Coping With Epilepsy Lennox-Gastaut Syndrome Foundation
Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Library


Reply
 
LinkBack Thread Tools
  #1  
Old 05-22-2010, 12:06 PM
New Here
 
Join Date: May 2010
Posts: 3
Thanks: 1
Thanked 0 Times in 0 Posts

Angry ED Question


I don't know whether anyone else out there has this problem. But I thought I would post it and see whether anyone could address it.

I am a controlled epileptic. I haven't had a seizure in years. However, I had to up my dosage of one of my medicines from 500mg once a day to 500mg twice a day.

The medicines I am taking are Depakoate 500mg two times a day, Phenobarbital 60mg once a day and Tegretol 400mg once a day.

Since i did this I have begun having ED problems. It isn't that I don't get aroused it is right about the time I am going to get physical with my wife. Has anyone else out there had similuar problems and if so what solution did you come up with?

Thanks
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #2  
Old 05-22-2010, 12:18 PM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 6,523
Thanks: 174
Thanked 1,507 Times in 1,309 Posts
Guys with epilepsy tend have a higher incidence of ED then the general population, but the research isn't out there to say definitively what role the anti-epileptic drug meds play. Some of the older meds are known to affect testosterone levels, but there doesn't seem to be a lot of data out there for the newer ones. Given that you are on three meds, they may be contributing in some way -- if nothing else they could be affecting energy levels. Assuming that there are no other health issues that might be causing the ED, you should talk to your neurologist about perhaps backing off on dosage levels. If that's not an option, there are ED drugs that are considered safe for people with epilepsy to take.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to Nakamova For This Useful Post:
Largent803 (05-24-2010)
  #3  
Old 05-26-2010, 07:22 PM
stilldancing_98's Avatar
Venerable Voice of CWE
 
Join Date: Jan 2008
Location: Lakewood, Washington
Posts: 1,568
Thanks: 146
Thanked 84 Times in 60 Posts
You can also talk to your regular D0C to.
__________________
Climb out on a limb, that is where the future is!
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #4  
Old 05-27-2010, 12:04 AM
RanMan's Avatar
Too Much Experience with Epilepsy
 
Join Date: May 2005
Location: Hamilton, Ontario
Posts: 300
Thanks: 7
Thanked 25 Times in 12 Posts
largent803,

I feel better knowing that I'm not the only one out there with an epileptic condition (notice I didn't say "Epilepsy") that suffers with ED, since 04/98.(thank the lord that I already have my kids)

My neurologist and I both agree it's from the meds. and not the epileptic condition.
The only solution that my neurologist. recommended was another drug like Cialis or Viagra.

I've posted this on 3 other epilepsy posts but didn't get much of a response.
Could it be that most men feel unconferatable talking about it to others?

Funny thing tho ~ my family Doctor is a female and I mentioned it to her ~ "to get a "RISE" out of her, (no pun intended) and all she could do was send me to a Urologist.
__________________
Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.

275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #5  
Old 05-27-2010, 03:42 PM
New Here
 
Join Date: May 2010
Posts: 3
Thanks: 1
Thanked 0 Times in 0 Posts
RanMan

My wife has been doing hormone therepy recently from a company that specializes in it.
The biggest thing we have seen is a better sense of well being. And an increased drive to be more personal.
She needed to get some her testostrone levels up as she was estrogen dominate.

Since this company also works with guys as well. I am talking with them keeping in mind my medications about possibly doing some hormone therepy for me. I am guessing that with medications that I am taking they have driven my testerone levels down. I have tried all of the ED meds and have found that they do not work. So we will see what they have to say.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #6  
Old 06-04-2010, 10:37 AM
Zoofemme's Avatar
Esteemed Pillar of the Community
 
Join Date: Mar 2010
Location: Greenville, OH
Posts: 502
Thanks: 86
Thanked 103 Times in 95 Posts
I'm not a man but Tegretol decreased my sexual performance while I was on it. It is the only anti-epileptic drug that has ever done that to me (TG!). It wasn't that I wasn't interested...ummm...things were just kinda numb.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On



All times are GMT -5. The time now is 07:33 AM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.