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Old 01-17-2012, 09:30 AM
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EPILIM sodium valproate


Thoughts on this drug?

Can any direct me to a site that discusses the newest drugs available for young children?

My son has had to go off another seizure drug ... He barely got to 30mg and had to be taken off of Topamax.. (still titraiting while waiting for another) ..Was making the change to Lamotrigine and he ended up getting the beginning stages of the rash...so, now he is off of that and only on 15mg of Topamax while waiting to try another.....sigh.

Any info would be helpful. Thanks.

Oh, my son is 4 (newly turned by 2 days) and has tonic clonic frontal absence seizures, if that info helps.

Anna
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Old 01-20-2012, 04:01 PM
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Hi Anna,
I am on epilim. I don't know any sites. It makes me exhausted. I want to sleep all the time and I'm only on a low dose! I hope you find something that works.
Amy
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Old 01-20-2012, 05:01 PM
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Oh Anna Im so sorry to hear this! Was the drug Keppra that he was trying? I havnt heard anything about Epilim, but I sure hope some others here can give you some good information on it!
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Caden 6/27/04
Caleb 5/17/05
Connor 11/9/06

Temporal Lobe Epilepsy
Simple Partial Seizures
Keppra XR (3000mgs)
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Old 01-20-2012, 06:01 PM
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Originally Posted by momof3boys View Post:
Oh Anna Im so sorry to hear this! Was the drug Keppra that he was trying? I havnt heard anything about Epilim, but I sure hope some others here can give you some good information on it!
Hey ...This thread is older than the Keppra thread. His neurologist said no to the EPILIM due to my son failing a metabolic panel - drug could cause liver failure. So far so good with the Keppra tho!!!!! My son slept really well last night. I know he is only 4, but its the first time he has slept through the night without tossing, turning, sitting up, screaming, in years....Was nice to see him..rest.
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Old 01-20-2012, 06:24 PM
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Originally Posted by AnnaM View Post:
Hey ...This thread is older than the Keppra thread. His neurologist said no to the EPILIM due to my son failing a metabolic panel - drug could cause liver failure. So far so good with the Keppra tho!!!!! My son slept really well last night. I know he is only 4, but its the first time he has slept through the night without tossing, turning, sitting up, screaming, in years....Was nice to see him..rest.
Thats awesome to hear! Im glad things are going well with the Keppra!
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Caden 6/27/04
Caleb 5/17/05
Connor 11/9/06

Temporal Lobe Epilepsy
Simple Partial Seizures
Keppra XR (3000mgs)
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