Back from the ER - 2 SP & 1 CP

[brain]

EDITED TO ADD:
Seizures late 08-08-08
Came back home early (6 AM?) on 08-09-08

==================================

Just enjoyed the lovely fun (NOT!) of
being in the ER at the Hospital per the
Doctor's orders.



2 Freaking simple partial's
Then being told by the Medics had one
on the gurney (complex partial).
(I did? )

Oh joy! Not!


But nonetheless, my leg is stuck in the
"contraction" mode because of the Simple Partials.
:::: Wahhh! ::::

I cannot force it out, and having been
told it will eventually become 'undone'
on its own. I HATE THIS! It's nothing like
a leg cramp, the muscle is STUCK - period.
I've been told do not massage the muscle,
because it will bruise it (I would end up
being black and blue), nor put any Ben Gay
on it, for it will cause it to spasm. *sigh*
I was advised to alternate between heat and
ice - Muwuhahahahahahaha! Yeah right! The
heat made it worse, and the ice, well, it
goes better in drinks, it actually made it
cramp up even worse! But I had my other
"boyfriend" - Ace Bandage - *laughs* - when
I was home, and put him on, and he did wonders!

But I'm a little shocked though, I thought
the 4 page discharge summary years ago was a
"Record Discharge" paper - not anymore; August
8th is! 6 pages long! A mini-book, and do you
think I ought to list and sell it on eBay?
*laughs* Gee whiz Wheezy! Everything from bleeding
under my head to recurrent seizure - all on my
discharge summary. You'd think I've just tried
out for quarterbacking in Training Camp in NFL
and got clobbered by the D-Fence, I mean defense.
*laughs*

And I'm still a little bewildered - being told
they're doing a head scan and leg scan; and while
it's true, I can't elaborate pain very well - but
when it came to scans: They did my leg (check),
my head (check), and my chest (huh?).


=======================================

So what all exactly happened?

It was really weird - What I thought was going to be a
complex partial, because I felt a rising inside of me, then a electrical
burning, a light for a nanosecond. I felt light-headed and
my vision was all blurry, as quickly as it came, it was too
strange. I started to get into bed and then suddenly had the
need to go to the bathroom. I decide, I better go now, fast,
and get it over with and get in bed.

Well, I couldn't go, and it didn't make sense with me, and
my left hand and foot began to shake, and my head lurched
forward then it was like someone pushed me down to the floor,
and almost like a carpal tunnel syndrome; that electrical
feeling, it just went zoom, from the left side of my body,
and I was alert - and I hate this simple partial - because it freaks me
out, as it went into a seizure, but it was only a small mild
one so it left me in a "drifty" state for a moment there.

I was able to get up off the floor, but I didn't feel quite
right, and this time, I felt like I really had to go; and
back on the toilet I went, and the 2nd simple partial attack was a bad
one which happened so fast which caused me to hit my head
on the near edge of my marble bathroom counter and the seizure
lasted longer than the 1st strike, only that the 2nd attack
not only had the electrical current zooming across but it
also result numbness and tingling flowing behind it. Just
plain too freaky! My left side felt like it was injected
with "insta-matic" Novacaine that followed behind it. Just
too freaky - then it was over with.

I had a hard time describing the state I was in after the
2nd hit when the Doctor asked; I wasn't confused - I couldn't
find the right word, until I came up with Dazed. But being at
home now; I can think of more words - Woozy, feeling of being
"Shipwrecked", dazzled, and frazzled. However, I never had the
opportunity to tell the ER Nurse and Doctor everything, but I
did tell a little bit here and there between the Medics, Para-
medics, the Nurse, and Doctors - so I'm pretty sure they had
the whole picture.

However I ran into a problem; I couldn't get myself off the
floor after several attempts - and after when I DID - I could
not bear weight on the left leg, nor could I straighten it.
Since I played sports; I tried to work that muscle in which was
rock solid, that's how tight that muscle is (currently just NOW
beginning to loosen up gradually, but is very painful). I know
walking it off sometimes helps.

I crawled in pain to grab my great-deceased grandfather's cane,
and used my desktop to pull myself up, and forced myself to walk.
And tried to pretend I had played fastpitch softball and tried to
steal a base and slid wrong and hurt myself to get my mind off of
seizures which I loathe so much of. I knew I wasn't 100% in sync,
so I walked, and it was a mistake, I almost got stuck out in the
middle of the street in the dark. I was in a jam, without anyone
to help me. (I felt like a jacka$$ there)

Standing there in the dark, middle of the street, stuck... now
what? So I used the cane and looped it between my leg and tried to
make it like a wooden leg and forced myself to walk back, but once
I got to my mailbox, I was out of breath and was beginning to have
auras again - and I was telling myself how stupid I was. So I took
advantage of the Boat Mooring piling I have for mailbox posts, and
tried to stretch my leg (BIG MISTAKE) and I almost passed out! But
at least I got my leg sort of walkable to the backroom where I have
my crutches! My gosh!

Then I knew I was hurt when I looked at my bedroom mirror and saw
my head, I had to phone my Doc - but one problem; the Relay Service
was down, only I didn't know it. For nearly over 2 hours, while I was
in and out of sync, trying to force myself to stay awake, trying to
get through and it was an emergency. Of all things - this had to be
absolutely hideous!

Without any avail with the Relay Service, I ended up trying to do
something that I cannot do; being profoundly deaf - calling my son
via his friend's cell phone without a Relay Service. This was a cross
your fingers and hope for the best, on a wing and a prayer. I had to
go from my bedroom, all the way up to our office/den/library - using
the speaker phone, not even knowing how my voice was, prayed, and
called twice, not even sure if any my messages went through. Then I
went outside instead of my bedroom, because I was afraid I would fall
asleep if I went back into my bedroom.

My attempt to call through his friend's cell worked, they got part of
the message, and my son came home as fast as he could. However, he
had to help me out of the chair, my leg was stuck again. Once back in
the bedroom, he phoned my Primary, and his backup gave the orders,
specifically (he's familiar with me) and they wanted me in the ER ASAP,
and call 911 and give them the orders of what he had given him per
his instructions. I was right about not falling asleep because that
was exactly what my Primary's partner (they're also close friends) had
remarked, not to let your mom fall asleep.

The issue here lies therein, when I'm not sure if it was the Para-
medics from the Fire Department or the Ambulance - but they had a hard
time believing that I had been trying to call for over 2 hours via the
Relay. My son told them that the Relay Service was down, because after
when he got off the phone with them, I tried to call using the Relay
service, and same thing; they were still down. I was actually called a
"Liar". When I arrived at the Hospital, I can't remember whom it was,
but they wanted to know why I waited over 2 hours - and I kept saying
that the Relay wasn't working. It seemed no one believed me.

Well, after when I phoned my mom late Saturday night, after the Relay
Service was finally functional (only that it was coming from South
Dakota - Cool!) - I finally learned, INDEED, Florida had severe tech-
nical Relay problem and it indeed was down! And the time, date, and
all I had provided to them aligned exactly when I needed it the most!
Not only were they very apologetic - but I was transferred from South
Dakota to the Relay Center's other Headquarters in Minnesota - who
also confirmed it; they're sending me a letter to verify and confirm
for legitimate purposes, and ALSO sending a letter to my Primary Doctor
so that any "excuses" that's on the medical records of the "delay"
is proven - they are sending official letters! One for him and one
for me.

Normally if a Relay Service is down, such gets re-routed (or redirected)
to another location; but in this case, Florida crashed basically. You
might say Florida's Relay Service had "E" too!

[Nancy]

Incredible .... and you did it.... you did it! Wow.
I would have sat on the floor, sniveling, waiting for somebody, anybody to come help me.

[Meetz1064]

Brain. You are one special lady. I would not have been able to do that... with Nancy.

Glad to hear you made it to the ER, but it really sucks about your leg. Hopefully the muscle releases itself SOON.

Take care,

Meetz

[Georgiagirl88]

Sharon..you poor Dear!! I hope you are feeling better!!! Sounds like you've
been through it all! That is crazy that you couldn't get through. How awful!!
I sure am glad you are home and try to rest up. Hope those muscle start to relax and feel better for you. Take care Girl!!
Michelle

[Bernard]

Hope your leg relaxes soon Sharon. If there was a way to bottle your spirit and sell it, you'd be a millionaire.

[skillefer]

Brain, you are one tough cookie. I hope your leg relaxes soon.

[brain]

Thanks everyone!

I also edited the top part of the thread
to add the date of when it happened.

=======================

I did phone in my Neurologist and Primary today and
alerted them, unfortunately my Neurologist won't be
back according to his secretary until Friday so I guess
I won't be hearing from the Doctor anytime soon.

========================

On top of it - I also learned, what I thought I wasn't
sleeping, I had been sleeping - way too much since
being discharged! My son, his girlfriend, my ex and
his wife, and my mother - all had confirmed it. But I
feel like I hadn't been sleeping at all.

Today, I'm able to hobble around with a cane, and able
to bend my leg a little more, thanks to the Ace Bandage,
I can't take it off just yet - but I do admit I'm a little
concerned if I should be sleeping this much.

The neurologist's office did ask if I was admitted,
I responded no, but I did tell her that the ER Doctor
seemed awfully - trying to think of the words, 'irritated,
peeved, irked..." that I didn't have Ativan. This was
the same thing that I was confronted with last January
when they asked about the Ativan. My Neurologist had
already made that exceptionally clear that I'm on
Clonazepam (Klonopin) and didn't need the Ativan,
so I don't have any emergency medications. But I
did tell her to me, I think they're a little tired of seeing
me in the ER with stuff like this as the epileptologist before years
ago had given me Ativan for emergencies, and that was
the whole purpose, was to keep me out of the Hospital.

*sigh*

But I did elaborate to her that I can understand my
Doctor's emphasis on the Ativan and Clonazepam being
Benzos, can't be on both, so I can see that viewpoint there
and can't argue with that.

However, I did tell her what the Staff all there told me,
and what the Nurse summed it up to my mom - and the
instructions they gave me basically.

I'm getting really frustrated here, I told her I've been in a
Yo-Yo all this time, up and down - but I can't say much else
about it - because I feel like what Sheila says it best "A potted
plant", I feel like I'm being a scratched record - I'm repeating
myself - same old, same old - for decades.

Doesn't anyone hear me? Or if they're hearing me, are they
listening?

I feel like I'm beating a dead horse, beating air, maybe I am just
not very good trying to get anything across - I had always been
dysarthric, I'm sorry - I was born this way. I'm not being negative,
just a fact. I struggle to make my point across, but it seems the
only way I can is when I write.

But even when I write, there's so much to put into, I get lost, it's
far more than words can say.

((((((( Hugs to everyone ))))))))))

I really appreciate y'all very much, you are so dear and
precious!

[brain]

Just an update that I'm off the cane and am finally
able to walk but with a slight limp though, trying to
wean off the cane. I still have the bump on my head
but it's fading away, as well as the bruises on my
legs (I didn't realize I had bruises on my other leg too,
but it did show up the next day).

I'm starting to get more back in sync, but my son
remarks that I'm having mild Absence sporadically as
usual with blankness which is 'normal' for me (excuse
me son? Since when were seizures 'normal'?). Did have
a couple of mild complex partial's which my son just sent me to bed.
And as he would say - I'd be out like a baby.

[Molly97]

Sharon,
I don't know how I missed this story from the beginning, but I had missed you.
Life sure threw a lot at you all at once. I'm glad you're doing better, even if only in a relative sense.

[alivenwell]

Wow...I just read this as well. It sounds like 888 is equivalent to 666, the Devil's number.

I hope you get much better. That sounded like a Mr. Bill session without the 'Oh Nooooooooo' until after the fact.

[JLynn]

That sounds incredibly scarey, and glad your okay now.
How about where you hit your head?
I have simple partials, but I guess mine are a bit different, Ive never hit my head luckily, well accept that one time before the seizures began
but I do always feel out of it, and some freaking incredible urge to "go pee." I didnt even know that was part of it until I read it on here, I always thought it was a "nerve" thing, as if me having to pee at these times was because I unconciously wished to escape from what was happening, sounds bizarre I know, but in my mind I always try to make some rationality out of what I dont understand I suppose.
Sounds like maybe you also might have had a tonic clonic and not know?
With the injuries you describe, it sounds possible. But then again, although I have this also, I still dont know enough, but am just really wondering by what you describe if you didnt have something stronger than simple partials?
I guess you might have smacked your head, and even your leg during the complex thou, and you must have had one at least that strong do so and not remember, I think so anyway? I think (not sure really) that ive only had a few of those, which I lost my vision, on the worst one I luckily slipped off the chair like a wet noodle onto carpet. My son told me this, although I swore I went down hands first and crawled, which he said didnt happen that way.
It is strange when our memory of it is so different than what others say happened. I swore I didnt lose a second of that one, but apparently it started with me shaking my hand and throwing my glasses across the room
And I was thinking after, why the heck would I throw my glasses?
Anyhow, hope your seizures are under control, and that you were able to contact someone for help, not sure I would have been as patient, that must be really scarey having your leg lock up that way.
Bless you, and feel better
JLynn

[brain]

JLYNN:

I've had T/C's before and I loose consciousness, I normally
suffer from complex partial's and absence's, I do not encounter with simple partial's
very much, so it's isolated. With simple partial's, they only affect only
one side of my body and I'm alert. With complex partial's and absence's,
I also loose conscious or "I'm out of it" - having no memory.
So it's frustrating.

But you might be right, since I was home alone, it's possible
that I could have had a generalization and not knowing it,
and having come out of it and only finding myself into another
simple partial-attack again. That's a possibility. I can only remember what
I know, but being home alone.

You just made me realize something - I have no idea what
time this all happened and how long it all lasted either, until
I was out of it. I do vaguely remember being online, but I
could be wrong, but it was only brief, I think, for all of it is
just a blur - I have no idea what I did on that day, but I can
remember all things after that. But then again I could be wrong
about the day/date and all. I just do not remember.