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#3
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| We talked a little bit about it here: Any good computer programs for noting rate/intensity of seizures? For me, a paper calendar or journal is preferable to a computer program - especially one where the data is not stored locally (and others may have access to it).
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. Would you like to help support this forum? We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners. |
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#4
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| I find that to be true too Bernard. I can grab it and go when in a rush to the doctors office. I keep Rebecca's in a plastic green envelope that is easily recognizable on the shelf and when I am distraught I don't have to think. I keep current tests, etc with it too. It is a calendar that I use colored pencils on. I write notes in the side bar, and the doctor can follow along with me when we are attempting to see a pattern occuring. I just wish there was a magic program that would FIGURE IT OUT FOR ME!!! |
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#6
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__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
| The Following User Says Thank You to RobinN For This Useful Post: | ||
j.j. (01-22-2010) | ||
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#7
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seizure tracker, good article. http://journals.lww.com/neurologynow..._Diary.15.aspx It is an article about how keeping a diary of your seizures is a good idea. It mentions SeizureTracker in a good light.
__________________ "The more I see the less I know for sure." - John Lennon |
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#8
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| Why didn't I discover this 2 weeks ago. I used excel to make bar graphs of seizures and was wondering how to show my medication. Thanks! |
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#9
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Seizure Tracker Has anyone ever used this? https://www.seizuretracker.com *NOTE* I have merged this with another existing thread of the same name...Meetz
__________________ ![]() God Bless and Take Care ![]() Last edited by Meetz1064; 01-31-2010 at 11:26 AM. |
| The Following User Says Thank You to flinnigan For This Useful Post: | ||
Birdbomb (01-31-2010) | ||
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#10
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| not me seems like too much work really. and no one seems to care when i have seizures but me. I kinda keep my notes to my self at this point . |
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#11
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| Hey that is pretty coll. Wish it was around when my epilepsy was active. At any rate, I bookmarked it and registered, you never know, it might come in handy for me one day. Thanks flinnigan!
__________________ |
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flinnigan (01-31-2010) | ||
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#13
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| I'm kind of in the same place haven't had a seizure in 8 months, but thankfully my Dr was very interested in how many and when my seizures were.
__________________ ![]() God Bless and Take Care ![]() |
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#14
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I have looked at it myself, and may actually start using it because of the 2 new types of E that were found in the past year. I've put it off due to procrastination (smack my hand please) but have to go through a bunch of tests at the doctor again in the next 4 weeks. So I may start it soon anyway. PS. I did merge two threads with the identical name... |
| The Following User Says Thank You to Meetz1064 For This Useful Post: | ||
flinnigan (01-31-2010) | ||