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This is about awareness, not fundraising. Although if funds came out of it, that’s ok!
Last night, I kicked around the idea of starting a grass-roots epilepsy advocacy group. (The working name is Epilepsy Awareness Alliance, although it doesn’t matter.)
Nothing to do with the government, but probably with some ties or support info from the EFA.
We could have informal talks, appealing to religious organizations, local schools and colleges, neighbors, friends. Even Facebook pages — for those who have them.
We could tell them our own story or Cheers for Charlie! http://epilepsytalk.com/2011/03/05/cheers-for-charlie/ Give them copies of the article The Stats and Facts of Epilepsy http://epilepsytalk.com/2009/12/14/the-stats-and-facts-of-epilepsy/ and/or Epilepsy Myths Live On… http://epilepsytalk.com/2009/09/08/epilepsy-myths-live-on…/
It’s a matter of letting them know who we are, what epilepsy is and raising their consciousness a bit.
I think you’ll agree, it’s certainly worth a try!!!
Last night, I kicked around the idea of starting a grass-roots epilepsy advocacy group. (The working name is Epilepsy Awareness Alliance, although it doesn’t matter.)
Nothing to do with the government, but probably with some ties or support info from the EFA.
We could have informal talks, appealing to religious organizations, local schools and colleges, neighbors, friends. Even Facebook pages — for those who have them.
We could tell them our own story or Cheers for Charlie! http://epilepsytalk.com/2011/03/05/cheers-for-charlie/ Give them copies of the article The Stats and Facts of Epilepsy http://epilepsytalk.com/2009/12/14/the-stats-and-facts-of-epilepsy/ and/or Epilepsy Myths Live On… http://epilepsytalk.com/2009/09/08/epilepsy-myths-live-on…/
It’s a matter of letting them know who we are, what epilepsy is and raising their consciousness a bit.
I think you’ll agree, it’s certainly worth a try!!!