Well-this is a new perspective, but in my aura issue, I have always focused on the unpleasant olfactory burn smell as my primary aura, but never really included that I always have gustatory auras that go hand in hand with it, and that in fact, is the gustatory aura the primary aura, with smell the effect with it? (I admit, I got an online opinion about this from a neurologist who I did clarify I was under treatment. This doc said my symptoms and EEG seem consistent with E, and my own neuro did think SPS initially too)
How many people who have olfactory auras ALSO have their taste affected?
In my case, the taste is an awful burn one too, just like the smell. It affects food and drink for me, depending on the item. Like coffee for example tastes like it was burnt on the pot; chocolate tastes funny and burnt; other food has minor effects, but still there, though I can manage around them.
Once I get the aura, the effect lasts for hours and I have struggled to make sense of this as it just seemed too long to be SPS, however, one blurb I read about gustatory seizures did make mention that after the initial seizure, the altered taste could persist for hours and that in gustatory auras, the smell often gets affected.
In my case, as I also have migraine type symptoms at time, this has been the challenge-are these auras migraine or E or both. Unfortunately, this new perspective is making me back to thinking that it is E, simple partials, and that yeah, I probably also have a migraine component too. My neuro for the record has mentioned sending me to an E center for another view. My feeling is that if I can just get on the right medication combination that suppresses the auras, that's all I care about, and I will ask him to just please keep trying AEDs. I'm newly on Lamictil. That's the next one in the bunch. I don't need to see another doc if I have enough of an idea and can talk to my own doc about it.
How many people who have olfactory auras ALSO have their taste affected?
In my case, the taste is an awful burn one too, just like the smell. It affects food and drink for me, depending on the item. Like coffee for example tastes like it was burnt on the pot; chocolate tastes funny and burnt; other food has minor effects, but still there, though I can manage around them.
Once I get the aura, the effect lasts for hours and I have struggled to make sense of this as it just seemed too long to be SPS, however, one blurb I read about gustatory seizures did make mention that after the initial seizure, the altered taste could persist for hours and that in gustatory auras, the smell often gets affected.
In my case, as I also have migraine type symptoms at time, this has been the challenge-are these auras migraine or E or both. Unfortunately, this new perspective is making me back to thinking that it is E, simple partials, and that yeah, I probably also have a migraine component too. My neuro for the record has mentioned sending me to an E center for another view. My feeling is that if I can just get on the right medication combination that suppresses the auras, that's all I care about, and I will ask him to just please keep trying AEDs. I'm newly on Lamictil. That's the next one in the bunch. I don't need to see another doc if I have enough of an idea and can talk to my own doc about it.
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