Have any of you made a list of changes?

[momof3boys]

I ask this, because I just got done going over all the changes that has occured since my video EEG, and I cant believe all the changes Ive been through!

I am scheduled to go back to the psych dr on Monday, June 13th.... and the only reason my dr's nurse wants me to go back is to let her review my progress, and hopefully with her notes, it will better inform my neurologist dr about the progress Ive made, and since the Keppra has made things better, and no seizures have occured, the nurse feels its best to the psych dr evaluate things and see if she can get her opinion sent to my dr.

I know it all sounds so darn confusing, and like Im having to go out of my way to proof more to my neurologist dr. I just want him to see all the good changes that has came about since being taken off the Vimpat and Lamictal, and only being on the Keppra XR at 3000mgs.

Now the last thing I spoke with my neurologist dr, he said he didnt agree with my primacy care drs opinion stating that I was having an allergic reaction to the lamictal. But whats funny is that three days after stopping it, the ance or sores I had while on the Lamictal, looked and felt much better... and the swollen and tender glands on my neck were way better! By the end of that week I had no more swollen glands and I looked a hell of a lot better!

So how he saw the Lamictal not affecting me, and then after getting off of it, and all the bad stuff going away.... is beyond me!

Secondly, he said the emotions I was going through, at the time I was on Vimpat and Keppra, or Lamictal and Keppra... he said it was due to the Keppra rage. After getting off the lamictal an Vimpat, and being only on the Keppra, all the emotions went away.

Now if it was the Keppra rage, wouldnt the emotions have stayed the same or else gotten worse and not better? Within days I was back to my old self. No more crying, angry spells, etc. So me having to tell all of this to the psych dr on monday, and letting her review things, is just a big pain in the butt to me!

The PA at the neurologist's drs office said I have Epilepsy. I cant be taken off the Keppra at home. If my neurologist wanted to take me off, I had to be admited to the hospital. But now from his point of view, he said I no longer have epilepsy, and was focused on telling me I have anxiety attacks. But Ive never in my life have had an anxiety attack before! Kind of strange, isnt it?

I dont know.... Im just trying to get all of this stuff wrote down and organized so when I do go back to that psych dr on monday, I can show her everything thats been going on, how its all been good stuff, no seizures have been occuring.

To ask her how in the world can my dr think these are non epileptic seizures, when after being put back on the Keppra, the seizures are gone?

I thought with non epileptic seizures, anticonvulsants will not help? Now thats what Ive googled so far, and from what Im reading.

Gosh I just want this to be all over!

I hope this dr doesnt think Im a nut job for taking the list of changes with me to this appointment!

[Endless]

Yes, I have a list of changes. Some things are much better. Some things much worse. I'm sick of all the drugs. I want my nice, calm, smart self back. I am the opposite right now. Lots I blame on the IIH. Some on the seizure meds. Tired. I'm very very tired of it all.

[mel239]

me too I want to go back--im tire.i will take the meds-but let me go back this has wore me out and taken too much time and energy away from things that really matter