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#1
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7 more days untill veegHI everyone. Sorry it's been probably a month since I last updated on Sasha. We have been passing the nasty virus around my house. Tag I'm it I now have Bronchitis. Joy. Well in the past month, Sasha has been fully weaned off Keppra and is now only on Topamax. She's been having zone outs just about everyday and last tuesday she had another seizure where she couldn't open her eyes.At least this time we were at home and not driving. We leave for San Diego next wednesday for Sasha'a video EEG and mri, and I'm both anxious and terrified. My husband won't get there until sometime friday (saturday at the latest). I'm trying to keep myself busey thinking of what to bring, but I don't even know where to start. Besides coloring books, crayons, and reading what do I bring? I've showed Sasha the hospital online, and thankfully she said " it looks nice. not so scary mama" this from a 3 1/2 yr old! Has anyone been through this with a young child and can let me know what else to bring? Thanks Renee |
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#2
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| Hi Renee, I'd try to structure her activities for the hospital as close to what she does at home as possible. Hope you feel better soon!
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback Would you like to help support this forum? |
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#3
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| Don't forget her FAVORITE Teddy Bear or Doll! A couple of her favorite books; and take her to the Dollar Store and let her pick one of those Jumbo Coloring Books and a Jumbo Crayons (keep the ones you have at home) in case if they get lost at the Hospital or left behind - you won't miss it and picking up some Books there for her to look at will also do (Dollar Tree often have a 3-4 pack for $1.00). I also saw some talking books at Dollar Tree for $1.00 and I know they work because I've seen little kids sit on the floor listening to them, so that's one option there that if they have any, grab it because it would keep her busy. And - SURPRISING her, if it's a long stay at the Hospital, by bringing her a Stuffed Animal / Doll and gift wrapping it with the bows and all; will make it all fun for her after she's been there for at least 3 days. Bringing a bag and "ROTATING" toys helps too, taking home this and bring in that - each day will give her some- thing to do and the Hospital will be very happy; for you want it uncluttered as possible and it keeps the boredom away. If she has a MP3 Player or a IPod that she can listen to - she can bring that. If you have LEAP FROG or a Work Book Type Educational (small one), Bring one each day and take the other one home. NO SMALL OBJECTS NO SHARP or POINTED OBJECTS NO PUZZLES NO PENS OR PENCILS PLEASE! (I read this in a forum somewhere and was looking for the thread and I can't find it or which forum it was, because I was going to link it for you - it was in regarding to a 4 year old - I think) I can't think or remember much of any- thing, when my son had his EEG's, he never was in the Hospital but for an hour or less and that was years and years ago, and the last time he ever had an EEG was when he was 7, he's 23 now.
__________________ Sharon Advocate & Member of Head Storms - Resource Center "Vujà dé - the feeling you've never been in here before!" |
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#4
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| Thanks for the ideas. Bernard--- thanks for the get well. Brain--- we're actually going to be in hospital for 5 days, and on top of that we live 5 hours away from hospital. I found out that they have a library of sorts and some other in hospital activities so hopefully that will be enough to keep her busy. If not, I guess I can have my husband bring us more stuff when he comes since he's driving, and Sasha and I are flying. I have a princess throne that I'm going to put together for her and hide in the garage for when we get back. I just don't know what to else to pack as far as clothing for Sasha. Will I be able to change her pull-up or should I bring her panties (we're mid potty training) that sort of stuff. |
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#5
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you may not need this.
__________________ Sharon Advocate & Member of Head Storms - Resource Center "Vujà dé - the feeling you've never been in here before!" |
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#6
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| One more prayer coming your way Renee! E is so tough for us adults to understand, it has to be scary as heck for little ones. The next time I hug my grandkids (8 + 2), I will give them a little extra hug for Sasha. |
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