Coping With Epilepsy Dr. Karen Shue - Brain and Health
10% off neurofeedback training for CWE members - Toronto, Ontario
Neurofeedback Partner - Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen


Reply
 
LinkBack Thread Tools
  #21  
Old 09-03-2010, 12:54 PM
Joined the Party
 
Join Date: Sep 2010
Posts: 42
Thanks: 47
Thanked 0 Times in 0 Posts
@epileric
Thanks for the reply again.Will search the info.

We went for the chekup,the doctor is on a holiday,he will be coming back next week
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #22  
Old 09-05-2010, 12:56 PM
Joined the Party
 
Join Date: Sep 2010
Posts: 42
Thanks: 47
Thanked 0 Times in 0 Posts
Hi Guys

I forgot to mention before,we had a checkup of my brother in 2004 and the doctor said after performing tests the i.q. of my brother is 63% now he can speak few words,he understands us very well but doesnt write or study.He is dependent on us for toilet purposes.He gets frightened by dark areas,i mean where there is no light,but when he sleeps at night,all lights are turned off.There's a guy living in our neighbour,he had a fight with someone and my brother saw it and he is scared of him too.He doesnt get along with people at first but after some time he mixes with them very well.Is there any activity or treatment that can help my brother?

Regards
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #23  
Old 09-05-2010, 02:54 PM
Loopy Lou's Avatar
Venerable Voice of CWE
 
Join Date: Apr 2009
Location: Ballymena N.Ireland/Blackpool England
Posts: 1,680
Thanks: 150
Thanked 127 Times in 113 Posts
Well, is there an activity your brother really likes doing? I'd suggest using that and seeing if you can get him into a group.

For example, if he loves painting, music, anything like that then take him to a class or something. It may take a few attempts to get him to stay in the room if it's against his routine but it could help him make friends and stuff.
__________________
Gach óir is é sin nach glitter...
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to Loopy Lou For This Useful Post:
becool (09-07-2010)
  #24  
Old 09-05-2010, 03:54 PM
Joined the Party
 
Join Date: Sep 2010
Posts: 42
Thanks: 47
Thanked 0 Times in 0 Posts
@Loopy Lou
Thanks for the reply

Yea he loves watching few tv shows,he loves going around in the family car,with me on the bike,loves playing with the kids of his age.Music not that much,painting no.He joined a kindergarten a couple of years back,but he didn't liked to sit in the class.As i said before he does not get mixed up with people at first.

At home if we give him the blocks game and tell him to build the tower he does not do that,but if we tell him we will go shopping or stuff then he does that.If we give him more advanced puzzle games like putting all red,yellow etc colours in one corner and other in different corners he is not willing to learn it.

Regards
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #25  
Old 09-06-2010, 04:04 PM
Joined the Party
 
Join Date: Sep 2010
Posts: 42
Thanks: 47
Thanked 0 Times in 0 Posts
Waiting for the reply Loopy
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #26  
Old 09-07-2010, 01:41 AM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,643
Thanks: 86
Thanked 504 Times in 403 Posts
Send a message via Yahoo to RobinN
becool - welcome
I looked over your last post, and I am not finding a question.

There are some wonderful ways people are finding to help their children with autism.
The sites that I like the best are:
http://stankurtz.com
http://danasview.net

I have done a lot of research because I have a son on the spectrum. It was one reason that I was able to connect the dots to see ways to help my daughter, who has the seizures. I was healing her GI system and thus healing her organs which then helps to raise her seizure threshold. She is med free and her seizures are improving.

Something to consider- at least for improvement in the quality of life.
__________________
Robin
Neurofeedback - Rebecca's Story
Feedback Matters- blog
Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to RobinN For This Useful Post:
becool (09-07-2010)
  #27  
Old 09-07-2010, 01:15 PM
Joined the Party
 
Join Date: Sep 2010
Posts: 42
Thanks: 47
Thanked 0 Times in 0 Posts
Hi

Thanks for the reply and for the links Mrs.Robin they are really very helpful

Mam kindly check the posts from page 1 and reply,any info will be useful

Regards
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #28  
Old 09-09-2010, 06:39 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,643
Thanks: 86
Thanked 504 Times in 403 Posts
Send a message via Yahoo to RobinN
There is no other alternative for an EEG, that I know of. There are other brain scanning type of tests, such as an MRI, MRA, but your brother would need to be sedated while having these tests, because the patient has to remain still.

Acting drunk "after" taking medication, would be an good indication that this side effect was most definitely as a result of taking that medication.

I believe all the other questions you had were also answered, and I can't add any additional information.
I would suggest that you perhaps look at groups on Yahoo, that might be helpful with Autism.
My research has directed me to nutrition, virus elimination, chelation, vitamin and mineral supplementation for autism.
__________________
Robin
Neurofeedback - Rebecca's Story
Feedback Matters- blog
Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce

Last edited by RobinN; 09-09-2010 at 06:43 PM.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to RobinN For This Useful Post:
becool (09-10-2010)
  #29  
Old 09-10-2010, 07:34 AM
Loopy Lou's Avatar
Venerable Voice of CWE
 
Join Date: Apr 2009
Location: Ballymena N.Ireland/Blackpool England
Posts: 1,680
Thanks: 150
Thanked 127 Times in 113 Posts
Originally Posted by becool View Post:
Waiting for the reply Loopy
Sorry, been busy with life stuff.

I don't have all the answers, far from it. Just keep doing what you're doing. There's no easy way to go about things and you need to find what works for your brother. It'll probably take a lot of trial and error, but he'll get there in his own time.

It's not a question of being "willing" to learn stuff. You need to find a way to engage him at his own level and work with him in that way. It takes time, patience and understanding.
__________________
Gach óir is é sin nach glitter...
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to Loopy Lou For This Useful Post:
becool (09-10-2010)
  #30  
Old 09-10-2010, 01:40 PM
Joined the Party
 
Join Date: Sep 2010
Posts: 42
Thanks: 47
Thanked 0 Times in 0 Posts
Thanks for the reply Mrs.Robin and Loopy

Mam can you please provide the links for those Yahoo groups?Also what kind of diet do you recommend?

We have stopped giving my brother Tegrital CR 200 mg tablets and back to Tegrital Solution,now he doesnt look drunk,his eyes are not red.We give him 2 spoons in the morning and 2 spoons before sleep at night.

I was reading this thread(i cant post the link here,according to the site i haven't been around long enough)anways after the site's name post this and hit enter to see that thread
/index.php?p=alternative-treatments
Which alternative will be better for my brother?

Regards
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #31  
Old 09-11-2010, 04:35 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,643
Thanks: 86
Thanked 504 Times in 403 Posts
Send a message via Yahoo to RobinN
The best I have found is through:

http://stankurtz.com
@
http://health.groups.yahoo.com/group/mb12valtrex/
__________________
Robin
Neurofeedback - Rebecca's Story
Feedback Matters- blog
Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to RobinN For This Useful Post:
becool (09-12-2010)
  #32  
Old 09-12-2010, 02:05 PM
Endless's Avatar
Super Moderator / Even Keel
 
Join Date: Feb 2010
Location: U.S.
Posts: 4,287
Thanks: 753
Thanked 1,048 Times in 853 Posts
Send a message via AIM to Endless
Hi, Becool,

I agree with all that has been posted so far. All good advice.

One thing I would add. A recent study, using PET scans, linked abnormal temporal lobe activity with children who have autism. It sure would explain the increased chance of seizures in people with autism. Give this a read:
http://ajp.psychiatryonline.org/cgi/...ll/157/12/1988

I don't know if a PET scan would be useful for your brother. It identifies places in the brain that have a different level of glucose uptake. Low uptake means autism or seizures. High uptake usually means a tumor.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to Endless For This Useful Post:
becool (09-12-2010)
  #33  
Old 09-12-2010, 03:08 PM
Joined the Party
 
Join Date: Sep 2010
Posts: 42
Thanks: 47
Thanked 0 Times in 0 Posts
Thanks for the reply Mrs.Robin and Endless

Will go through those websites Mrs.Robin

Endless regarding that PET scan i dont think my brother will go for it.When we went for the EEG scan he removed the wires that the doctors set up on his head,that is why i asked for the alternatives.So is there any?

Regards
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #34  
Old 09-13-2010, 05:01 AM
Endless's Avatar
Super Moderator / Even Keel
 
Join Date: Feb 2010
Location: U.S.
Posts: 4,287
Thanks: 753
Thanked 1,048 Times in 853 Posts
Send a message via AIM to Endless
Alternatives? Only drugs during testing to keep calm. I'm usually drugged up for MRI's. (Valium) I have a serious fear of enclosed spaces. This would work for a short test, but probably not one that lasts days, like a video EEG.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to Endless For This Useful Post:
becool (09-13-2010)
  #35  
Old 09-13-2010, 04:14 PM
Joined the Party
 
Join Date: Sep 2010
Posts: 42
Thanks: 47
Thanked 0 Times in 0 Posts
Yea you are write the drug didn't work for the EEG That is why i am searching for its alternatives
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #36  
Old 09-21-2010, 04:53 PM
Joined the Party
 
Join Date: Sep 2010
Posts: 42
Thanks: 47
Thanked 0 Times in 0 Posts
Hi Guys
Anyone of you know about the cure of epilepsy by Homeopathy?
Regards
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #37  
Old 09-21-2010, 04:57 PM
epileric's Avatar
Super Moderator / Spaminator
 
Join Date: Dec 2007
Location: Ottawa, Ontario, Canada
Posts: 3,849
Thanks: 159
Thanked 719 Times in 605 Posts
There is no "cure" for epilepsy & I would be very careful of anyone that claims to have one.
__________________
"It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to epileric For This Useful Post:
becool (09-22-2010)
  #38  
Old 09-22-2010, 04:52 PM
Joined the Party
 
Join Date: Sep 2010
Posts: 42
Thanks: 47
Thanked 0 Times in 0 Posts
Thanks for the reply.Kindly check your PM.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Therapy options for epileptic and autistic toddler greymatter The Foyer 9 01-29-2010 04:23 PM
Panic attacks or just tired?! Elaine H The Kitchen 6 01-09-2009 09:11 PM
drop attacks (atonic seizures) Cinnabar The Kitchen 3 05-01-2008 02:23 AM


All times are GMT -5. The time now is 05:35 AM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.