Coping With Epilepsy Medikidz Comic Book Explains Epilepsy
Sponsored Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen


Reply
 
LinkBack Thread Tools
  #21  
Old 01-26-2012, 12:13 AM
New Here
 
Join Date: Jan 2012
Posts: 5
Thanks: 0
Thanked 1 Time in 1 Post
I totally agree, my mom uses the word fit or she'll tell me "you took a fit," I can't stand that.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #22  
Old 01-26-2012, 12:49 AM
epileric's Avatar
Super Moderator / Spaminator
 
Join Date: Dec 2007
Location: Ottawa, Ontario, Canada
Posts: 3,849
Thanks: 159
Thanked 719 Times in 605 Posts
I guess I'm just lucky that way to have had a dad that worked in the medical community.

When I was really young I had "laughing spells" since my seizures made me laugh, but by Grade 1 I knew the difference between a grand mal & petit mal (now tonic/clonic and partial)
__________________
"It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #23  
Old 01-26-2012, 04:27 AM
Belinda1961's Avatar
Joined the Party
 
Join Date: Jan 2012
Location: Atlanta,GA
Posts: 99
Thanks: 0
Thanked 39 Times in 21 Posts
I don't like the word fit. And I agree it is demeaning I'm not a dog. I have seizures.
__________________
(a)abort (b)fail (c)retry (d)throw computer against wall

southern&proud of it.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #24  
Old 01-26-2012, 04:34 AM
Belinda1961's Avatar
Joined the Party
 
Join Date: Jan 2012
Location: Atlanta,GA
Posts: 99
Thanks: 0
Thanked 39 Times in 21 Posts

Wink Had my first seizure in 4 1/2 months this morning.


I had a nocturnal seizure this morning, what I call one of my screaming seizures.
I knew it wouldn't last being seizure free but it was nice while it lasted.
I seriously doubt coming off the Diamox had anything to do with it.I was once told by neurologist that my seizures would never stop and unfortunately it looks like it was correct.
It's just depressing to have another one after so long and I know I shouldn't have gotten my hopes up and I did.
__________________
(a)abort (b)fail (c)retry (d)throw computer against wall

southern&proud of it.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #25  
Old 01-26-2012, 06:38 AM
nicholasscott21's Avatar
WE AS ONE
 
Join Date: Oct 2011
Location: emsworth, hampshire, uk
Posts: 840
Thanks: 572
Thanked 389 Times in 243 Posts
I had my first seizure in over ten days 01.20 this morning- like you
Belinda, it was a screaming one - what my doctor calls vocalizations. I'm down to between 2-5 a month since going on Clonazepam at the end of september- before then I was having 70-109 a month so I shouldn't complain.

__________________

Give a smile
and see it come back!


The Creative Writing Page
http://www.coping-with-epilepsy.com/forums/f44/
Creativity Prompts May 2012
http://www.coping-with-epilepsy.com/...prompts-15963/
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #26  
Old 01-26-2012, 07:27 AM
Belinda1961's Avatar
Joined the Party
 
Join Date: Jan 2012
Location: Atlanta,GA
Posts: 99
Thanks: 0
Thanked 39 Times in 21 Posts
When I was breaking my neurologist in it took a good 3 visits to get to stop calling my seizures spells, I don't care for that term either I don't have spells either and that was 20 years ago when I broke this guy in.
Belinda
__________________
(a)abort (b)fail (c)retry (d)throw computer against wall

southern&proud of it.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #27  
Old 01-26-2012, 07:41 AM
nicholasscott21's Avatar
WE AS ONE
 
Join Date: Oct 2011
Location: emsworth, hampshire, uk
Posts: 840
Thanks: 572
Thanked 389 Times in 243 Posts
I guess I don't like 'episodes'. 'fits'. 'spells' but most of all I don't like not being diagnosed!
My doctor said we cannot say you have epilepsy, we are treating the symptoms!

And if you mention you have been researching on the internet, she says 'stay away from the internet. She seems to think I'm gullible and get my ideas from the net.

I know I have seizures- all nocturnal and up to 109 in one month but since being on Tegretol they came down to 14 a month and since the addition of Clonazepam they have come down to 2 a month. She is weaning me off of Tegretol so my seizures have increased by 2 a month- I'm still on 400mg of tegretol and each month she will take me off of 200mg- I'm fearing being off of tegretol altogether. Let's see what happens!


Nick
__________________

Give a smile
and see it come back!


The Creative Writing Page
http://www.coping-with-epilepsy.com/forums/f44/
Creativity Prompts May 2012
http://www.coping-with-epilepsy.com/...prompts-15963/
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #28  
Old 01-26-2012, 08:13 AM
seizurrific's Avatar
Weaving the Community Fabric
 
Join Date: Sep 2011
Posts: 272
Thanks: 182
Thanked 145 Times in 75 Posts
I had a professor who called my seizures 'epileptic fits' (so did some of the girls I competed with in Irish dance) I don't mind them being called 'epileptic -----' (people with diabetes are said to have 'diabetic comas' ) but 'she had a seizure' is far better than 'she had a fit'. '

Fit' always feels so derogatory...to me 'a fit' is the term most used to describe bad behaviour presented by children; an annoying and obnoxious and completely voluntary behaviour.
No one with epilepsy would ever choose to 'throw a fit' and the only person who would/should find a seizure obnoxious would be the person having the seizure.
__________________
"We either make ourselves miserable, or we make ourselves strong. The amount of work is the same.”
- Carlos Castaneda

“Fire is the test of gold; adversity, of strong men.”
- Martha Graham
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
3 Word Story CrunchyFrog Brain's Games 772 Yesterday 09:31 AM
Word Train brain Brain's Games 327 03-24-2012 02:12 PM
Word Disassociation nicholasscott21 Brain's Games 327 02-15-2012 06:08 AM
Epilepsy the word Aicila The Kitchen 6 11-08-2011 09:26 AM


All times are GMT -5. The time now is 11:50 AM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.