reuben12
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Hey Guys,
I was just hoping for some advice on my upcoming EEG. I've had a couple of the little half hour or hour ones (no seizures during), but never anything bigger. Generally I just have simple partials, and I'm in a situation where my doctor doesn't think it's epilepsy. Anyways, I started back to university and on my second day had a batch (every 5 minutes for 14 hours) of full convulsions. It seemed to have bought me two sets of EEGS. On tuesday I have one just from 8-5, and if that doesn't catch a seizure I have a 10 day telemetry in march.
So, how do these EEG's work. Do I have to tell them when I'm having a seizure and then they try to confirm one? Do they just look it over for the brain activity? I'm just worried that I'll have some lighter simple partials, report it to them, and they won't show up on the system. I hear with these simple partial temporal lobe ones they don't show up a lot of the time. Are they going to be doing a bunch of stuff to try to cause the seizures?
The nurse mentioned that I should try to set myself up for a day of seizures in order to have one happen. Of course I'd rather have a diagnosis this week instead of waiting and having to take 10 days off school in 2 months. I'll do the regular staying up late, drinking coffee, etc. Should I come off the meds as well? My doctor has pulled me off the meds before and generally I'll start seizing like crazy within a day or two. I guess i feel it would be a sure fire way of having them show up. I guess I'm concerned that if nothing shows this time my neuro will just cancel the big one and I'll remain as a case where he believes it's not epilepsy. I'd hate to come off, have it mess me up completely and still have nothing show for it. Currently I have probably 5 seizures a day 3 or 4 days a week. Therefore if it's one of my seizure days it will happen for sure, but if it's not, then I'm out of luck.
Boy this seems like a lot of stress. I feel like I have a lot riding on "passing" this test. Whatever happens I don't want this test to lead to more proof for my doctor that it isn't epilepsy.
Anyways, any advice about the outpatient EEG, or the 10 day telemetry one would be greatly appreciated. For the 10 day am I allowed visitors and stuff, or is it just me in a bed alone for 10 days going crazy...
I was just hoping for some advice on my upcoming EEG. I've had a couple of the little half hour or hour ones (no seizures during), but never anything bigger. Generally I just have simple partials, and I'm in a situation where my doctor doesn't think it's epilepsy. Anyways, I started back to university and on my second day had a batch (every 5 minutes for 14 hours) of full convulsions. It seemed to have bought me two sets of EEGS. On tuesday I have one just from 8-5, and if that doesn't catch a seizure I have a 10 day telemetry in march.
So, how do these EEG's work. Do I have to tell them when I'm having a seizure and then they try to confirm one? Do they just look it over for the brain activity? I'm just worried that I'll have some lighter simple partials, report it to them, and they won't show up on the system. I hear with these simple partial temporal lobe ones they don't show up a lot of the time. Are they going to be doing a bunch of stuff to try to cause the seizures?
The nurse mentioned that I should try to set myself up for a day of seizures in order to have one happen. Of course I'd rather have a diagnosis this week instead of waiting and having to take 10 days off school in 2 months. I'll do the regular staying up late, drinking coffee, etc. Should I come off the meds as well? My doctor has pulled me off the meds before and generally I'll start seizing like crazy within a day or two. I guess i feel it would be a sure fire way of having them show up. I guess I'm concerned that if nothing shows this time my neuro will just cancel the big one and I'll remain as a case where he believes it's not epilepsy. I'd hate to come off, have it mess me up completely and still have nothing show for it. Currently I have probably 5 seizures a day 3 or 4 days a week. Therefore if it's one of my seizure days it will happen for sure, but if it's not, then I'm out of luck.
Boy this seems like a lot of stress. I feel like I have a lot riding on "passing" this test. Whatever happens I don't want this test to lead to more proof for my doctor that it isn't epilepsy.
Anyways, any advice about the outpatient EEG, or the 10 day telemetry one would be greatly appreciated. For the 10 day am I allowed visitors and stuff, or is it just me in a bed alone for 10 days going crazy...