Coping With Epilepsy Mindy Fox, Marriage and Family Therapist
10% off neurofeedback training for CWE members - Santa Monica and Torrance, CA
Neurofeedback Partner - Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen


Reply
 
LinkBack Thread Tools
  #1  
Old 03-22-2008, 02:59 PM
Weaving the Community Fabric
 
Join Date: Aug 2006
Location: England
Posts: 164
Thanks: 3
Thanked 1 Time in 1 Post
Send a message via MSN to cool1984

Brain diary for E!?


hi i'm caroline call me caz i been here for a long time i'm having a few prolims i'm keep any diary for my E but what some adive on what to write i wont to write what need to be put down.

some ideas would be good

thanks
cazzie
__________________
When will life be nice and sweet to us with out epilepsy, i think not for a long time i will be allwyas on meds i been told that by my nureo
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #2  
Old 03-22-2008, 03:11 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,469
Thanks: 61
Thanked 434 Times in 356 Posts
Send a message via Yahoo to RobinN
Hi Caz
What is working for me these days is a calendar that I print out. I print about 6 at a time and staple them together. I have a code, which for my daughter usually means tonic clonic for tonic clonic. I put the time, I put the length of the seizure. I lay a band of green over the event with colored pencil.

For the days she is on her period, I use a red pencil and lay lines over the dates. I write anything that is different during this time in the margins of the calendar.

She uses bio-identical progesterone so I put a dot when she is using it morning and night. It helps me to see if there are days that she forgets to use it.

I write at the bottom of the month what vitamins and minerals she is taking. I make a note of any increases or decreases that occur. On the days that she forgets to take morning or night supplements, I make a good attempt to make note when these were forgotten. There are somenights she falls asleep before she takes them. Occasionally I will wake her,and I think that when she has had good control, nothing we are doing has been forgotten or left out.

I make notes of emotional meltdowns. I note good days, food infractions (since she is on a strict neutritional plan). Of course I am not 100% reliable on making my notes, but it sure does help me to see areas that we might improve.

I hope that helps you to understand how I do it. Ask questions if I wasn't clear.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #3  
Old 03-22-2008, 03:15 PM
Weaving the Community Fabric
 
Join Date: Aug 2006
Location: England
Posts: 164
Thanks: 3
Thanked 1 Time in 1 Post
Send a message via MSN to cool1984
thats very clear i write minly how i feel headc tiyed what time i take meds if i hd to sleep in the day time. if my arms or legs shake. i just feel i'm not getting anoher down.
__________________
When will life be nice and sweet to us with out epilepsy, i think not for a long time i will be allwyas on meds i been told that by my nureo
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #4  
Old 03-22-2008, 03:30 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,469
Thanks: 61
Thanked 434 Times in 356 Posts
Send a message via Yahoo to RobinN
What about diet? Do you consider how this can possibly be contributing to your "events"?
Have you figured out any other triggers?
Do you take any supplements that you might be deficient in?
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #5  
Old 03-22-2008, 04:40 PM
Bernard's Avatar
Your Host
Recent Blog: Oh poop

 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 5,727
Thanks: 155
Thanked 595 Times in 268 Posts
just write down the basic facts as best you can
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback.

Would you like to help support this forum?

We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
not able to post reply to Stacy's Diary Elisa The Library 3 06-06-2005 04:29 PM


All times are GMT -5. The time now is 03:07 AM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.