Coping With Epilepsy Brian's Legacy
Sponsored Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen



Reply
 
LinkBack Thread Tools
  #1  
Old 12-27-2012, 08:38 PM
New Here
 
Join Date: Dec 2012
Posts: 2
Thanks: 7
Thanked 0 Times in 0 Posts

Can anyone else feel when they have an absence seizure?


Whenever someone has seen me have an absence seizure they say I've "blanked out" or that it looked like the lights were on but no one was home. It seems like most people describe their absence seizures as, basically, brief periods of unconsciousness like mini-black outs. For me though, I can actually feel a physical sensation when they occur. It's not that I black out it's that my mind goes somewhere else than the reality in front of me. I feel a sensation that's similar to that feeling you get when you stand up too quickly and the feeling you get if you're leaning back in your chair and almost fall over but catch yourself. It's like a rushing sensation and where my mind goes is to focus so that I can stop that rushing sensation because if it continues I'll have a seizure. Does anyone else feel something when they have an absence seizure?
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #2  
Old 12-27-2012, 09:13 PM
valeriedl's Avatar
Venerable Voice of CWE
 
Join Date: Feb 2010
Location: Pittsburgh, Pennsylvania
Posts: 2,498
Thanks: 590
Thanked 719 Times in 547 Posts
When I have seizures that I black out during I don't know that I've had them. I'll sometimes get the feelings that you described but I usually don't remember if I did have them because I don't remember things that happened before and during the seizure.

Really the only way that I know that I may have had a seizure when there is no one there to see it happen is the headache that I'll have after it. I'll still have the headaches but now I'm not getting the headaches after every seizure like I used too. So I know I'm having seizures that I didn't know happened.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to valeriedl For This Useful Post:
TomM (12-27-2012)
  #3  
Old 12-27-2012, 09:21 PM
New Here
 
Join Date: Dec 2012
Posts: 2
Thanks: 7
Thanked 0 Times in 0 Posts
Thanks, are you talking about when you have grand mal seizures or absence seizures?
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #4  
Old 12-27-2012, 09:36 PM
valeriedl's Avatar
Venerable Voice of CWE
 
Join Date: Feb 2010
Location: Pittsburgh, Pennsylvania
Posts: 2,498
Thanks: 590
Thanked 719 Times in 547 Posts
I usually only have one grand mal a year and pretty much don't know anything that happens before, during and after the seizure. Also my memory is pretty bad, after about 6 months things start to fade away so I really don't remember if I did get them or not. Those things happen when I have absence seizures.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to valeriedl For This Useful Post:
TomM (12-29-2012)
  #5  
Old 12-27-2012, 10:08 PM
CrunchyFrog's Avatar
CWE Supporter
 
Join Date: May 2011
Location: Australia
Posts: 215
Thanks: 38
Thanked 67 Times in 47 Posts
I'm totally aware when I have a partial seizure, I think my concept of time and actual control of my body is lacking, but I know I'm having a seizure and can feel when one is coming.
__________________
None of the ideas expressed above are actually mine. They are told to me by Luthor and Ferdinand, the five inch tall space aliens who live under my desk. In return for these ideas, I have given them permission to eat any dust bunnies they may find under there.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to CrunchyFrog For This Useful Post:
TomM (12-29-2012)
  #6  
Old 12-28-2012, 01:19 AM
C0urt's Avatar
Venerable Voice of CWE
 
Join Date: Oct 2009
Location: Birmingham, Alabama,
Posts: 2,086
Thanks: 134
Thanked 750 Times in 460 Posts
Send a message via AIM to C0urt Send a message via Yahoo to C0urt
I usually don't know i had one unless some tells me i had one
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to C0urt For This Useful Post:
TomM (12-29-2012)
  #7  
Old 12-28-2012, 05:00 AM
Crash's Avatar
CWE Supporter/E Hater 2
 
Join Date: Mar 2011
Location: Scotland
Posts: 1,455
Thanks: 1,331
Thanked 1,009 Times in 614 Posts
Yes Tom,
I can relate to what your saying,someone will say your having an absence seizure but i will be like,i know.I can feel the sensation in my head more vividly than an aura before a tonic.Although im lucky in that with my absence seizures,if im at home i just go to bed and i can sleep them off.

ps-Welcome to CWE.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to Crash For This Useful Post:
TomM (12-29-2012)
  #8  
Old 12-29-2012, 06:29 PM
SoonToBeMommy's Avatar
Esteemed Pillar of the Community
 
Join Date: Mar 2012
Location: Iowa
Posts: 545
Thanks: 11
Thanked 52 Times in 40 Posts
I get a weird feeling. Hard to explain, but kinda like a spinning feeling and then I just stare off while I have these feeling I can still do somethings with my hands. Like repetitive actions.
__________________
"Everything that is or was began with a dream." -Lavagirl

"You're not a bad person, you're a very good person that bad things have happened to." -Sirius Black

My goal in life is to be happy and have fun and watch my baby girl grow!
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following 2 Users Say Thank You to SoonToBeMommy For This Useful Post:
petero (12-30-2012), TomM (12-30-2012)
  #9  
Old 12-29-2012, 07:35 PM
valeriedl's Avatar
Venerable Voice of CWE
 
Join Date: Feb 2010
Location: Pittsburgh, Pennsylvania
Posts: 2,498
Thanks: 590
Thanked 719 Times in 547 Posts
Originally Posted by Crash View Post:
Yes Tom,
I can relate to what your saying,someone will say your having an absence seizure but i will be like,i know.I can feel the sensation in my head more vividly than an aura before a tonic.Although im lucky in that with my absence seizures,if im at home i just go to bed and i can sleep them off.

ps-Welcome to CWE.
My husband can usually tell when I'm going to have a seizure. He says "I get this look", not really sure what he means but 9 times out of 10 he's right.

Also when he tells me that I'm going to have a seizure then I'll realize that I'm having those pre-seizure feelings. I didn't realize that I was having them alot of times though until he told me that I might be having a seizure coming on.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to valeriedl For This Useful Post:
TomM (12-30-2012)
  #10  
Old 12-30-2012, 11:39 AM
petero's Avatar
Venerable Voice of CWE
 
Join Date: Jun 2010
Location: Dallas, Texas
Posts: 1,588
Thanks: 516
Thanked 374 Times in 283 Posts
I don't know. I have heard you can't tell when you have a seizure, and I can't tell (that I know of) when I have a tonic-clonic, until I wake up...
but.. since I was diagnosed I've tried to learn about different seizure types and try to pay attention to my actions, and I've had a similar sensation, and I've had it a long time, longer than being diagnosed...
I might describe it like a sensation of being asleep, a light sleep where I'm able to tell someone is trying to gently wake me up, or my alarm volume is low, but I'm not pulled up out of sleep completely...
and thinking of this type of consciousness as a well, a vertical tunnel, where the ground is consciousness and the bottom of the well is sleep, coming up out of the tunnel from below is the sensation like waking ... there is a similar "tunnel" sensation I experience but it's like lowering down into the tunnel-consciousness (instead of coming up out of it)
but this sensation is NOT like falling asleep - it's more like exchanging consciousness-states
being tugged out of sleep has a dread associated with it - my body/mind not wanting to leave the comfort of sleep
the "absence" periods I associate also have a dread associated with them, and this feels like a same type of sleep-dread
but it's like I know where I WAS when dipping into the absence state - during the sleep state, I don't know where I WAS so much. There may be some grasp that I was asleep, and "let me go back to sleep" eventually, but my mind comes from an uncertain state when I'm waking from sleep.
When I dip into the absence state I know where I "WAS" and continue to maintain this level of awareness, but I know I'm not "there" anymore.
The other thing is that often this absence-dip sensation feels GOOD.
It's not like the goosebump ASMR type of thing (a term I just recently learned) which I associate with a different sensation.

But during my absence periods I have an awareness, a sensation of HERE vs. WAS, a dread to pull up out of the sensation...
another thing is, I've tried to focus on an ability to control my mind-state when I'm in my absence period, to be able to pull myself up and out on my own free will, and... I'm not certain about that. Sometimes it feels like I CAN have control over it, for one, by defining and overcoming that dread feeling, but also I'm not really sure if I'm not controlling it, but just fleshing out my level of awareness during the periods, which then just resolve themselves as I'm trying to pay attention to my level of capacity.

for me it's hard to say
if they are absence seizures then I have seizures a lot more often than I thought - and have had them much longer than my diagnosis - and then maybe due to a few different circumstances (drinking and a few injuries) they evolved into tonic-clonics around 4 years ago, or maybe just due to the course of action for my epilepsy I evolved into having tonic-clonics.
I'm trying to quit blaming myself. Self-blame does no good.

and apparently (thanks to my gf noticing, initially) I have sleep seizures too (and thanks to waking up in pain, brain mush and a wet bed after my last one (I slept alone during that one) - the bed-wetting was a new one for me, although waking up in pain and confusion may have been going on a while, come to think of it - and maybe I over-blamed my alcoholism for a few things that may have been seizure related?)

where's the EEG iPhone app I can use at home?

Last edited by petero; 12-30-2012 at 11:53 AM.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #11  
Old 12-31-2012, 03:46 PM
Getting Comfortable
 
Join Date: Nov 2012
Location: gloucestershire , england.
Posts: 14
Thanks: 8
Thanked 1 Time in 1 Post
Originally Posted by TomM View Post:
Whenever someone has seen me have an absence seizure they say I've "blanked out" or that it looked like the lights were on but no one was home. It seems like most people describe their absence seizures as, basically, brief periods of unconsciousness like mini-black outs. For me though, I can actually feel a physical sensation when they occur. It's not that I black out it's that my mind goes somewhere else than the reality in front of me. I feel a sensation that's similar to that feeling you get when you stand up too quickly and the feeling you get if you're leaning back in your chair and almost fall over but catch yourself. It's like a rushing sensation and where my mind goes is to focus so that I can stop that rushing sensation because if it continues I'll have a seizure. Does anyone else feel something when they have an absence seizure?
yes i can understand as i feel like that too. i dont have mini blackouts either , just look like as u say ' no one is home' . I used to sit down , usually on the floor, until it passed. My parents thought i was having dizzy spells as they didnt know much about epilepsy. Since i got diagnosed and am on lamictal im pleased to say that ive been seizure free for approx 12 years now.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #12  
Old 01-01-2013, 03:22 PM
bandmom's Avatar
Joined the Party
 
Join Date: Aug 2012
Location: Cleveland, Ohio
Posts: 66
Thanks: 17
Thanked 23 Times in 20 Posts
My daughter Anna has had only absence seizures since being on medication, and describes them as feeling like her auras, but "more intense". She is unaware of her surroundings during them, so it is a feeling of blanking-out for 10-15 seconds.

Just spoke with my 65-year-old aunt today (Anna's great-aunt) who says that her husband has been noticing her having 10-15 second staring spells where she does not respond to what he says, or even his hand waving in her face. She says she is not aware of anything at all, but will try to keep track of them from now on. It sounds almost identical to the absence seizures that Anna has. Interesting to wonder now if there is some kind of link, or if a great-aunt is too distantly related (also would be a case of late onset epilepsy, vs. adolescent onset).
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #13  
Old 01-02-2013, 06:05 PM
SoonToBeMommy's Avatar
Esteemed Pillar of the Community
 
Join Date: Mar 2012
Location: Iowa
Posts: 545
Thanks: 11
Thanked 52 Times in 40 Posts
I think it still could be in the family and have to do with Anna having it. It sounds like it would anyway.
__________________
"Everything that is or was began with a dream." -Lavagirl

"You're not a bad person, you're a very good person that bad things have happened to." -Sirius Black

My goal in life is to be happy and have fun and watch my baby girl grow!
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #14  
Old 01-04-2013, 11:34 AM
C0nn0rCh0sen's Avatar
Joined the Party
 
Join Date: Aug 2009
Location: Minnesota
Posts: 40
Thanks: 12
Thanked 3 Times in 2 Posts
I feel a similar sensation. I suddenly think im somewhere im not or talking to someone im not etc and so i might be having a normal conversation with a friend about football and next thing i think that im in the middle of a shop buying chocolate. so i start trying to find money or something like that. lol.
it can be embarassing.
other times i just shut off for a few seconds.
And thats only the absence seizures..
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #15  
Old 01-04-2013, 12:14 PM
CBernieBlack's Avatar
CWE Supporter
 
Join Date: Dec 2012
Location: Portland Oregon, United States of America
Posts: 94
Thanks: 109
Thanked 32 Times in 27 Posts
Send a message via Skype™ to CBernieBlack
The aura I get, if I get one, is kind of a trip. The sound in the area goes underwater and the horizon starts to tip off level. I then get the feeling like I've been here before and I start having some recall of nightmares. Things I see, like trees or buildings, turn into objects or people I feel I know from nightmares or dreams. A huge rush of fear washes over me as I continue to lose the horizon. Breathing gets kinda short and I can feel a tense muscle contraction over my entire body. When I come out of it, I feel as though I've been sleeping heavily and cannot remember things for a short period of time.

The sad thing is I'm still trying to find a trigger so I can have some sense of control over these things. My frequency is 1 or 2 every 3-4 years. Just enough to keep me from driving.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #16  
Old 01-04-2013, 01:10 PM
MaeDae's Avatar
Esteemed Pillar of the Community
 
Join Date: Jan 2012
Posts: 896
Thanks: 981
Thanked 659 Times in 398 Posts
good questions, because I dont know either. A co worker said, I stare off and look like a zombie. I think, when having a simple partial, i hear all, see all, but cant respond, wanting to, its like the opposite of sleep apnea, instead im wide awake....hmmmm, new term: "Awake Apnea"?
__________________
I can't wait to go to sleep at night just to escape the nightmare.

(I'm back!)
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #17  
Old 01-04-2013, 01:18 PM
MaeDae's Avatar
Esteemed Pillar of the Community
 
Join Date: Jan 2012
Posts: 896
Thanks: 981
Thanked 659 Times in 398 Posts
omg, think somthin is happen to me now,
just was 6 feet under, feeling like had the universe on my shoulders
tears runnin down my face, angry and sad
now, feeling, heavy, limbs, mainly arms and wrist
and lethargic, taking big breaths
but emotionally, happy???

oh chit!

nervous, anxious

abotu a minute, hmmm
maybe anxiety?

wow,

been seeing colors all day, (red rectangles and white circles).

left arm trippin
gonna hit submit,be back later
__________________
I can't wait to go to sleep at night just to escape the nightmare.

(I'm back!)
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #18  
Old 01-04-2013, 01:35 PM
CBernieBlack's Avatar
CWE Supporter
 
Join Date: Dec 2012
Location: Portland Oregon, United States of America
Posts: 94
Thanks: 109
Thanked 32 Times in 27 Posts
Send a message via Skype™ to CBernieBlack
Oh Snap Maryltyme! I hope you are okay.
That sounds like the beginning of how I feel during one. Lots of emotion and huge amounts of pressure.
Take the afternoon off. Rest. Be good to yourself.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to CBernieBlack For This Useful Post:
MaeDae (01-04-2013)
  #19  
Old 01-04-2013, 03:19 PM
MaeDae's Avatar
Esteemed Pillar of the Community
 
Join Date: Jan 2012
Posts: 896
Thanks: 981
Thanked 659 Times in 398 Posts
dont know how long it lasted, it seemed like a very long time. I only took half medicine for last 2 days, could be problem? maybe just nerves, i dont know. I feel better now, tired as all you know what. feels like ive been working in the hot sun all day. i dont know, not sure it was a little different than anything ive ever experience before, happid really fast, i mean, boom, bam it was there, made stomach flip you know. nerves, tention, i was a little up set to start, perhaps thats what it was
__________________
I can't wait to go to sleep at night just to escape the nightmare.

(I'm back!)
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #20  
Old 01-06-2013, 07:10 PM
Tralee A's Avatar
Joined the Party
 
Join Date: Jun 2008
Location: mid north coast Australia
Posts: 82
Thanks: 8
Thanked 12 Times in 11 Posts
Send a message via MSN to Tralee A
I have absence/complex seizures. Mine can last up to 90 sec- 2 min. If I'm doing something (walking) I keep walking but then "come to" and think "where as I going? How did i get here?" At times I manage to slur out to mum, dad, or my brother that I'm having one and they make sure I dont wander or they direct/guide me to a bed (I want to sleep after I've had one). I dont get any warning. I get a cold feeling in my stomache/chest and then I "vague out"...and freak onlookers out, who dont know what I'm doing
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

Tags
absence seizures

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
I had an absence seizure today, I think! alice123 The Kitchen 11 12-11-2012 12:42 PM
Anyone else feel this before a seizure? Skyler The Foyer 3 10-11-2012 06:56 AM
Absence Seizure Questions mymanuelita The Foyer 3 02-29-2012 08:26 AM
Absence Seizure question Rownen The Nursery 7 11-26-2011 11:47 AM
Daughter Diagnose with Absence Seizure jims77 The Nursery 8 06-09-2010 12:15 PM


All times are GMT -5. The time now is 04:13 PM.


Powered by vBulletin® - Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.