[News] Help STOP a $5 Million Cut in Epilepsy Research!!!

[PhylisFeinerJohnson]

Epilepsy Care Programs also on the Chopping Block

Congress is considering a bill to reduce government spending by as much as $100 billion. Of that, more than $12 billion will come from important health programs – including medical research into a cure – that benefit people with epilepsy.

Click here to take action http://capwiz.com/efa/issues/alert/?...04501&queueid=[capwiz:queue_id]

Many Americans support cuts in government spending. But polls also show that Americans don’t support major cuts in health care spending. We need to deliver a message to Congress: Cuts to health programs do more harm than good.

Here’s a partial list of the cuts Congress is proposing:

- $1 billion cut in medical research funding (NIH)
- $5 million cut in epilepsy research funding (NIH)
- $200 million cut in maternal and child health (MCH Block Grant)
- $750 million in public health and delivery of care (CDC)

If these cuts are enacted, people with epilepsy will suffer the consequences. The Epilepsy Foundation needs your help to protect this funding and help the 3 million Americans affected by epilepsy.

Please contact your Representative and Senators today. http://capwiz.com/efa/issues/alert/?...04501&queueid=[capwiz:queue_id]

Please also alert people in your community – friends, neighbors, coworkers, family – to this threat and ask them also to contact their elected officials in Washington. The more voices, the better.

[gr33nr0se]

this is what i sent.

My name is ---------------. I live in ---------, New York. I am 16 years old
and I go to --------- High School.. On September 15, I had my first tonic
clonic seizure during gym class at school. Since then, I have been having
all kinds of generalized seizures and partial seizures. I am on my third
medication and we are not sure if it works yet. Epilepsy has impacted my
independence in a way that I never expected. I went from working at a
preschool for disabled children to being babysat by my parents. I am no
longer allowed to close my door or walk to the bus stop alone. Forget
about doing things with friends. Luckily, I am at an age where I can
understand what is happening to my body, but most other kids can't.

Cuts in Epilepsy funding will not only take away all of the hope that it
has given us, but all stigma involved in epilepsy will return. If the
government does not support a disorder that is so common, who will? I want
to have children and live a long full life, not relying on others. If
there is no research done for epilepsy, how can I even take the risk of
passing it to my children.

1 in 100 people have epilepsy. In my school, there are only six or seven
hundred kids. There are eight kids with epilepsy in my school. Two of us
are not controlled yet. Stopping research will deplete the hope that so
many parents have for their children. So many adults live in group homes
only due to developmental retardation from severe progessive epilepsy.
This needs to stop and it would be a crime to stop funding. Epilepsy is
more common than diabetes and parkinson's disease combined. DON'T STOP
RESEARCH FOR A CURE! SO MANY OF US CAN'T LIVE WITHOUT IT!

[PhylisFeinerJohnson]

If you go to http://www.cureepilepsy.org/home.asp you might find a smidgen of hope. Both Susan and David Axelrod (Obama's former Personal Advisor) are very active on the epilepsy front (because they have a daughter whose is totally disabled by epilepsy.)

They work closely with the political forces that be and are very intimate with those who hold the purse strings to both money and power...

[gr33nr0se]

thank you for editing my post epileric

[epileric]

thank you for editing my post epileric

You're very welcome but thank Endless too. She was the one who was sharp enough to notice it.

[gr33nr0se]

thank you endless too, she sent me a pm making me realize my mistake