any one from the UK ??? near northamptonshire ???

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jayde-101

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hey Im wondering if there is anyone from UK on here near nothamptonshire ?? Im wondering if you too are struggling with the national health system with getting a diagnosis or even getting meds ??
 
jayde-101

Not sure about Northamptonshire but the are a few from the U.K. - Scotland, the Irish system is like the NHS
 
Fedup said:
jayde-101

Not sure about Northamptonshire but the are a few from the U.K. - Scotland, the Irish system is like the NHS
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How did you find getting a diagnosis ?? ... Have you got one ?? Did you get given meds meds...

I just am fed up with all this rubbish :/ Im being sent to the neuro-pyschologist. That signed me psychologically fine 6 months ago she said last time that its not psychologically but the neuro is adiment that she Dont want to diagnose me
 
jayde-101

I got diagnosed as a child by a vet, any idea, I was talking to some people at my last neurologist appointment and things do not look good. Over the last six months I have been put on new medication, taken off another and put back on it, called a liar supposed to be coming off the new one it mayhem. I know its not easy - well easy say - but you have to stand your ground with the neuro.
 
Im from Scotland Jadye and really cannot say ive had any troubles since i was diagnosed at 17,had another seizure 6 weeks later and my doctor came round to my house with meds until i had all the tests done,which clearly showed i had epilepsy during the eeg.

If anything i think im on to high a dose.I suppose the trouble with the NHS is the waiting times,cant you go back to your local gp and demand a new nuero?
 
neil129 said:
Im from Scotland Jadye and really cannot say ive had any troubles since i was diagnosed at 17,had another seizure 6 weeks later and my doctor came round to my house with meds until i had all the tests done,which clearly showed i had epilepsy during the eeg.

If anything i think im on to high a dose.I suppose the trouble with the NHS is the waiting times,cant you go back to your local gp and demand a new nuero?
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ive tried to go back to the gp and asked for a new one and they said im not giving this one a chance :/ ... ive been with this neuro all year and this year has been hell ,
and yeah the waiting times on the nhs are ridiculous

my local paper just published an artical about my hospital dont fill me with alot of confidence at all
http://www.northantstelegraph.co.uk/news/local/kgh-makes-7m-payout-to-patients-1-4361071
 
I'm in the UK, Cardiff more specifically, NHS care here isn't great either as there are 3 neurologists for the entirety of Wales and Bristol, so you wait a year just for an appointment and then they dont remember you. So care is pretty haphazard and poor. I was diagnosed at age 5 so I'm afraid I can't give much info from that point of view. I pretty much manage everything myself now as the neuro's never listen, I swear I feel like a qualified epilepsy nurse. I had the same problem with meds they took me off lamotrigine put me in zonisamide and then told me to go on lamotrigine again??!! :s I love the NHS as I believe in free healthcare but in terms of Epilespy it's on the bottom of a long list of funding priorities :( I hope you find the help you need your GP should refer you to a new doctor of not can you go direct to the hospital? Hope you ind your answers :)
 
I'm in Blackpool but my neurologist is in Preston. I got diagnosed pretty quickly through clinic notes and my eeg. Well, i say quickly, that was after waiting for months and months to see the neurologist and then for the tests.

I'm also seeing a neuropsychologist too, but its to check my memory etc.
 
snap im from wales , apparently i was an over protective mother . Amy wasnt diagnosed until her teens . From an early age amy would day dream took her to the gp and was dismissed . In her teens she had an epiosode , then another . I walked out of the hospital leaving amy there with a head injury (not a bad one ) when i went back the doctors noticed how she was day dreaming , within weeks we had an eeg and an mri scan . eeg abnormal and mri clear . tablets ever since . its been one hell of a journey and not one i would even wish on my worst enemies . good luck with the nhs , i sometimes think if we were paying for the service we might get some where quicker .
 
Fedup said:
jayde-101

I got diagnosed as a child by a vet, any idea, I was talking to some people at my last neurologist appointment and things do not look good. Over the last six months I have been put on new medication, taken off another and put back on it, called a liar supposed to be coming off the new one it mayhem. I know its not easy - well easy say - but you have to stand your ground with the neuro.
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i rather be treated by the vet at the moment
 
cazzy

Its funny you say that because I bring my dog to his son.
 
Im from conwall and after a year of severe headaches and funny spells i was sent for a scan, came back saying i had an enlarged pituity gland yet they still have done nothing about it :-\ and that was last Christmas... Haven't had an eeg yet but have got to go back to the hospital as my memory has gotten terrible and i am currently hair about 5 spells a day :-( hope you get a diagnosis soon :-) mabey you should email them a link of this thread lol
 
Hi Jayde, I am near Oxford.

I have not been given meds as they are unsure of diagnosis. I have noticed on the forum that meds are not usually given in the UK unless you have a firm diagnosis whereas in other countries meds seem to be given out straight away. I am not sure which is best - I like the NHS even though we may have to wait!

There are 3 levels of referral (I gather):
Emergency
Urgent
Routine

This is what I was told once so in some ways you could take comfort that they do not think you are the first two!
 
i,m from tamworth and i have to say seeing other threads my son was very lucky to be seen so quickly only one week after his doctors appointment the neurolagist phoned in the morning and wanted to see him the same day
 
jayde-101 said:
hey Im wondering if there is anyone from UK on here near nothamptonshire ?? Im wondering if you too are struggling with the national health system with getting a diagnosis or even getting meds ??
Click to expand...

Yeap me near Market Harborough.
 
junemarie said:
i,m from tamworth and i have to say seeing other threads my son was very lucky to be seen so quickly only one week after his doctors appointment the neurolagist phoned in the morning and wanted to see him the same day
Click to expand...

My trouble and strife is from tamworth. I call her a brummy
 
So i got meds last week, and a mention of "complex partial seizures" but no "I'm diagnosing you with epilepsy" - all he said was "it'll all be in my letter."

which i'm still waiting for...

sometimes i'm not sure what to think.
 
Ask to be referred to Leicester hospital they done all my follow ups last year.
Better than when we lived in MK.

The availability of my meds was better in MK though.
 
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