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Old 07-20-2008, 10:28 AM
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epilepsy on Facebook, and other sites of interest


Hi, everybody. Was browsing facebook, and I found some groups if anyone is interested. It is more secure than myspace, but there's no place like home (here).
http://www.facebook.com/
http://www.facebook.com/s.php?ref=se...q&q=epileptics
If you do a search, you can find some groups that may be of interest.
my new fav...http://www.facebook.com/group.php?gid=2227704294
(anyone who makes fun of seizures or people should be shot.
http://www.medicalnewstoday.com/articles/70460.php
http://www.medicalnewstoday.com/articles/114859.php
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Old 02-19-2009, 10:03 PM
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I'm on facebook all the time


Actually I found my cousin on facebook and we commucate all the time (that's as far as I go on it)
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Old 02-20-2009, 12:49 AM
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Coping With Epilepsy is there too.
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Neurofeedback - Rebecca's Story
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Old 02-20-2009, 06:31 AM
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I'm not terribly active on Facebook (no time), but here I am just the same:

CWE Facebook group
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New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

Would you like to help support this forum?
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Old 02-20-2009, 08:06 AM
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Thanks


I figure, the more places we are seen, the more people will understand and not treat us like freaks.
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Old 02-20-2009, 01:22 PM
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I found out about CWE from Facebook.
I have posted a few times on one of the groups (Epilepsy Support and Awareness), and "met" a person who emailed me pictures during my video EEG to keep me entertained. She was a source of comfort during that time since she had been there, done that five times.
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Old 02-21-2009, 04:28 AM
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Just when you think you are safe ....


I am already there ...



I've been on facebook too long!



If one wanders around and finds me
they will also find tons of Epilepsy
Groups (yes CWE too ), and plus
many others there as well ...

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Old 02-21-2009, 07:21 PM
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I had just changed my status to :

"...blessed that she found out about EEG Neurofeedback."

I questioned whether or not I wanted that on my page, but decided it was how I felt so I hit POST. I then did a search for Kurt Othmer to see if he has a Facebook page. He does, so I made him a friend. He posted that he just had joined about an hour ago.
That is what I call synchronicity.

He also put up a link to Coping With Epilepsy.
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Old 02-21-2009, 09:28 PM
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Thumbs up


Awesome Robin!
Keep spreading the word!

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