![]() | ![]() 10% off neurofeedback training for CWE members - Santa Monica and Torrance, CA Neurofeedback Partner - Free Advertisement |
|
#1
| ||||
| ||||
Can Sun Screen prevent seizures triggured from hot weather? |
|
#2
| ||||
| ||||
| I don't think sun screen can prevent seizures. I know it can't prevent seizures. |
|
#3
| |||
| |||
| Actually the answer is YES and NO and it all depends on your complexion. However, I had to look all over in my old bookmark section in AOL for this one and I found it: Eastern PA Newsletter - Epilepsy & Sunscreen & Medications And in here on page 2 is of special interest: Quote :
|
|
#4
| ||||
| ||||
|
|
#5
| |||
| |||
| |
|
#6
| ||||
| ||||
Hmmm 26 years of Dilantin and I don't ever remember hearing that before. Learn something new everyday. Luckily, I have not had much trouble with sunburns either. I don't tan like I did as a kid, but I don't live at the swimming pool all summer either. |
|
#7
| |||
| |||
|
|
Hi Brainy, Michelle P.S. I'll email you later today! Miss JAW JA! O.k. I don't sound quite like that! : )) |

the thread - 
|
#8
| |||
| |||
Special Note: I should note that ZONEGRAN / ZONISAMIDE should be on the list because it is a Sulfa drug. But it's not noted on the list and as its implied, it's only a 'partial listing'. |
|
#9
| ||||
| ||||
| I'm on Phenobarbital, and have been since I was 13. I did not realize this.
__________________ "Watch your words, for they become actions. Watch your actions, for they become habits. Watch your habits, for they become character. Watch your character, for it will become your destiny." Epilepsy 101 |
|
#10
| ||||
| ||||
| Forward2007 Your seizures MAY NOT be from the sunscreen but from the anti-epileptic drugs you're on, combined with your perspiration from the HEAT. Recently (last summer) I had my semi-annual appt with my neorologist and I mentioned that this extreme heat that we've been having recently is causing me to perspire more than usual and have more auras and post ictal feelings. I found his response very interesting. He said that because of all the very hot weather we've been having recently and all the perspiation, it can have a negative effect on your meds and cause you to act like you're drunk because you lose so much of your medication though your perspiration (I sweat ALOT) bringing your blood syrum level down. If my medication level were to be increased, the meds could go toxic in my system causing a whole new set of problems. also increased because I also take meds for ulcerative colitis. Before he changes any of my meds he ordered a special type of blood test that most labs won't do because it's so expensive, "Blood Syrum Unbound Fraction" to see how much of my medication is being lost through perspiration. I'm not totally sure but I think he explained that it shows how much of the medication is actually in the blood and how much is being stored, that's the "unbound fraction". It's a very rare type of test and the tech. that took my blood has never seen this done before. In my 26 yrs. with epilepsy, I've never heard of this before and find it quite interesting. I always knew that you lost some of your medication though perspiration, but not that much, (maybe it's because I perspire more than most people). I'll keep you posted as to the results. Randy diagnosed with epilepsy and Ulcerative Colitis in 1979 - current meds are: 275mg dilantin/day 120mg pheonobarb/day 3,000mg Mesasol/day
__________________ Diagnosed with epilepsy and ulcerative colitis in 1979, Been on meds ever since. 275mg-dilantin/day 120mg-pheonobarb/day 3,000mg-Mesasol/day |
|
#11
| ||||
| ||||
| Actually I haven't been using sun screen all the time. In fact the few times that I did have seizures in hot weather the last few years I don't think I used sun screen at all. But I am aware that my meds make me more sensitive to the sun. That's why I want to call one of my Neurologists and possibly speed up getting off of Tegretol XR. I do know what you mean by feeling "drunk" when it gets hot out though. Keep us posted on what they say about the test results. Last edited by forward2007; 05-22-2008 at 05:33 PM. |
|
#12
| |||
| |||
(I put the emphasis in bold on your quote) As soon as I can find it, I'll post it in here. I do know from reading the forums elsewhere from individuals who perspired easily naturally or a result from medication(s); who experienced the 'drunkness state, confusion, or heat exhaustation'. One posted the link to the article and I snatched it. I don't know how I lost it. Unfortunately, I don't perspire much, and I often have to pour water on me to cool myself down. As for me, I never had to use sunscreen in my life! I do get and I don't get sunburned, and yet my label on the bottle said (in the old days) "Stay Out Of Direct Sunlight" (Dilantin / Phenytoin). It had no effect on me at all as with the other meds I take. Even if I wasn't on meds, it took me forever to get a blasted tan! I'm medium complexion, and when I finally get a tan, it's natural. That's why some images of me (photos) reveals me as very dark, whereas some people believe it's 'altered' through some photo image program when in fact is not. I have oily skin; and my adoption record does indicate (non-official) of Jewish Heritage and American Indian, although there's more American Indian manifested in me (bone structure, etc) - than the Jewish Heritage. However the oddity is - none of them have blonde (blond for male) hair or blue eyes, so where did that come from? Does this make me an 'albino'? ![]() Oh wait - Albino would mean I would have PINK eyes! |
|
#13
| |||
| |||
| I thought maybe it has also to do with us being more sensitive to dehydration? I mean most of us react on fever, period, alchol and stress. So why not dehydration? I noticed that sense i started going to israel that even thou that i mostly feel better in this hot weather i also easier get drop attacks during the really hot days. So i resolved it with drinking huge amounts of water just to be on the safe side! and its help more or less. Thats just a thought anyway |
|
#14
| ||||
| ||||
| Mark Henderson, Science Correspondent The Sunday Times (London) Quote :
Quote :
Search sunscreen and he has a host of articles against the use of sunscreens Being that you would reduce the amount of Vitamin D that your body receives, and Vit D is decreased with many of the anti seizure meds it seems that a limited amount of sunshine is needed. One needs to be careful I am sure as to the time of day. Neene - have you considered that your electrolytes are out of balance when you are dehydrated? Low electrolytes...
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
|
#15
| |||
| |||
| I Feel so "ignorant" when im reading stuff here, i have not heard of half the things u talk about! My doctor never told me about any of this, not that iv seen my doctor more then 10 min a year for the last 5 years, there is a lot of patients so they dont have time really for longer appointments. Maybe with my new doc it will be better. I have read up a little bit on stuff before but thats mostly in books my mum bought when u got it. Just like SUDP i never ever heard of it! And when i asked my parents about now they said that they knew about it but they did not wanne scare me! Im starting to wonder what more my parents have not told me to protect me! |
|
#16
| ||||
| ||||
| Our doctor doesn't tell us either. What I have learned, I have found it through the University of Internet Research. One just needs to be careful as to what is taken as truth. I was told a lot of things by doctors that turned out to be false. It is turning over every stone Nenne, and knowing when you have found a gem. Intuition helps quite a bit for me. I think women have a higher amount of that then men, but I can't say that for sure.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
|
#17
| |||
| |||
| You are right i guess i need to sit down and really start to read trough things, i mean the only reason now why i started searching for a web-page about EP was the VNS, i wanted to read about real people that had it, not just those glossy leaflets i got. The leaflet was a bit to american for me I think i was wrong |
|
#18
| ||||
| ||||
| I know it can be confusing at times, but just the thought that there are alternatives to brain surgery must be a bit of a relief. To know that a veterinarian can eliminate seizures in his animals just from diet alone, was an incredible eye opener to me.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
|
#19
| |||
| |||
| Yeah its good, im not keen on the tough of having somebody messing about in my head |
|
#20
| ||||
| ||||
![]() check out the nutritional ideas here: http://www.coping-with-epilepsy.com/...mic-index-diet http://www.atkinsforseizures.com/ Can Sun Screen prevent seizures triggured from hot weather?
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
| Thread Tools | |
| Display Modes | |
| |
| | ||||
| Thread | Thread Starter | Forum | Replies | Last Post |
| nocturnal seizures, neurofeedback, seizures | Zoe | The Kitchen | 47 | 08-04-2009 05:58 AM |
| Does anyone take any extra precautions to prevent seizures during hot weather? | forward2007 | The Kitchen | 13 | 05-26-2008 10:52 PM |
| Weather | hawke86 | The Lounge | 2 | 05-17-2008 04:39 PM |
| hot weather | theresa | The Kitchen | 10 | 03-31-2007 10:46 PM |