AEDS + Clear Tests

[davidmc]

I see posts everywhere about people with simple partial seizures but with clear EEGs and MRI scans that have started anti-epileptic drugs.
Yet my neurologists wouldn't let me start any due to the clear tests (although 1 EEG showed generalised sllow wave activity and the MRI scan showed sinus disease and a mucocele as well as scar tissue from surgery I had to remove a heterotopia from my scalp around 19 years ago). This is not just one neurologist, it is many.

I have an ambulatory EEG test in a few weeks but if that doesn't show anything, what do I do?

I was only allowed Topamax for my headaches which controlled the simple partial seizures after asking and I was advised against it.
I don't want to be on Topamax forever but don't have much choice at the minute.

Any advice?

[Nakamova]

I would be very forceful with the neurologist to make him see your point, or get a second opinion. Be very clear: "The anti-epileptic drug medication relieves my symptoms. That indicates that my symptoms are seizure-related, even in the absence of a positive EEG. It also suggests that other anti-epileptic drugs might be equally or more helpful in controlling my symptoms." Bring in a friend or family member to back you up.

[davidmc]

I would be very forceful with the neurologist to make him see your point, or get a second opinion. Be very clear: "The anti-epileptic drug medication relieves my symptoms. That indicates that my symptoms are seizure-related, even in the absence of a positive EEG. It also suggests that other anti-epileptic drugs might be equally or more helpful in controlling my symptoms." Bring in a friend or family member to back you up.

Thanks. I have the genetics test and ambulatory EEG test in November so will wait until after that and see what happens with those tests and then do your suggestion when I have my reslts, whatever they may be.

Can scar tissue from an op cause seizures?
The op was to remove an heterotopi I was born with, was removed aged 10.
Only there was brain tissue on the lump when they removed it so from what i gathered, think there was brain tissue outside of my brain.

[Nakamova]

Heterotopia can cause seizures, and any surgery on the brain -- even surgery to remove a heterotopia -- can also cause seizures, depending on the resultant scarring.