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#1
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epilepsy on Facebook, and other sites of interesthttp://www.facebook.com/ http://www.facebook.com/s.php?ref=se...q&q=epileptics If you do a search, you can find some groups that may be of interest. my new fav...http://www.facebook.com/group.php?gid=2227704294 (anyone who makes fun of seizures or people should be shot. ![]() http://www.medicalnewstoday.com/articles/70460.php http://www.medicalnewstoday.com/articles/114859.php |
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#2
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I'm on facebook all the time Actually I found my cousin on facebook and we commucate all the time (that's as far as I go on it) |
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#3
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| Coping With Epilepsy is there too.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#4
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__________________ New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads. Would you like to help support this forum? |
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#5
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Thanks I figure, the more places we are seen, the more people will understand and not treat us like freaks. |
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#6
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| I found out about CWE from Facebook. I have posted a few times on one of the groups (Epilepsy Support and Awareness), and "met" a person who emailed me pictures during my video EEG to keep me entertained. She was a source of comfort during that time since she had been there, done that five times. |
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#7
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Just when you think you are safe .... I am already there ... ![]() I've been on facebook too long! If one wanders around and finds me they will also find tons of Epilepsy Groups (yes CWE too ), and plusmany others there as well ... |
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#8
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| I had just changed my status to : "...blessed that she found out about EEG Neurofeedback." I questioned whether or not I wanted that on my page, but decided it was how I felt so I hit POST. I then did a search for Kurt Othmer to see if he has a Facebook page. He does, so I made him a friend. He posted that he just had joined about an hour ago. That is what I call synchronicity. He also put up a link to Coping With Epilepsy.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#9
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| Thread | Thread Starter | Forum | Replies | Last Post |
| bluebrain of any interest? | Shelley | The Library | 6 | 03-16-2008 12:43 PM |