![]() | ![]() Sponsored Advertisement - Advertise on this site |
|
#21
| ||||
| ||||
| yeah...in fact, the doctors are pretty certain that is what type of epilepsy I have. |
|
#22
| |||
| |||
| I have something known as "Psychogenic Non-Epileptic Seizure Disorder". I was originally mis-diagnosed with Epilepsy. I think this is what pseudoseizures are. My seizures are brought on by extreme levels of stress. Just thought I would contribute my $.02 |
|
#23
| ||||
| ||||
| Brandi - a few doctors thought Rebecca's were too, but then others have confirmed that it is not. I would like to throw this out. If it is... what would the difference be. There is still a reason your body and brain need to "throw a fit". Whether or not there is a chemical imbalance is hard to tell. IMO I would be willing to say that many neurologist issues have an organic cause. A label is so hard to shake. To me a seizure disorder is just that, and one needs to reach the best level of health if possible. Welcome Bloodborne Audio - Welcome! Well you see my answer above. You have labeled it correctly. Are you under extreme levels of stress? How are you dealing with that? Have you changed your diet in any way? Seratonin.. that feel good hormone is I think about 80% (correct me if I am wrong) in the "gut". So it seems to me that if you start healing from within, you begin to see changes in your "mood factor". Again IMO. |
|
#24
| |||
| |||
|
|
#25
| ||||
| ||||
|
|
#26
| ||||
| ||||
| Yes, I would say that is extreme. Sometimes putting one foot in front of the other is the only way. Hope we can help you deal with the difficult times. |
|
#27
| ||||
| ||||
| I think there is one really easy way to tell them apart it works like 98% of the time (rememering Only 98% of the time...there will be exceptions) I heard that If your eyes are open it is an epileptic seizure, if your eyes are closed, it is non epileptic....but remember...only 98% of the time... |
|
#28
| ||||
| ||||
Absence seizures or not?In my family we have a history of Epilepsy...My nan was diagnosed at the age of 27,after battling with odd symptoms since the age of 15/16.I was diagnosed Epileptic at age 22 after suffering from seizures since the age of 14. My daughter's school suggested to me,not having a clue about the family history, that they thought she was suffering from absence seizures. This confermed what i had suspected for years,that she was having some sort of seizure. At this,I went to her peadiatrician,who referred her for an EEG. I have just had the results from that single EEg and they have said that,as there were no abnormalities on the EEG there is NO WAY she is having seizures as it did not show the typical "spike - wave pattern". Is this possible? I was always told by my neurologist that one EEG with no abnormal results did not necessarily mean that you did not have epilepsy?. She has had "blank,non-responsive" periods that last from 1 - 4 mins where she stres blankly into space all her life,to the point where my friends babies would crawl over the top of her and she wouldnt even flinch when she was tiny...and she loses control of her bladder...even at age 10...at school...for no other reason,as all others have been investigated.....which she REALLY doesn't want to do......she has them at night as well,so wont go on sleep-overs for the wet beds.....and yet the peadiatrician is saying she DEFINATELY doesn't have epilepsy....Any answers/ideas on what I do next???(In England) ![]() |
|
#29
| ||||
| ||||
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
|
#30
| ||||
| ||||
seizure during EEG?NO! she didn't and this is the point i tried to make,but I have been shouted down,and its not even a neurologist who is saying all this...you have to bear in mind that this has been told to my daughter's SENCO (Special Educational Needs Co-Ordinator) at school and I have been waiting 8 weeks for the results....it is my daughter's usual peadiatrician who has told the senco that as there wasn't any "spike - wave pattern" on the EEG,Jade does NOT have epilepsy. I was present during the EEG,and Jade did not have one of what we have always called her "moments" while we were there.Should I contact the peadiatrician personally now to request the EEG results and question her findings? I do not believe that epilepsy can be discounted after just one,fairly short EEG that did not pick up any abnormal results. I myself have on some occasions produced "normal" EEG's.Does that mean that despite suffering from daily complex partial seizures,atonic seizures and now myoclonic seizures,that I DONT have epilepsy??And I am unwittingly fracturing my jaw/walking into concrete pillars (repeatedly)/stabbing my hands/burning my arm/bum(DONT ASK!!) for the fun of it?Is she conciusly loosing control of her bladder in front of her peers and getting teased/sometimes bullied for it/missing out on sleepovers because of it for fun??? I personally am under the impression that,unfortunately, my daughter will have these "moments" until she is in her 20's when, like my Nan & I,she will also develop other seizure types.( I live in hope that she wont) |
| Tags |
| pnes, pseudoseizures |
| Thread Tools | |
| Display Modes | |
|
|
| LinkBack to this Thread: http://www.coping-with-epilepsy.com/forums/f22/pseudoseizures-1523/ | ||||
| Posted By | For | Type | Date | |
| Dark Clouds & Blue Skies - What The FUCK!!! | This thread | Refback | 05-27-2008 06:29 PM | |