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#1
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Outer body experienceI'm wondering if anybody else experiences this. I call it an outer body experience. It's hard to explain it but it bugs the crap out of me. I get this about once a day. I feel like I'm looking down on myself trying to control my actions from above or when I'm doing a certain task, it feels like someone is wispering in my ear and telling me what to do but there's nobody else around or if I'm sitting idle, I feel like I'm doing something. These feelings I've been getting are really starting to scare me, it's hard to describe, my wife thinks it's from stress but I differ. Could this be a form of a partial seizure? I've had EP for 26 yrs. but only started getting these feeling about 2 years ago. I didn't tell my Doc. because he might think I'm nuts. (Maybe I've been on the meds too long) Randy
__________________ Diagnosed with epilepsy and ulcerative colitis in 1979, Been on meds ever since. 275mg-dilantin/day 120mg-pheonobarb/day 3,000mg-Mesasol/day |
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#2
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| I've not experienced it, but I did run across some info while researching something else a few weeks ago. Apparently, out of body experiences may be related to sleep paralysis (which may also be related to some types of seizures - like the speech paralysis which you mentioned in another thread). Here's a page describing how to induce an outer body experience when in a state of sleep paralysis. There is a lot of other info that page as well.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. Would you like to help support this forum? We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners. |
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#3
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| Howdy Ran Man! Do you have temporal lobe epilepsy? They sound like simple partial seizures to me. One thing that I have discovered... A lot of simple partial sensations that we look upon as a curse are levels of self-awareness that many yoga practitioners would kill for! Part of my "Know Thyself" is Jnana yoga and meditation. I have discovered that simple partial seizures give a lot of us what I like to call "flashes of insight" |
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#4
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| Lol. Can't you just see it? People dedicating their whole lives to finding and opening a door within themselves while others find the same door is a motorized turnstile sucking them in whether they like it or not. :shock:
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. Would you like to help support this forum? We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners. |
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#5
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| Ran Man those happen to me all the time, and many others with temporal lobe epilepsy, it is a form of a seizure or aura. I call those my "little seizures" . Lots of times I get very tired after wards. You should tell you doctor and nope I don't think he will think you are crazy. I think you will find that he has other people that have told him the same thing. Elisa
__________________ seizure since age 12, focal resection 1992, VNS 2002 removed 2003. Lamictal 400mg, Topamax 100mg daily. |
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#6
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| That's a good point Elisa. If you don't tell your doctor what is going on with you, he is really handicapped in trying to help you. I'd rather a doc thought I was crazy than miss out on diagnosing important changes in seizure activity if I had epilepsy.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. Would you like to help support this forum? We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners. |
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#7
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| Tell your doctor. I have had epilepsy since I was a baby. I now know that I have been having simple partial seizures since I was a kid. I had a clean EEG when I was about 8 years old and was proclaimed to have outgrown epilepsy. I was taken off my meds. So, every time I had a tonic clonic after that, my mom said that it was just an exception and that I was still cured. I grew up haveing simple partial seizures and complex partial seizures, thinking I was crazy. Of course, I didn't want to discuss these experiences with anyone. Then, in my twenties, I had a tonic clonic that almost killed me. I was finally refered to an epilepsy center. They asked "Does this ever happen? Do you ever experience that?" That got me to open up. I finally discovered that I wasn't crazy, I was just having a lot of simple partial seizures and complex partial seizures. Don't be afraid to tell your doctor. They've probably heard it before, many times, and if they know what's going on they are more likely to be able to help you get better. |
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#8
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| I go through the same thing. That could easily be a simple partial seizure. I get them. I have temperal lobe epilepsy. It feels like a dream, it feels like your detached from your own body. The best way I can describe it: Have you ever seen being john malcovich? Yeah, just like that. lol It is scary as hell to me though. |
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#9
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| yeah me too randy. look into depersonalization, depression and some related disorders... because i get a lot of the above. i write really insightful lyrics, plays as proof - have since my whatever-it-is began. the levels of self awareness i've developed are definitely not taken for granted here but i don't think i'd kill to have them. my mum said there's an entire cult movement "mystics" that think the petit mal is some sort of divine spirit entering/leaving us because we're "chosen" ones. i guess the yoga people fit into a similar sort of category |
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#10
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| Quote :
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. Would you like to help support this forum? We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners. |
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#11
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| Bernard? Link no longer good But just to note: I had that experience with one of the generic anti-epileptic drug, and I never had such before, and it freaked the crappyola out of me! I didn't know what it was and I thought I was "separating myself" and did not know how to put myself back together. A Nurse stated it was called 'depersonalization' and we went through the medications and the generic that I was on was notorious for having that type of reaction - unfortunately, so she called Eckerds (defunct) and they got the other generic (their brand) at no charge if I would come in and they would replace whatever I had left. Then years later again with a different brand of Zonisamide (Generic) and it was even worse! Now I'm with the brand name and it's working. Last edited by brain; 08-27-2007 at 04:11 AM. |
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#12
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| Wow that was fast. The article was there just last night. No problem, I changed the link to a different newspaper. The article was syndicated from The New York Times, so you can find it in many places by searching for a sentence of the text I quoted above.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. Would you like to help support this forum? We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners. |
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#13
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I had my first (I think) episode of sleep paralysis when my ex-husband brought home his girl friend. She was supposed to be into witchcraft. Apparently, she said some things to me, and I was dumb enough to believe it. That night, I felt paralyzed. Then I saw nothing but candlelight, then I saw them in black hooded robes coming at me, chanting some stupid spell. I woke up crying. Then I was dumb enough to tell my ex what happened. He went on this lecture about the power of his girlfriend and how he was going to leave me. I only experience this twice more. I do think that this is fear and stress that bring on fear. If someone is harassing me, I always get fearful, and stressed out. I know I shouldn't let stuff get to me, but my parents kept stressing this 'punishment from god' bs. I believed this nonsense when I was a kid. Apparently, I haven't shaken this thing as I am now trembling, because of the memories of all this. |
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#14
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| Shelley, that sucks, i'm SO sorry. I didn't know sleep paralysis was related to EP. I've had that off & on since childhood & the weird outerbody experiences too. EXTREMELY freaky. I know (now) that strong fear is a symptom, or aura, of my particular form of temporal EP. I occasionally have what are call "lucid" dreams. Are those related? Guess I should contact my old friend the wiccan & tell her I see & feel "things". lol |
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#15
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| I have had many of those. The biggest when I was in my coma. But at night, sometimes things are so vivid to me, and I have been told I sleep walk and such, but some times things are so vivid I have to call and see if they really happenned.I am just touching on this now.
__________________ Climb out on a limb, that is where the future is! |
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#16
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| RanMan, Particularly in the 80's I had many OBE's. These were the days when if you had OBE's you were considered to be spiritually enlightened. So, there I was walking around feeling "above it all"! I was just diagnosed with Temporal Lobe Epislespy two years ago and asked my neurologist "Why now so late in life?" He explained to me that I had probably been having Simple Partials my entire life...such as OBE's. Yes. They are symptomatic of having Temporal Lobe Epilepsy. Also out of control garbled speech and having mystical experience all which were a part of my life. Now I hear outside voices which are also in the territory of temporal lobe epilepsy. I think temporal lobe epilepsy epilepsy is one of the most compicated forms of Epilepsy. Bi-Polar Disorder and DID are also linked to temporal lobe epilepsy. Hang in there you have plenty of company.
__________________ Talent is helpful in writing, but guts are absolutely necessary Jessamyn West The Creative Writing Page http://www.coping-with-epilepsy.com/forums/f44/ Temporal Lobe Video http://www.youtube.com/watch?v=xpLZ3Cf2I_s |
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| outer body experience, sleep, sleep paralysis |
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