LOL I had a three day AEEG in college! And I could not get out of going to classes because I had missed some due to seizures. SO...I got it put on, all of the pretty colored wires, had the bundle of wires taped together and was able to just hang it over my should almost. The machine I wore around me like a school bag. The machine itself was small and did have a separate chord with a button on it to push if I felt weird at all. I even asked "What if what I feel isn't anything at all- just a feeling?" They said that anything at all you think might be a seizure or aura, press the button. All it does is place a marker on the recording tape that stands out to the EEG tech or reviewer.
I wore mine without a hat for most of the time. Everyone knew I had seizures anyways, at least in one class, since my teacher dismissed everyone 30min early for a oncoming seizure. How fun- the whole class knew something was up. I found myself in another building with EMS at my feet as I sat in a chair with 20-30 students walking by with both my interpreters, my teacher and 5 other staff in the building. SUCKED!
While wearing the AEEG, people might look at you or star but just say its a radio or something LOL HAHAHAHA.. just kidding.
I used to do that with my FM that connects to my old hearing aid with a wire. Most people look at it and dont know what it is- but sometimes people hthought it was a cool cellphone LOL HEHEHEHE.
Anyway- its not too bad at all, at least not for me. It might be a little hard to sleep at night because you have to find a good place for the machine so you don't knock it off the bed and pull wires. Might feel a little weird.
I put mind on the table next to me and I did knock it off and found it on the floor but picked it up, put it back and went to sleep again.
My twin had hers done a week before so I was making fun of her saying "You don't have a brain so the machine won't pick up anything at all! LOL hehehehe" My interpreteres got a kick out of that- then they looked at me and said: "Well you're next! Next week you will have it done and wear it to school!."
Sorry Sis, please don't make fun of me in class?" hehehehe Oh good times.
I did wear an EKG like that too for three days and had to push a button when I felt PACs or skipping or lightheadedness. It picked up several things with my heart conditions.
The AEEG picked up spick and waves and driving responce but I did not have an actual seizure while wearing it. Most people don't but they want to see how things are for longer amounts of time- and in a normal daily setting and rountine. Normally for people who has multiple EEGs with not a whole lot of findings even thought many people with Epilepsy do have normal EEGs.
Sorry for such a long post. The AEEG isn't too bad and if people star, just ignore them and realize that its just not something most see. BUT there are people that have weirdo hair styles and wear weird cloths etc hehehe...
Let us know how you are and how it goes.
PM me if you need other info/details.
Crystal
