been off keppra

[crazychick]

I have been off keppra a month now. I am having memory less and cant remeber what i done the day before. It has inly just started this week. I can remember birthdays and importany days n things likw that. Just cant for some.reason no matter how hard i try remember what i done the night befire. Its starting to worry me. I can be sitting or standing somewhere it feels like i am moving. Has anyone else suffered this? am worried that keppra has knaked me up. Any replies will be appreciated.

[Malla]

Hello, have you also had more seizure activity since you've been off the meds? I know that heightened seizure activity can cause temporary memory loss in my case tho.... hugs Malla

[crazychick]

i havent had a seizure since been off them. its now been a month and a week. my head feels so heavy and im tired all the time.

[Dignan]

I'm currently on Keppra, and can't speak to what it might be like after you come off of it, but I can say that when I came off Dilantin after many years, it took me a good 6 to 8 months to feel right. During that time, I had dizziness, general fatigue, and didn't feel mentally sharp. Also, I did not have any seizures during this period, either.

So, it may just take a few months to adjust. I am planning on getting of Keppra myself and going back to Dilantin, but I've decided to wait till after the holidays to make the switch for the specific reason of not having the after effects bother me during the holiday season.

[crazychick]

I wanna stay off keppra altigether i just feel it has messd me up. Ghe neurologist just put me on then without even diagnosin me. I stil havent been diagnosed. I hooe i gwt sorted and you to.

[mandie8]

I was on carbatrol, and the dr. wanted me off. He put me on keppra. That was the worst drug (for me) that I have ever been on. I forgot so much. I work in a meat dept. and have for 20 years. I could not remember what a pork chop was. Or a cube steak. I was having to ask the butchers on simple cuts of meat. I would have the coffee pot, and have to ask my son what am I suppose to do with this. My husband and I went to buy dinner, and I got mad at him for trying to find what we went there to get. Called him stupid, and went (angrily) flying out of the door. Came home, started crying that I hated my house and just wanted to die. I was having seizures everyday. I only had one about every 6-8 months before that. When I walked, it felt like I was climbing stair to the point I started walking as if I were, and falling into things. Then I started seeing double. I still had no memory of simple things. I just quit taking it. I could not work like that. I went back to taking the carbatrol, but my seizures are still not under control. I have had to take a medical leave of absence from work. I will never go back to this medication, even though I do hear that it does good for some others. Best of luck to you

[Malla]

Three times i remember feeling like this. First time when i was on zoloft... second was right before i started developing seizures. Third time after series of cluster seizures. Hugs Malla

[crazychick]

Omg mandie that dont sound too good. I hate keppra. My memoey is terrible atm someone will say can ya remebee this? n am like no cant remeber n thwy think am joking but am not. N i can relate to that feeling of not wanti.g to be hear cuz ya cant remembwe anythung etc. Malla i hate this. U dont kniw when i felt better been on keppra or off. The only good thing is i have had ni seizures been off keppra.

[crazychick]

Thankx mandie i hope ya get sorted to.

[mandie8]

Me too....glad your seizures have stopped. That is a relief in itself. In the process of the dr. putting me on the keppra, he decided to ween me off of the carbatrol, and when he called in the new rx prescriptions, he had the carbatrol changed to generic. I am hoping this is the problem. I went for blood work yesterday, so we will soon see. Just wish it could all get worked out for eveyone dealing with this condition.

[crazychick]

My neurologist is useless he wont listen to me. His mind was already made up. He took me off my meds cold turkey. I have had loadsa blood tests and evwrything is normal. Yeah it defo is a relief. I just need to get myself back ro nirmalnormal now. Thanx hope u do to.

[LW6279]

You need a new Neurologist if they won't sit down and take notes then it should be next!!! That's is how I feel since I stopped Nuerontin but I tapperd but it didn't help I still got the falling or floaty feeling and DR ( like your in dream) feeling. It has been a year now and it still comes and goes. I am med free and will never go back.... I'm thinking of trying NFB in the near future. I hope you feel better soon.

LW

[crazychick]

whats nfb? im def thinking of getting a new neurologist theres a few people said i need a new one! im sick of it all i just want it sorted so much. thanks lw.

[LW6279]

EEG Neurofeedback - It retrains the brain.


LW

[crazychick]

What is that and how much? av had no seizures since like