hearing tested again. She thinks something is wrong with my middle ear...possibly the eustachian tubes being blocked. Yesterday I stopped by her office again, and told her that I had some drainage going on in the back of my throat.....she thinks maybe the fluid in the eustachian tubes is draining..as it's supposed to...and that the hearing aids might actually have helped by forcing the ear drums to move. Anyway, that's her best guess. But at least the hearing aids are loaners, and I'm not getting charged for them...yet. If I have to have them permanently, they'll go ahead and set up a payment plan for me.....but if not, then they're just on loan.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
deafness in both ears cool1984 The Library 29 03-05-2007 04:38 PM
Good news Rachel The Kitchen 5 09-23-2006 07:45 AM


All times are GMT -5. The time now is 11:57 AM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.