Changes in life that have helped my seizures decrease

[fezman101]

I can say I have had 2000-3000 complex partial seizures from 2006 to 2015. This is a a brief history of how many seizures I had in 2010. I'm posting 2010 because I don't have my other diaries on me. There were more seizures that year because I didn't recorded all of them e.g the months that are not listed.

Year 2010

Feb -15 complex partials, 1 Tonic Clonic
March -24 complex partials, 4 Simple Partials
April -17 complex partials, 8 Simple Partials
May -19 complex partials, 3 Simple Partials
June -08 complex partials
July -04 complex partials
Aug -01 Tonic Clonic

Introducing lamotrigine greatly decreased my Complex Partials. Last year I averaged about 4 complex partials a month but now having different dosage levels, eight hours of sleep a night and good eating habits e.g healthy meat, vegetables, water.... along with one junk meal a week I have been able to go seizure free for a month.

When I was having a ton of seizures I was taking meds late, skipping meds, eating what ever I wanted and very poor sleeping habits.

I was on 3 epilim tablets, each tablet is 500mg and 2 Lamotrigine tablets, each table is 50mg. Morning and night.

Now I take 2 epilim tablets along with 2 lamotrigine tablets in the morning and 3 epilim tablets in at night along with 1 epilim tablet.

I sure this run will continue as long as I stick to it. All the best to everyone!

Please add what has helped you to reduce your seizures or become seizure free. Thanks

 

[1dayatatime]

Be careful of the lamotrigine. (all meds actually) I take lamictal, at first it was great, major decrease in my sez. after a few years I felt like crap. Sez control was still okay but I realized one day I felt better mentally and physically when I was having several hundred complex partials a day. I talked to my docs. they just kept giving me more meds, I became hyperphotosensitive, doc told me I should've been a vampire. I got to the point I thought about ditching meds all together, I decided to get proactive, I did some research of my own on the meds I was on. I found out I was basically a walking side effect. (sensitive to meds) I'd been hearing about medical marijuana, I remembered pot from high school. I don't need help eating and sleeping, I was already trying to 'put one foot in front of the other' I heard about pot low in thc. I looked into it and found cbd oil/hemp oil. I was skeptical but desperate for an alternative. I started it in Feb. I'm suppose to be taking 200 mg. Lamictal 3x a day and 1750 generic keppra 2x a day. I now take 200 mg lamictal 2x a day and 500 mg generic keppra 2x a day. I was having a couple sez a week sometimes a day. I haven't had any in the last few weeks, my sensitivity to lights have decreased, I actually had lunch in town in doors w/my hubby a few weeks ago, been years since I've been able to do that. Overall I feel like I've got my life back.

 

[Nakamova]

Everyone's experience with meds is different, and often side effects are dose-related. I've been lucky enough to have no major problems with Lamotrigine. I take it for tonic-clonics and have been seizure-free for 6 or 7 years. I'm on a relatively low dose though -- 225mg/day -- which may make it easier on my system.

 

[seizuregirl]

I've been taking Lamotrigine 300mgs/day for a couple of years and the only problems I've had with it is some slight double vision to full double vision from time to time with a headache, although it's a side effect of both my meds so it probably wouldn't be as bad as it is if I were just taking it by itself.

 

[Zolt]

Hey Fez,

For me it was getting on my new med called Gabapentin, it doesn't stop my seizures, but it controls them to the point where i normally only have them in the mornings. In the safety of my home. Before this drug i was having seizures at all times of the day and normally during the worst times of the day. So far out of 29 seizures since i've started on Gabapentine, 3 were outside the morning period. I have more info on this in the about me section.

To me that some pretty good statistics. Best part of it is that it feels like a placibo pill, since i don't have much side effects. Only side effect i've noticed was ones in a blue moon, i would get cramps in my calve. No biggy i can deal with that.

Wish others could try it to see if it works the same for them, so i am here to spread the word.

Cheers,

iano: op: