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#21
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Hi LynnW
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#22
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| Laurie, I suffered the first 50 years of my life with DID(old term multiple personalities). It took six very intensive years of therapy to put me back together again. What is interesting to me is that there was a main "part" of me that had seizures, and 2 other main parts that did not. Depending on which part was presenting during my therapy sessions, I would have seizures during that hour. I can really relate to what you're saying about dysfunctional families since that's what led to my DID to begin with. Now that I'm nicely put back together again, I have seizures frequently. From several a day to several a month, all different kinds. I understand the need to write it all out. I did that for the 6 years of therapy. Now, I no longer write at all. Things are truly settled in the past. Now if only the seizures would be. Although, as I think about it, the research I've done indicates that many times seizures go along with DID. Last edited by Molly97; 05-25-2008 at 05:48 AM. |
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#23
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| If i feel like im having a sezure i just think about happy things, sometimes it works sometimes not, but i know for a fact that the second i get frightened and stressed about the fit, i cant stop it. If i instead thing about kittens for exampel and focus on remembering how soft and cuddly they are i relax and the fit either goes away or at least gets better. Even thou i still cry after it and feel lousy but i guess that a normal reaction. So im just advising everybody to think about what they like the most, Ice-cream, kittens, music whatever and really really focus on those thoughts and maybe u will forget that ur scared and the fit might be slightly easier! |
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#24
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#25
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| I went through a period where I was becoming very angry at the onset of an aura. Angry at the E, not anyone around me. This actually "seemed" like it fought off the auras, but that may have simply been my perception. It did worry me though as I feared I might lash out at someone during or after a seizure. The ideas above of certain thoughts being triggers sounds VERY logical based on the area of the brain triggering the seizure and the focal area of different types of emotions and thoughts. Though I despise my E, what I am learning about the amazing functions of the brain is really interesting to me. I am one of those nuts for the history channel, discovery channel, national geographic, etc... Learning for the just the sake of learning is one of my favorite things. |
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#26
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| I was bullied in Junior High, so of course i was not very happy in school and some of the lessons was of course worse then others, so i learnt how to "trigger" my own fits, Of course its not very smart but when ur 13-14 u dont really think about that, but because of this i also learnt how to make them go away when i felt that one was on the way. Today i dont think i could trigger one to come, was to long ago i wanted to have one I was wondering about the auras, i get a pre warning also but it does not include any colors, i just feel really hot and nauseous. Is that an aura? If i let go far enough yeah i see spots but that just before i go into the fog |
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#27
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| Sounds like an aura to me. How great that you have learned how to stop them. I wish Rebecca could. She can remember anything leading up to the event.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#28
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| Hey, How long has Rebecca had E? I had mine sense i 7 and it took my 6-7 years before i learn to recognize the signs! Even thou i was just a kid before so im guessing she will learn it much quicker then what i did. |
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#29
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| Rebecca had her first tonic clonic at the age of 14 - June of 2006 She is now 16. Hers are very recognizable. On the ground convulsions. Problem is, she loses her memory. She can blank out the whole morning prior to the event. Not fun when they happen at school. So I have to get my information from those around her and try to fit the pieces of the puzzle together. We then talk about what might be a pre warning aura, and how she might take that info an use it to her advantage the next time.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#30
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| The signs/symptoms of auras can vary widely. I have heard of every sense of the body being involved, plus some who have out of body experiences. My own are very visual with weird depth perception. I had very light ones a couple of weeks ago and the shape of my office was different than normal. Didn't get much work done that day. |
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#31
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| Yeah i thought so to but everybody seem to be talking about the colors so i got a bit confused, i did hear about somebody that felt the smell of oranges before he had his fit! I cant remember where iv heard it but that has to be a bit irritating! |
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#32
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| I've had auditory auras(a whirring sound), nausea, a strange surreal look to the environment. I've never seen colors. Something I don't know if it's an aura-I just feel "off" and a sense of impending doom. I think I read somewhere that that is an aura too. |
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#33
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Hey Molly97
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#34
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| Understanding Strange Experiences from Epilepsy: A New Approach Quote :
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#35
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| That's a good and interested question. Can thoughts trigger a seizure? I think some thoughts can.
__________________ Have a good day. Hawke |
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#36
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Psychomotor voices... RobinN, you state "lie in between the boarderline between epilepsy and mental illness...now being called Temporal Lobe Limbic Syndrome of TLS. I have been reading about how Epilepsy is linked to mental disorders such as Bi-Polar and Dissociative Conditions, both of which I have. The latter, I refuse to call a disorder because it is really a creative coping mechanizim self designed from going insane. But, here, with this condition, I experience inner lighthearted voices. Innocuous. Since, my grand mal seizure and was diagnosed with temporal lobe epilepsy I hear occasional voices, though this time I]outside[/I] myself. They only come from a particular area of a room and while only a few syllables are discerned they are very loud and incomprehesible but hell bent on terrifiying me. Now, I've become accustomed to them knowing they are temporal lobe epilepsy systematic. Epilepsy is complexly linked to forms of mental illness. I've read articles relating to this kind or "overlaping" and will continue to be a student with many questions. I've yet to become accustomed to the didatic jargon but will get it down so I can be more expertly informed. To John Q Public, Epilepsy is not just a matter of falling, convulsing, and foaming at the mouth! Many well known and creative people in history have been known to have Epilepsy and it branches out so. I'll be wearing my "Coping with Epilepsy" T-shirt out soon so people can see that a classy-like lady is not a monster or witch to be burned at the stake, like they used to do! Always - Laurie ![]() PS Thanks, RobinN. I will be looking up TLS. |
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#37
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| Hey, Where i come from we have this very famous "saint" she is called the Holy Birgitta. She was talking to God and angels and all of that. A couple of years ago when we had in my county the "birgitta year" my doc did some testing on her skull and stuff and i have no idea how she came yup with result but she found out that Holy Birgitta had temporal lobe EP witch of course does explain the visions she had! Funny thing is when i was a kid i visited Jerusalem with my family and when we where in one of churches (i dunno which one thou) i had a vision and the priest actually wrote it up and stuff and it was a big fuss. Of course this si not something i tell people does not seem like a very smart thing to go around talking about Aja i just thought it was a funny story |
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| cbt, neurobehavioral therapy |
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