Coping With Epilepsy Lennox-Gastaut Syndrome Foundation
Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen


Reply
 
LinkBack Thread Tools
  #1  
Old 10-06-2008, 10:55 PM
Shutterbabe's Avatar
Joined the Party
 
Join Date: Nov 2007
Location: Guanajuato, Mexico and Southwest, USA
Posts: 57
Thanks: 0
Thanked 1 Time in 1 Post

Smile 6 Month Seizure Free Anniversary!!!!!!!


Hello,

Today is a landmark anniversary for me. I am 6 month's seizure free for the first time in 5 years!!!!! I have been on this site often in the past and all your kind support has helped me through my darkest moments. I am eternally grateful for everyone here who communicated & shared their stories when I was ill and felt so alone.

Although my medications remain the same- Trileptal and Klonipin- everything else has changed in my life. I have moved back to the US from Central Mexico. As much as I loved living in another country, it was often a very stressful place. I am now residing at a much lower altitude, which I believe is healthier for me.

I have also fallen deeply in love with a remarkable man. We are planning our forever future together. Rick has yet to see me seize but he understands this is always a possibility. We have created tranquility in our home, eat well, and exercise. I am even going to start biking again! I would like to think above all that love heals the body.

I send you blessings and my hope that whoever is reading this will share in my small miracle- and perhaps have one of their own soon.

Thank you, CWE.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #2  
Old 10-06-2008, 11:06 PM
Meetz1064's Avatar
Super Moderator / Fantastico
Recent Blog: Kindness is

 
Join Date: Oct 2007
Posts: 3,642
Thanks: 85
Thanked 209 Times in 192 Posts
Send a message via Yahoo to Meetz1064

Oooooooo,


THIS IS SOOOOO COOL!!! Yeah for you!!! 6 months seizure free, and LOVE, too........WOW!!!!

We're glad to see you back!
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #3  
Old 10-06-2008, 11:17 PM
Shutterbabe's Avatar
Joined the Party
 
Join Date: Nov 2007
Location: Guanajuato, Mexico and Southwest, USA
Posts: 57
Thanks: 0
Thanked 1 Time in 1 Post

Thank you.....


I have made a soul decision that all my struggles with seizures has taught me some great life lessons. I have survived myself and am now rising back into a place of light and strength. I never forget where I have been. I take enough pills to remind me several times a day. But this is a remarkable day. Rick is
cooking a special dinner for us as I type to celebrate- smells wonderful!
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #4  
Old 10-06-2008, 11:26 PM
googly389's Avatar
Weaving the Community Fabric
 
Join Date: Sep 2008
Location: GA
Posts: 106
Thanks: 0
Thanked 2 Times in 2 Posts
Congratulations! This gives hope to many on this board I am sure. I hope to find a mate as well who can understand my condition and limitations, but I'm not going to let that hold me back!
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #5  
Old 10-06-2008, 11:57 PM
forward2007's Avatar
Weaving the Community Fabric
 
Join Date: Nov 2007
Posts: 433
Thanks: 28
Thanked 27 Times in 21 Posts
Congratulations
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #6  
Old 10-07-2008, 12:03 AM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,475
Thanks: 61
Thanked 436 Times in 358 Posts
Send a message via Yahoo to RobinN
Hey you....
So good to hear from you again. Funny how you were on my mind today (that happened before didn't it), and I knew I needed to search my mail to reply. I was so happy to hear that you were doing well. Quite excited that you are in fact celebrating with Rick.

I was in your home town in August, and had a delightful visit. I am already wanting to return.

I can't wait until Rebecca can celebrate too.
Hugs
__________________
Robin
Neurofeedback - Rebecca's Story
Feedback Matters- blog
Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #7  
Old 10-07-2008, 12:14 AM
Shutterbabe's Avatar
Joined the Party
 
Join Date: Nov 2007
Location: Guanajuato, Mexico and Southwest, USA
Posts: 57
Thanks: 0
Thanked 1 Time in 1 Post

Smile Leaps of Faith


I was worried that Epilepsy would be a huge issue if I was in in a serious relationship. I kept a huge part of myself tucked away for years out of fear.

This has been a great leap of faith for both of us. I worried that Rick would see an "unpretty" part of me one day, something that might shift the beauty of our connection. Rick has reassured me over and over again that that will not be the case. He knows what to do if I seize and I am beginning to feel more secure in every way.

Keep your heart open......and leap if it feels right.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #8  
Old 10-07-2008, 12:17 AM
Shutterbabe's Avatar
Joined the Party
 
Join Date: Nov 2007
Location: Guanajuato, Mexico and Southwest, USA
Posts: 57
Thanks: 0
Thanked 1 Time in 1 Post

Hey Robin!!!!!!


So good to hear from you!!!! So you finally got to Mexico!! Que bueno para ti!
I hope that all is well in your world and that one day we will celebrate Rebecca's anniversary, too.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #9  
Old 10-07-2008, 01:47 AM
ashmstng's Avatar
Weaving the Community Fabric
 
Join Date: Apr 2008
Location: DL, Florida
Posts: 269
Thanks: 5
Thanked 0 Times in 0 Posts
Congratulations!
I am so happy to hear that. I hope for more days of seizure free. Take care.
__________________
"Do what makes you Happy, Be with who makes you Smile, Laugh as much as you Breath & Love as Long as you Live."
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #10  
Old 10-07-2008, 03:28 AM
Getting Comfortable
 
Join Date: Oct 2008
Posts: 10
Thanks: 0
Thanked 0 Times in 0 Posts
Well, thats good for you! Just be careful and always watch yourself.
I also try it many years ago... I didnt take medicine for 10 months...
After that, i had a seizure... So, i take my medicine again...
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #11  
Old 10-07-2008, 07:36 AM
Esteemed Pillar of the Community
 
Join Date: Dec 2007
Posts: 585
Thanks: 0
Thanked 0 Times in 0 Posts
That is wonderful news!! And something very special to be celebrated!! Hope you had a lovely dinner with Rick!! Glad all is really going well for you!!

Michelle : )
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #12  
Old 10-07-2008, 08:06 AM
Bernard's Avatar
Your Host
Recent Blog: Oh poop

 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 5,727
Thanks: 155
Thanked 595 Times in 268 Posts
Hey, that's fantastic news Shutterbabe!

Thanks for updating us with your success story. We need more of them.
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback.

Would you like to help support this forum?

We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #13  
Old 10-07-2008, 08:06 AM
Nancy's Avatar
Brain Surgery Experience
 
Join Date: Jul 2006
Location: Missouri
Posts: 578
Thanks: 0
Thanked 3 Times in 3 Posts
Oh-- how very wonderful to hear the words "seizure free" ...

IMHO the words "created tranquility in our home" and "fallen deeply in love" are more meaningful in life and are far more important.

I'm wishing you great success and great joy.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #14  
Old 10-07-2008, 08:08 AM
seizures4ever's Avatar
Weaving the Community Fabric
 
Join Date: Jul 2008
Location: Georgia
Posts: 456
Thanks: 0
Thanked 12 Times in 4 Posts
That is wonderful! What a milestone...Congratulations! Enjoy your true love and being seizure free. Both great blessings. -Julie
__________________
"I WILL NEVER GIVE UP ON MY DREAMS; I WILL JUST MODIFY MY PATH FOR REACHING THEM" -j (me)

"Life is better left to chance. I could have missed the pain, but I'd have had to miss the dance."
-Garth Brooks
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #15  
Old 10-07-2008, 08:34 AM
Belinda5000's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2007
Location: Atlanta,GA
Posts: 558
Thanks: 0
Thanked 6 Times in 4 Posts

Talking


shutterbabe,

That is great 6 months seizure free I hope you go a lot longer also.

I'm glad you also have found some someone who understands,I have someone like that to.

Belinda
__________________
(A)abort (B)fail (C)retry (D)throw computer against wall

southern and proud of it.

I've had a VNS since 2000
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #16  
Old 10-07-2008, 11:03 AM
dfwtexas's Avatar
Esteemed Pillar of the Community
 
Join Date: Jun 2008
Location: Rowlett, Texas
Posts: 981
Thanks: 34
Thanked 56 Times in 53 Posts
When I get down about my seizures, I come here to hear uplifting stories such as yours. Congrats!
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #17  
Old 10-07-2008, 01:38 PM
Account Closed
 
Join Date: Feb 2007
Location: Tampa Bay Region, FL
Posts: 3,452
Thanks: 28
Thanked 19 Times in 14 Posts

Thumbs up


Awesome news to hear!

Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #18  
Old 10-07-2008, 01:57 PM
TeeTees's Avatar
Esteemed Pillar of the Community
 
Join Date: Oct 2007
Location: UK
Posts: 919
Thanks: 3
Thanked 4 Times in 4 Posts

Yaaaay


Glad to hear some positive news regarding seizure free....

.....6 months is Fantastic, and I hope you can look forward to another 6 ahead off you (you have to set these small milestones, to reach the further ones, right ?)

6 months to me would be amazing...I so hope to reach it one day. BUT, this congratulations is all to you my friend
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #19  
Old 10-07-2008, 02:43 PM
Shutterbabe's Avatar
Joined the Party
 
Join Date: Nov 2007
Location: Guanajuato, Mexico and Southwest, USA
Posts: 57
Thanks: 0
Thanked 1 Time in 1 Post

Smile With Heartfelt Thanks


Dear Friends at CWE,

Your responses to my special milestone means so much to me. I felt that it was important to share good news with people who understand this journey.

I am still realistic about the glitches in my own machinery but I am going to enjoy my life, my new love and the kindness of people like YOU. I know that there might always be certain limitations with my health but in this moment I only feel peace and gratitude.

Wishing on a star for only good things for all of you.

Thanks and Namaste.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #20  
Old 10-07-2008, 03:05 PM
dfwtexas's Avatar
Esteemed Pillar of the Community
 
Join Date: Jun 2008
Location: Rowlett, Texas
Posts: 981
Thanks: 34
Thanked 56 Times in 53 Posts
Love your camera, Shutterbabe....what are you shooting with?
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

Tags
photography

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
What diets have you tried (>1 month) for seizure control? Bernard Back Fence 69 06-16-2011 03:19 AM
When you say seizure free, what do you mean???? wowthissuxass The Kitchen 32 01-03-2011 09:56 AM
Five Year Anniversary BuckeyeFan The Kitchen 19 09-17-2008 08:57 AM
Still seizure free -VNS korisue The Kitchen 4 06-06-2008 11:18 PM
Happy Anniversary to me ? Nancy The Lounge 10 02-15-2008 10:01 AM


All times are GMT -5. The time now is 10:07 PM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.