Epilepsy and Fibromyalgia?

[Morfen]

After a really bad seizure night (6 in about 3 hours) about 6 mos ago, I have started developing symptoms of fibromyalgia. I never felt really good again after that night.

I have been in constant pain, mostly extremities and joints, not sleeping through the night and chronically exhausted.

Has anyone heard of this connection or is it just coincidence?

 

[Meetz1064]

There are

several of us with this same problem, so no, you are not alone. And no, you're not losing your mind either.

Muscle relaxants, diet, lots of stretching plus a few other meds are what I use to deal with it.

 

[sugraddict]

Epilepsy vs. Fibromyalgia

I've been diagnosed with Epilepsy since 2004. I recently was diagnosed with Fibromyalgia.

This is how my Dr. explained Fibromyalgia to me (No other site has explained it this way)...He said that Fibromyalgia pain is the opposite of a seizure. With a seizure, your brain send out the wrong signals to the rest of your body. With Fibromyalgia, your joints & muscles send the wrong signals to your brain...having your brain create a pain response. Interesting right?

I'm guessing there's a connection that hasn't been investigated yet, or is in the process of. I don't see it as a coincidence.

 

[RobinN]

Symptoms of both can be reduced or eliminated by making nutritional changes.

Rebecca has a friend who was quite young when diagnosed with fibromyalgia. It was the first time I had heard of the elimination diet. She controls hers quite well by eliminating gluten, and additives. So much begins in the GI system

 

[gigi]

I have pain in my jaw, neck and shoulders, but none below the shoulders. My pain is triggered by stress, and I also exercise vigorously, also I am 52. I have been on Benzos off and on for 7 years, and the long term affects of those can cause joint and muscle pain. I am trying to ween myself off of those, as long as I am not having seizures. My long term use of Dilantin has done it's dirty work. Like RobinN says our diet can make a huge difference. I have experimented with this. Eat bad feel bad, eat good feel good. It is simple, but so essential to change the way we eat. Knowing what I know now, I am amazed at main stream medicine, and their inability to look at the bigger picture.

 

[Billyboyboo]

Gigi, I'm weaning off Klonopin with Valium.... I want off the Benzos sooo bad, the withdrawal is bad I know, but believe this, 1mg of Klonopin=20mg of Valium... I'm at 36mg of Valium, crossed over at 2mg of Klonopin to 40mg of Valium... as I used the Ashton Method.

About the Fibr, I get checked tomm. I do have some fibro symptoms...
and they are no fun... I also have a friend who has it, she has a bad time with it... and we have the same symptoms.

Billy.

 

[gigi]

my dose of valium has been 5mg per day. I am down to 2mg per day. Anxiety is my biggest problem, and makes it scary to do w/o. Even the smallest dosage seems to cause problems. Hope your journey goes as smooth as possible on getting off those!