Finally! Epi appointment tomorrow

[Crystal11]

Well after missing three calls from nurse Tracy, we finally spoke and set up an urgent appointment to discuss Zonegran and migraine management and as always, discussion about seizures.
I am SO pleased to gave an epileptologist who will see me everytime I go in. She and her nurse are great and both impressed me a lot.
Anyway, have a nice early 8:00 appointment but I'm not complaining. Lol

I feel that I'm going through every med out there especially for migraine now those are not getting better. Had one last night that disabled me. I slept and took Butalbital and it helped a lot. Now if I can get it to stop totally I would be pleased. A lot of times the pain is helped a lot but burning and sensitivity to touch and non-painful things cause pain such as wearing glasses or hearing aids. Forgot what it's call-something with an A lol.

I'm thankful I can be seen fast.
Everyone take care.

[Endless]

Crystal,

I'm so happy that you have a new epileptologist, and she can see you so quickly! Let us know how the appointment goes, okay?

[huskymom]

Best of luck!!

[Endless]

Crystal,

How did it go?

[Crystal11]

Today I went to my neurologist and we talked about my seizures and meds I was on as well as migraines and pain.
I tried Zonegran which didn't work at all. I told him that i don't want to be on it if its not working.
I am already on Keppra XR, Lamictal XR (For Epilepsy)
Propranolol as needed for Tachycardia and PACs
Trazodone - just added for migraine pain as well as to help with sleeping. Sleeping is a trigger for both conditions.
I am to take it at night, 1-2 pills and maybe up to 3 if needed. I hope I don't have to use that many!
Butalbital- as needed for migraine and is also a sedative which helps to sleep..

So even though this is A LOT of meds- I'm hoping that something will work. So far my seizures are under pretty good control. I still have a few little ones here and there and maybe 1 longer complex partials a month and sometime not at all in a month- but I'm not totally seizure free unfortunatly.
We are also working towards reducing some of the meds or getting rid of one seizure med if I'm okay on just one- which I have always hoped for.

PT starts on the 15th and I hope it will work for pain managment and balance. I had PT a lot in my life and know it helps quite a bit..
Staying possitive and will have to be patient.

Will post progress when I know more of how meds are working out..
Right now- i have a small pharmacy! LOL

Everyone take care and be safe.
Crystal

[Meetz1064]

to you, Crystal. I know the feeling about having a small pharmacy. And having seizure control--or close to it must be great! Yeah for you!!!

[CQ:)]

Hi Crystal,

Hope the new meds will help get those migraines under control & good luck with reducing the meds.