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Old 03-09-2009, 07:57 PM
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I do agree that she could easily hurt herself during a seizure. Not sure where he is getting his info from. In fact it could be that she grabs herself when she is having an aura, to hold herself together.

I don't see that it would be a bad idea to do more testing. My only problem with testing is that it is testing under the influence of drugs. Caught between a rock and a hard spot. The meds made my daughter loopy and caused more seizures. Odd side effects with each one. She is now med free, and is doing far better off the drugs than she ever was on them. Yet I didn't allow it to go ten years. When it wasn't acceptable I said UNCLE.

Thankfully we have a new neurologist that is willing to look at alternative with us.
Right now my daughter does a combination of nutritional changes, vitamin and mineral supplements, and neurofeedback. Life is good at the moment, and only looking better.
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