confusion and keppra

[crazychick]

i am on keppra as many of you will probly already know, but does anyone suffer with confusion and when thinking and to get ya bearings and remembering what day it is does it make you feel sick?

[Wally]

Yup all those things and more. Take it at the same time everyday. Eat well, drink lots of water, minimize stress. It takes a while to adjust to it.

[crazychick]

ive been on them nearly a year now, even with the lowest dose possible its still the same im sickl of it, i wud rather put up wi the seizures than all these stupid side affects like. my neurologist dont seem bothered at all.

[Wally]

My side effects kinda very with those things I already mentioned. They get worse when I am tired. Some folks don't have any side effects. Maybe it's time to try another med or Dr.

[crazychick]

Im seeing my neuroligist on monday. Im goinh to refuse to move until he listens n sorts me out. If he dont im gna demand another neurologist. I have been teying to tell him all this time. They wouldnt even give me an earlier appointment even though i told them it was important.

[MadameJ]

This is my third week on it and had to go to my dr and have them lower the dosage...I. Can handle it better now and we will try to increase it with time. cognitively, i was having issues. When I opened the fridge to choose between oj and milk, I had a hard time knowing the difference. I would forget I was baking, I would run into walls, if I even attempted to have a glass of wine, I was drunk after a sip.

So, yeah!

[MadameJ]

How long have you been on it Wally?

[Wally]

4 1/2 years. I can't believe it's been that long. I had to look it up. I've learned to deal with the side effects. I keep notes on everything. I love my iPhone and iPad. I used to have a hard time keeping my train of thought when having a conversation, but that passed. I make lists and reminders for everything.

[MadameJ]

Wow, that is a longtime to have side effects! I was told they should balance out...Jeez. It has been better since I have been taking 500 mg in am and 750 in pm. Yes, I too keep notes on my iPad. I have Been trying to use the diary app from elipepsy .com but I don't like the meds part of it...it doesn't let me rig it.

If you aren't having seizures than I guess it is worth it, right?

Thanks

[MadameJ]

Btw, your profile picture is freaky. I do say that with the utmost respect

[travel bug]

I've been on Keppra for about four years. At first I had no problems at all, but the last two years or so I've had problems with concentration, multi-tasking, and word finding. Not sure if it's the Keppra or my underlying condition. I sometimes wonder if it's worth it, but when I think about trying to get off it, I chicken out.

[Wally]

I have a hell of a time with names of people I don't know really well. I also have a hard time finding words during conversations. I dunno if it is the Keppra or damage from seizures.
You don't like my pic?

[crazychick]

madame j i cant even handle the lowest dose possible 250mg im seeing my neurologist today, im goimg to make him listren wether he likes it or not. i hate it and all the side affects.

[MadameJ]

Good for you...I am new to the whole “labeled epileptic” and the meds but I do my homework, know my body, and am annoying to my neurologist. It seems he hired a Nurse practitioner to deal with people like me… But I am going to OHSU in Portland to talk to a specialist in just epilepsy.
So, yes, you should talk to your neurologist and tell him your issues. My lower dose seems to be better but you may need to change? Have you tried lamictal? Apparently, it is the cat’s meow! It made my hair fall out and gave me acne, however. I mean, damn, a girl needs to be pretty.
Yes, I like your profile picture! It just reminds me of some whimsical hobbit in a never never land.

[crazychick]

Nah i dnt want one thats gna make my hair fall out. Did your hair grow bacm? i wanna try the hormone tawts as i thibk uts rougjly same rime of month. I would complain about the nurse practitoner. I will let you kniw how i get in today.

[MadameJ]

CrazyChick, I did complain about the NP but...it is better for everyone. I think of it as my own personal assistant that consults with the Dr. I have a direct number and when i have an issue, i get a call back shortly after. But really, I am high maintenance and direct and the keppra influnces that too.

[MadameJ]

Travel bug, That is strange that you would have issues all of the sudden...if it were me, I would try to find out what they could be from. Call your Dr?

[epileric]

Travel bug, That is strange that you would have issues all of the sudden...if it were me, I would try to find out what they could be from. Call your Dr?

Actually some people do suddenly get side-effects from medications they've been on for a long time for no apparent reason.

[MadameJ]

Maybe...but I would need my dr to tell me that! However, I tend to jump the gun, which isnt always good.

[crazychick]

My neurologist just told me the side affects are not keppra related. So why does it say that on the box? he dnt knw what hes doing i dont think.