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#1
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Got Kidney Stones (while taking Zonegran)Duke |
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#2
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| Ouch! Those are supposed to be excrutiatingly painful
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. Would you like to help support this forum? We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners. |
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#3
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| How do you get rid of the kidney stones? Are you changing meds? What was the advice????? Wish you a speedy recovery !!!!!!! Riva |
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#4
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You are supposed to drink a lot of water when you are taking Zonegran. The Neurologist should have advised you of this or at least the Nurse. It's very important that you drink a lot of water when you're on Zonegran! And yes, that's one of the unfortunate common side effects, but as long as you're drinking at least 16 ounces of water or more a day, you should be fine! I drink 2 bottles of Spring Water a day, and never had any stones. A lot of people aren't aware they're supposed to drink water. Stay away from caffeine if all possible or reduce it. |
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#5
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| OUCH! I hope you feel better soon. Tell those kidney stones to go away and see if that works. If not, then try plan B. (I have no idea what plan B is). All I know is if I could, I would definately give you an empathetic hug. |
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#6
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You're not alone here. I also got kidney stones while taking Zonegran and a few other seizure meds. Mine are not in harms way at the moment. But they still caused me pain. Which I found out later on I also "had" gall stones. All these side effects can be worse than the illness you are taking the meds for. You take medication to hopefully dissolve them. If that doesn't work, you need to wait for them to pass in your urine.
__________________ Member of the Epilepsy Foundation. Undiagnosed sufferer of Dysgraphia. LEGO County, NY Fire Service /SB/ My RFD Store |
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#7
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Hope you feel better. You might want to add cranberry juice to your list of things to drink. It really helps keep the urinary tract infections down. UTI's love kidney stones. If your urine is gray or bloody, you need to get thee to a hospital.
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#8
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| Well brain, you are exactly right. my nuero did advise everything you said, drink alot of water no caffine. I guess it was all the tea I've been drinkinig, still have to see the family Dr. on Wednesday if still hurting, he said they may be able to break them up with a sound wave procedure and then the broken up stones will pass, Ti'll then taking the Oxycodone as prescribed and drinking alot of water. Duke Last edited by Duke; 08-21-2007 at 07:33 AM. |
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#9
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| Duke, So sorry you are going through this. What is amazing to me is that they can get away with calling this a "side effect!" I took Zonegran for 6 years. I have always been a water-holic so I did not get stones but did have many other undesireable side effects. I am no longer on it. What did your neurologist say about staying on the med? Blessed
__________________ Blessed Homeopathy Juvenile Myoclonic Epilepsy since 1982 |
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#10
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| Blessed, sorry to say I didn't get any answers from my nuero. He was more interested in what was happening with the RNS trials that I'm enrolled in at Wake Forest. We never did get back to talking about my kidney stone and the Zonegrane, I did pass the stone 2 nights ago, what a relief. Duke |
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#11
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| Great news Duke.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. Would you like to help support this forum? We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners. |
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#12
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| Hi Duke, may I ask how long you have been on Zonegran? I am on it also.
__________________ Climb out on a limb, that is where the future is! |
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| kidneys, zonegran |
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