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#21
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#22
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| I guess I'm just lucky that way to have had a dad that worked in the medical community. When I was really young I had "laughing spells" since my seizures made me laugh, but by Grade 1 I knew the difference between a grand mal & petit mal (now tonic/clonic and partial)
__________________ "It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason |
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#23
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| I don't like the word fit. And I agree it is demeaning I'm not a dog. I have seizures.
__________________ (a)abort (b)fail (c)retry (d)throw computer against wall southern&proud of it. |
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#24
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#25
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| I had my first seizure in over ten days 01.20 this morning- like you Belinda, it was a screaming one - what my doctor calls vocalizations. I'm down to between 2-5 a month since going on Clonazepam at the end of september- before then I was having 70-109 a month so I shouldn't complain.
__________________ ![]() Give a smile and see it come back! The Creative Writing Page http://www.coping-with-epilepsy.com/forums/f44/ Creativity Prompts May 2012 http://www.coping-with-epilepsy.com/...prompts-15963/ |
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#26
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| When I was breaking my neurologist in it took a good 3 visits to get to stop calling my seizures spells, I don't care for that term either I don't have spells either and that was 20 years ago when I broke this guy in. Belinda
__________________ (a)abort (b)fail (c)retry (d)throw computer against wall southern&proud of it. |
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#27
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| I guess I don't like 'episodes'. 'fits'. 'spells' but most of all I don't like not being diagnosed! My doctor said we cannot say you have epilepsy, we are treating the symptoms! And if you mention you have been researching on the internet, she says 'stay away from the internet. She seems to think I'm gullible and get my ideas from the net. I know I have seizures- all nocturnal and up to 109 in one month but since being on Tegretol they came down to 14 a month and since the addition of Clonazepam they have come down to 2 a month. She is weaning me off of Tegretol so my seizures have increased by 2 a month- I'm still on 400mg of tegretol and each month she will take me off of 200mg- I'm fearing being off of tegretol altogether. Let's see what happens! Nick
__________________ ![]() Give a smile and see it come back! The Creative Writing Page http://www.coping-with-epilepsy.com/forums/f44/ Creativity Prompts May 2012 http://www.coping-with-epilepsy.com/...prompts-15963/ |
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#28
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| I had a professor who called my seizures 'epileptic fits' (so did some of the girls I competed with in Irish dance) I don't mind them being called 'epileptic -----' (people with diabetes are said to have 'diabetic comas' ) but 'she had a seizure' is far better than 'she had a fit'. ' Fit' always feels so derogatory...to me 'a fit' is the term most used to describe bad behaviour presented by children; an annoying and obnoxious and completely voluntary behaviour. No one with epilepsy would ever choose to 'throw a fit' and the only person who would/should find a seizure obnoxious would be the person having the seizure.
__________________ "We either make ourselves miserable, or we make ourselves strong. The amount of work is the same.” - Carlos Castaneda “Fire is the test of gold; adversity, of strong men.” - Martha Graham |
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