Bristol's daddy
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Hi everyone,
My Daughther started having TC's at 6 weeks old(she's alomost 8 months now). Generally her seizures are after feedings(but not always), she will fall asleep and when she wakes up will have one. At the beginning she was having 2-3 per day and after her second stay at the hospital she was put on Phenobarbital and has had limited sucsess.
The best we have been able to control was 2-3 seizures per week, and this is after 2 0r 3 secondary drugs have been tried, but no joy. ever since the doctor maxed her dose on the pheno, her seizures have started to pick up in frequency, and even after dropping her dose back, she is back to having 1-2 per day on average.
Question: When we were in the hospital the first time, they drew blood to check vitamin levels and so forth, and wanted to take a urine sample(unsucsessfully might i add) and told us that her levels were fine. Could they have missed a trigger like Calcium, magnesium, hormone levels, etc.?
The nuerologist doesnt seem to be too worried about any of that stuff, and I still have a funny feeling that her seizures could be related to some sort of deficiency.
Tom
My Daughther started having TC's at 6 weeks old(she's alomost 8 months now). Generally her seizures are after feedings(but not always), she will fall asleep and when she wakes up will have one. At the beginning she was having 2-3 per day and after her second stay at the hospital she was put on Phenobarbital and has had limited sucsess.
The best we have been able to control was 2-3 seizures per week, and this is after 2 0r 3 secondary drugs have been tried, but no joy. ever since the doctor maxed her dose on the pheno, her seizures have started to pick up in frequency, and even after dropping her dose back, she is back to having 1-2 per day on average.
Question: When we were in the hospital the first time, they drew blood to check vitamin levels and so forth, and wanted to take a urine sample(unsucsessfully might i add) and told us that her levels were fine. Could they have missed a trigger like Calcium, magnesium, hormone levels, etc.?
The nuerologist doesnt seem to be too worried about any of that stuff, and I still have a funny feeling that her seizures could be related to some sort of deficiency.
Tom