Need to vent: medical issues+?

[car05161967]

I was born with a ventricular brain aneurysm. That caused Hydrocephalus. The operations and revisions for both of them, caused Epilepsy. That stuff has existed my whole life.

But in the last year or so, I was in essence hit with a medical double whammy, not even connected to what I have had all my life.

Both my parents(divorced, and in their early 700's) have to use a CPAP machine due to Sleep Apnea. They have been dogging me to get checked out to see if I have Sleep Apnea. I will be 45 in May, and have been an insomniac since I was teenager(30yrs.). So I get very little sleep anyway!!!

My mother has also been bugging me to get tested for Alzheimers(which my paternal grandfather supposedly died of at 63yrs.-old), and Fuchs Dystrophy, an eye disorder that is supposedly genetic!!!

I am tired of people(doctors not included) telling me what is wrong with me, or potentially wrong with me!!!!!

When I was engaged to a woman Aug.'02-Jan.'07, that had been horribly abused throughout her childhood(and diagnosed in 1999 at 32yrs.-old with Bi-Polar Disorder), she said I had.....get ready for this list:

1. Attention Deficit Disorder
2. Attention Deficit Hyperactivity Disorder
3. Bi-Polar Disorder
4. Borderline Personality Disorder
5. Diabetes
6. Hypoglycemia
7. Lupus
8. Multiple Personality Disorder
9. Narcissistic Personality Disorder
10. Obsessive-Compulsive Disorder
11. Obsessive Compulsive-Personality Disorder
12. Panic Disorder
13. PTSD
14. Tourettes

She wasn't even a clinician!!!!!!

I don't care anymore!!!!!

[Meetz1064]

what you do.

Look at the person who's telling you that you have this, that or the other--or that you must get tested for this, that or the other....and say:

"When I or my doctor seem to think that there is a need for testing for this particular thing, I will keep what you have said in mind." Don't be rude about it, especially if it's your parents or someone like that but be firm.

Then, walk away, and let it go in one ear, and out the other.

If they continue to harp on the subject, simply tell them that if they cannot find another subject to discuss, then you don't haven anything to discuss with them for the time being. And make it just as simple as that.

OK, it sounds simple, and it may be a bit difficult. But when people see and hear you standing up for yourself, they should give you more respect.

Take care!!!

[car05161967]

what you do.

Look at the person who's telling you that you have this, that or the other--or that you must get tested for this, that or the other....and say:

"When I or my doctor seem to think that there is a need for testing for this particular thing, I will keep what you have said in mind." Don't be rude about it, especially if it's your parents or someone like that but be firm.

Then, walk away, and let it go in one ear, and out the other.

If they continue to harp on the subject, simply tell them that if they cannot find another subject to discuss, then you don't haven anything to discuss with them for the time being. And make it just as simple as that.

OK, it sounds simple, and it may be a bit difficult. But when people see and hear you standing up for yourself, they should give you more respect.

Take care!!!

Thanks, I needed to hear that!!!

[Meetz1064]

You're welcome!!!

[car05161967]

You're welcome!!!

What I forgot to mention about a CPAP machine is something to do with all the brain surgery I had, and when I had it. I had six brain operations for my congenital health issues , before I was 10yrs.-old. It was scary every time I would be put to sleep , especially since I was barely a 4th Grader by the time I was 10yrs.-old. So using a CPAP machine would bring back those traumatic memories of being put to sleep before I was going to have brain surgery, when I was just a little kid.

[sfrancis]

Not tring to be funny, I wish I could do it. have you concidered being a hermit? All these people telling you what is wrong with you only only your agravates epilesy. I have had seizures caused by people in my face telling me what is wrong with me, how I need to change ..... and so on. As best as possoble separart your self from the people harrassing you.
Having said that, I am on verge of diving head first back into the fire of my tormenter. My mother my nimises is losing it, at 83, is the controle freak from hell. My mother will be needing not full time care, she can still do; but full time monitoring. Do we really want her doing what ever.
Not trying to one up you, just been there to a degree and saying get away from the problem if you can. With aging parents it can be hard.
Thank you for letting me vent a bit and good luck.

[car05161967]

Not tring to be funny, I wish I could do it. have you concidered being a hermit? All these people telling you what is wrong with you only only your agravates epilesy. I have had seizures caused by people in my face telling me what is wrong with me, how I need to change ..... and so on. As best as possoble separart your self from the people harrassing you.
Having said that, I am on verge of diving head first back into the fire of my tormenter. My mother my nimises is losing it, at 83, is the controle freak from hell. My mother will be needing not full time care, she can still do; but full time monitoring. Do we really want her doing what ever.
Not trying to one up you, just been there to a degree and saying get away from the problem if you can. With aging parents it can be hard.
Thank you for letting me vent a bit and good luck.

I have thought about becoming a hermit.

My mother is 71 and will be having one corneal transplant done this week. The next one in eight or nine months.

As for getting away from my parents, I have done that more than once.

I was married for eight years(but lived together only 4.75yrs.). It was during that marriage, that I got my first test of epileptic ignorance, courtesy of my (ex)wife.

When I was engaged to be married(2002-2007, never got married), the woman I was engaged to, reacted promptly, logically, and with confidence when I had two seizures during that time period.

My being in a relationship always comes down to, whether the woman can accept my health problems and the responsibility needed for them.

I feel like a hermit already because of how my health problems have been used against me.