Coping With Epilepsy Medikidz Comic Book Explains Epilepsy
Sponsored Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen


Reply
 
LinkBack Thread Tools
  #21  
Old 05-07-2010, 11:41 AM
New Here
 
Join Date: Apr 2010
Posts: 1
Thanks: 0
Thanked 0 Times in 0 Posts
I have been on 300 mg of Dilantin for 12 years and just had a DEXA scan that came back fine... I am 5'7 and 120 lbs. It seems to have no negative side effects on me.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #22  
Old 05-07-2010, 11:57 AM
RanMan's Avatar
Too Much Experience with Epilepsy
 
Join Date: May 2005
Location: Hamilton, Ontario
Posts: 300
Thanks: 7
Thanked 25 Times in 12 Posts
Zoofemme,
As you said, this is one of those things that the Doctor should tell you about so it can be managed or it can go undetected for years and cause some serious probs.

The same thing with over the counter drugs (for colds and flu) containing antihistimine, if combined with any anti-epileptic drug can be fatal and cause internal bleeding.

IMO ~ these two problems should be addressed by the Doctor and/or the pharmasist.
The FDA should ensure that this info is printed on the packaging.

Randy
__________________
Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.

275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day

Last edited by RanMan; 05-07-2010 at 11:59 AM. Reason: spellind error
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #23  
Old 05-07-2010, 06:43 PM
peachy's Avatar
Joined the Party
 
Join Date: Sep 2009
Location: Utah
Posts: 40
Thanks: 0
Thanked 3 Times in 3 Posts
My doctor told me after taking dilantin for a few months that I should not take it because of bone density loss. She had me switch to vimpat and said that it would not cause any bone density problems. However it is new on the market, dilantin has been around for what, 60 years? How do they know the long term affects of any newer drug??????? Sorry for your diagnosis
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #24  
Old 06-04-2010, 10:53 AM
Endless's Avatar
Super Moderator / Even Keel
 
Join Date: Feb 2010
Location: U.S.
Posts: 4,287
Thanks: 753
Thanked 1,048 Times in 853 Posts
Send a message via AIM to Endless

Dosage of Vitamin D


I'm taking 2500 iu of vitamin D per day. According to a blood test, my levels are still abnormally low, by a pretty big margin. The doctor told me to take another 1000iu/day, but she didn't know how much I was on to begin with.

How much of this stuff do we have to take to get it right? I'm on 1200 mg/day of Trileptal.

How much vitamin D are you on? And at what dosage would it be toxic? Any ideas on why my levels might be so low with such a high level of supplementation (other than the trileptal). I was low even before the trileptal, but not this low.

Last edited by Endless; 06-04-2010 at 11:37 AM.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #25  
Old 06-04-2010, 11:26 AM
Shutterbabe's Avatar
Joined the Party
 
Join Date: Nov 2007
Location: Guanajuato, Mexico and Southwest, USA
Posts: 57
Thanks: 0
Thanked 1 Time in 1 Post
Hi Endless, I take my vitamin D in several forms. One is a weekly dose of D2, 50,000 units ( a prescription) and 2x a day 1 tbsp of Carlson's Fish Oil, which is rich in omega's and D3. I consulted with a fine naturopath and he believed that the D3 was extremely important. I am now down to 900mg of Trileptal and it all seems to be keeping me mostly "seizure free" ( a miracle!) after many years of intense weekly events. The right calcium is the key as well depending on your age. Take care. Wishing you the very best.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to Shutterbabe For This Useful Post:
Endless (06-04-2010)
Reply

Tags
osteoporosis, side effects

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Historical Information on Anticonvulsants / Anti-Epileptic Drugs (AED) and More brain The Library 4 06-08-2008 01:25 PM
Do you have health insurance? lindy The Kitchen 18 11-05-2007 06:33 AM
What Some Women Need To Know About Reproductive Health And Certain Medications brain The Library 0 09-28-2007 07:27 PM
why is health insurance so difficult? vtsammy The Library 3 09-21-2007 02:11 PM
Side effect/Profuse sweating RanMan The Library 3 06-13-2005 02:15 PM


All times are GMT -5. The time now is 12:47 PM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.