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#1
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The S.E.E. program - seizure and epilepsy educationHas anyone here attended one of Mr. Mittan's S.E.E. Seminars? An EFA rep recommended it to Stacy and she wants to check it out. I was just wondering if anyone had found it worthwhile.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
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#2
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| what is it? I'm always looking for fun and new stuff.. wonder if they ever come to maine.....NOT
__________________ seizure since age 12, focal resection 1992, VNS 2002 removed 2003. Lamictal 400mg, Topamax 100mg daily. |
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#3
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| It's a weekend seminar that discusses types of seizures and epilepsy, triggers, treatments, etc. There's a lot of info on their web site. Looks like they do seminars all over the place. Stacy and I will be going to the next seminar in Georgia in September. She really wants to go and it's a week or so after her birthday, so looks like she picked her present - a weekend getaway...
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
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#4
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| Well, you guys will just have to let us know how it is. The closest one to me is New York or New Jersey. They are not until 06 , so I got a while to wait. Either way it should be a nice weekend away. :wink:
__________________ seizure since age 12, focal resection 1992, VNS 2002 removed 2003. Lamictal 400mg, Topamax 100mg daily. |
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#5
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| I sent the information about S.E.E. to the facilatator of my support group. Here is what transpired. From: "Robert Mittan, PhD" <****@****.net> Date: June 20, 2005 2:52:23 PM PDT To: <******@****.net> Subject: RE: Epilepsy Support Group of Las Vegas Reply-To: <****@****.net> Dear Mrs. Alvarez, Thank you for your inquiry. I am available to go to Las Vegas and would be interested in presenting there. There is a flat fee for the program of $5000. This fee includes two days of presentation and also travel and lodging. This fee is made possible by additional support already provided. I am not sure of your organization or its resources. Typically I present the S.E.E. program on behalf of an Epilepsy Foundation affiliate, a comprehensive epilepsy center, or a hospital with an epilepsy unit. I assume you may be a small, independent group. Under those circumstances, the usual way to set up a program is through a local medical center with an epilepsy unit. They are often able to provide some support and an auditorium for the program. In addition, if the epilepsy unit is involved, they are usually able to get additional funding from the pharmaceutical companies that make antiepilepsy medications. Independent groups have also sponsored S.E.E. programs entirely on their own. Registration fees for people attending the program are always charged, but the amount is up to the local sponsor. We always offer a scholarship program for those individuals who truly cannot afford the fee. As you can tell from the website, the usual fee for an individual is $99 for both days, and $149 for a family for both days. S.E.E. is also approved to award continuing education credit for nurses, and some sponsors charge nurses extra for the credit. A hospital may be more likely to sponsor a program if its nurses can attend at a reduced price or for free. There are really quite a number of ways the registration fees can be arranged. I hope that gives you an initial idea of what is involved. Please email me back if you have further questions. Thank you for writing. Sincerely, Robert Mittan, PhD Author & Presenter Seizures & Epilepsy Education (S.E.E.) www.theseeprogram.com He ain't cheap and we have such a small group. I only show up 3-4 times a year at best, and that is usually because she has asked me to speak to the group.
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#6
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| Your not kidding he ain't cheap. Is he going to come, and talk to you guys? Hay, BB I love your new saying at the bottom of your signature,I'm going to steal it. Quote :
__________________ seizure since age 12, focal resection 1992, VNS 2002 removed 2003. Lamictal 400mg, Topamax 100mg daily. |
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#7
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| Thanks BB. Looks like it will be cheaper for us to travel to Georgia for a weekend than have him come to Houston. I guess I could always ask the EFA Southeast Texas chapter if they would sponsor his seminar for Houston though - they did it for Cyberonics' VNS Therapy...
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
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#8
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| Here is what Dania wrote back Quote :
Now I may not agree with her about the quality of doctors and care here in Las Vegas but she does have a valid point. I too think he is also taking advantage cost wise. If he is working with the EFA and/or affilliates plus charging an admission fee of $100 a pop, that is a lot of money for a small group like ours to digest. Knowing how this community works, very few would attend. Even free seminars have plenty of open seats available. Last year Sunrise Hospital sonsered "Nevada Neuroscience Institute Conference " It was very informative and free to any and all. Professional and non. I took notes and posted them on my board but since they recieved little attention I "archive" (wink,wink) them. If you find them informative, please feel, free to copy and paste them on your forum (linking won't work). If you have any problems just give me a call. Petunia---for you kiddo http://www.paradiseawaits.com/Dance.html http://s4.invisionfree.com/VNS_Messa...?showtopic=170
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#9
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| I understood that the sponsoring group was charged a flat fee of $5K and whatever is charged for admission is kept by the sponsoring group so that a large enough crowd could turn a profit for the them (the sponsoring group). Ie. The "Coping With Epilepsy Forum" could:
I would imagine that this could easily turn a profit for the sponsoring group in a large city like Houston. edit: whoever is sponsoring the event in Georgia in September must have more attractive numbers to work with because they are only charging $40 per individual.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
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#10
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| Originally Posted by Birdbomb :
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
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#11
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| Well, the S.E.E. program scheduled for September 17 & 18 was cancelled. They only had 4 people signed up and Stacy and I were two of them. I guess we might try again if a reasonable opportunity crops up again.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
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