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News Article Seizures and Vitamin D DeficiencyBelow is an article I recieved today about vitamin D deficiency and seizure disorders. Vitamin D deficiency is one of the recognized links to seizures and is also a common side effect of many anti-epileptic drugs. It is free to get a membership to this medical news letter. Quote :
http://www.medscape.com/viewarticle/567073?src=mp
__________________ ![]() Zoe |
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Last edited by alivenwell; 12-27-2007 at 08:59 PM. |
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| The one doctor I trust these days (OB-GYN) told me Rebecca should be getting minimum 30 min in the sun every day. Hard to control so I supplement. |
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| I use the supplements too, especially in winter.
__________________ ![]() Zoe |
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| Hi Everyone I had no idea that Vitamin D played a part in our seizure activity. Do I need the Vitamin D, A, and Calcium in the same tablet?
__________________ It is how we live in the present that determines how we live in the future. - quote unknown |
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| I do our supplements in separate capsules. I find it easier to regulate as to amount, when I give it and the type that I want to purchase. Actually I don't supplement A or Calcium.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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| Thank you Robin What amount do you use? How do I know how much I need to use?
__________________ It is how we live in the present that determines how we live in the future. - quote unknown |
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| I think you should ask your doctor what a good amount would be for you. Tell him about this information and why you think you would benefit from it. It depends on your body type, weight, activity, blood tests... You can start from what the bottle says is the RDA. I know for some that isn't enough, and for others it can be too much. So hard for me to say what you would need. When I decide, if it is a supplement that has no side effects I can be more experimental. If there are serious side effects I have to be careful.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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| Quote :
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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| My doctor has me on 2,000 mg vit D everyday and she said if I miss a dose to take 4,000 mg of vit D the next day I guess I was extreamly low and I have to take it everyday... I feel like crap today but wanted to post this.. its important to have your blood checked anyways.... ttyl Lorrie |
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| I think it so important we share all this as what doesnt work for one, works for another and gives us other ideas to try, other ways to look at things. I hope you feel better angel. joan* |
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More about Vit DQuote :
__________________ "It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason |
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| Hi epileric Vitamin D is the ticket, then. I had pneumonia 2 years ago. I will remember that. Do you know how it affects epilepsy and cancer.
__________________ It is how we live in the present that determines how we live in the future. - quote unknown |
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| Try a google search on "epilepsy" "vitamin D" and one on "vitamin D" "cancer". You'll turn up lots of interesting reading that way!
__________________ ![]() Zoe |
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| After reading this thread as well as another one on calcium and osteoporosis, I called my primary doctor and had her order a blood panel and bone density test. I take Phenobarbital so I am concerned with my calcium levels. I do weight-bearing exercise 5 days a week and take calcium supplements, so I'm doing all I can. I live in San Diego, so getting enough Vitamin D isn't an issue. I drink spinach juice about 4 times a week, lots of freshly juiced oranges and strawberries, so folic acid probably is not necessary, and take calcium supplements. However, I just learned that I should take magnesium, too...!?! I'll get my blood results back and go from there. |
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| I live in sunny SoCA as well and both Rebecca and I are deficient in vitamin D. Not sure why that is, but I have decided to supplement with D. Quite interesting that I did not catch a cold or the flu this year.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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Well, I'm about to leave to do my blood test. I'll share the results if they show anything surprising. |
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| Hi all, I am looking to find people who use a vitamin other than B vitamins to control seizures. I had my first seizure at two weeks old. I spent the first six months of my life in and out of hospital. Doctors were mystified by my illness. None of the ‘normal’ antiepileptic drugs that were administered had any positive effects. At this time I was having many ‘different types’ of seizures a day some of which went status. Countless tests were being done including, EEGs, lumber punctures… etc. A top pediatrician from the main city hospital told my mother that he was going to a meeting. He said he would talk about me in the hope that someone there would be able to help us. At this meeting there was a professor who was doing research into childhood epilepsy. He suggested a trial of Pyridoxine Hydrochloride (vitamin B6). Pyridoxine Hydrochloride was administered (I was five months old). Within two to three days my mother noticed a big difference in me. I’d stopped having severe seizures. Because of the positive effects that vitamin B6 had on my seizures the antiepileptic drugs were withdrawn (this all happened back in 1970-71). I’ve been taking Pyridoxine Hydrochloride on a daily bases ever since. I have now been using vitamin B6 for just over 38 years. I was still experiencing my aura and the occasionally seizure while I was taking vitamin B6 only. So, after an unsuccessful two year trial of Antiepileptic Drugs, which started when I was 15 years old, I began to do my own research into the other seven B vitamins. By the time I was 19 years old, I'd discovered a B complex that I thought was right for me. After getting the B complex tablet analyzed by doctors at the hospital and with my doctor's consent, I started to take this B complex, along with my B6, on a daily bases. Again, it was successful, my aura was under control and so were my seizures. I can't remember the exact date of my last grand-mal seizure but it must have been about 18 years ago now. All of my major seizures (complex partial seizures, simple partial seizures, MCs, tonic clonic seizures... many different types) have also been controlled for about 18 years thanks to B vitamins only. I would love to compare my seizures to the seizures of people who have been using vitamin D, only, to control their seizures. No other medication (Antiepileptic Drugs, Minerals… etc.), Just vitamin D or Vitamin D with other vitamins (please state which vitamins you use). Please do not reply to this if you use vitamins as supplements only, if you are using vitamins because of deficiencies as a result of using Antiepileptic Drug(s)/other medication, you are using your vitamin(s) without your doctor’s consent or if you just 'presume' that there are people out there that use vitamin D/vitamins only to control their seizures. Thank you for your time, Andy |
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| Hi Andy I will reply to your message. That is interesting that you control your seizures by vitamins only. Some people, like my sister, there seizures stop at a certain age. Everyone is different. My father and sister's seizures stopped when they were 16. My sister's seizures came back when she was 60 and have decided to stay. Is that what happened to you? I hope your seizures will not come back. Hi Robin Even though we live in sunny CA, I know it is my medicines that cause my vitamin deficiencies. That is interesting, though, if we soak up enough sun. I do not have a swimming pool, so I do not. Do you Robin, or do you work inside where you do not get the sun. Those commercials that show people who have nothing better to do than just soak up the sun. I wonder how they eat?
__________________ It is how we live in the present that determines how we live in the future. - quote unknown |
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Pyridoxine Dependent Epilepsy
My seizures haven't stopped, my main seizures (many different types) are all controlled, mainly by 400 mg/day of Pyridoxine HCL (vitamin B6. 100 mg/day of which is contained within my multi B complex tablet). If I was to take less than approx. 350 mg/day of vitamin B6 (EC RDA = 2 mg/day for men) my severe seizures (grand-Mal (tonic-Clonic), status epilepticus... etc.) would all return. The exact cause of my seizures is still unknown. Either a genetic mutation (a professor has my DNA and is looking into this. the 'normal' gene that causes Pyridoxine Dependent Seizures (ALDH7A1) appears to working normally) or a faulty B6/B vitamin Metabolism. It could even turn out to be a completely new type of Pyridoxine Dependent Epilepsy that I have. I do still have Absent 'TYPE' seizures. RARE: The first case of Pyridoxine (vitamin B6) Dependent Seizures was diognosed in 1954. Since 1954, only approx. 200 cases are known about, world wide. http://faculty.washington.edu/sgospe/pyridoxine/ http://www.healthlinkbc.ca/kbase/nord/nord1126.htm http://emedicine.medscape.com/article/124947-overview Regards Andrew |
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| osteoporosis, vitamin d |
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