Have you ever want to scream at a doctor!!!

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Chelle

Chelle

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This morning I was woke up with a severe headache accompanied by symptoms of my seizures. I go to ER. The doctor does a CT without contrast. It comes back clear. She then give me emitrex and decadron. Then said you sound congested it must be a Sinus infection. Um okay! I asked her well what about my seizure symptoms are you not concerned they woke me up. Her reply was well we really cant do anything to even see if you are having a seizure. So just don't be alone today and call your neurologist. This has to be the most frustrated I have ever been in my life.
 
Yes, lots of times, especially when ending up in the ER. They haven't a clue what to do about epilepsy at the ER so don't wast your time or $$ going there again. Does your neurologist have a # you can call when he/she isn't in/for weekends?
 
so frustrating, I am so sorry. yeah, I promised myself I will never go to the ER again when I have symptoms. they all call me crazy, let me rest for a couple hours, then send me home. when I get them at work, my work won't even call them anymore because they are just rude and not helpful a all. sorry for your experience though.... :hugs:


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I've been in the E/R and they ask what meds I take and the doctor repeats something completely different and I'm in there system.
And the Keppra she said I took I'm allergic to.
When E/R docs keep asking me if I've my meds even after I've told them I'm refractory.
 
Chelle said:
This morning I was woke up with a severe headache accompanied by symptoms of my seizures. I go to ER. The doctor does a CT without contrast. It comes back clear. She then give me emitrex and decadron. Then said you sound congested it must be a Sinus infection. Um okay! I asked her well what about my seizure symptoms are you not concerned they woke me up. Her reply was well we really cant do anything to even see if you are having a seizure. So just don't be alone today and call your neurologist. This has to be the most frustrated I have ever been in my life.
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That's typical for my experiences (two times) as well, but really what can they do? You had a seizure, you recovered, you are under the care of a neurologist already. You definitely don't want doctors who don't know your full history suddenly adding in and changing your meds that your neurologist is working with - that could really mess things up. Unless you had gone into status, had another seizure while in the ER, were still out of it post-seizure, there is nothing really to be done in an ER environment. I'd say you were lucky to get a CT scan, based on how much "help" my two ER experiences were.
 
I will only go to the ER if there's an emergency. As Jen says, if the seizure is over and you have a neurologist, if an ER doc treated you after a seizure had passed it could have created a disaster for you. I always tell friends not to take me to hospital if I have a seizure unless it lasts longer than five minutes, in which case it would be status and there would be an emergency. But really, if a seizure has been and gone, or even if I'm having some sort of an aura or partial, I wouldn't even call my neuro. I'd only alert him if my threshold changed or I was having more seizures than usual. I once changed GPs because the doctor tried to interfere with my epilepsy medication instead of being willing to work together with my neuro.
 
Scream at docs?

I've wanted to give a few a good beating and dunk their heads in the toilet.
 
I think we should get a free pass once a month to smack them in the head. Especially when they get all pious condescding. We know our bodies and something is f-ing us up and they feel "it's in our best interest" to stick it out, that's when I really want to smack them. I had a doc once ask me "you were a nurse, how would you treat a patient in this situation"? I said better than you and walked out to never return. And repeated it in the reception area that was crowded and asked can you beleive this is the way docs treat people these days?
 
I'm glad I'm not the only one with pious condescending docs. I'm with Dignan - a good beating might put some sense in their heads. The first two times in the ER they just increased my dosage/added Keppra to my Lamictal. At least this time they just patted me on the head after the second one (I've only had 5 in my life and every time there are two in a row, so after the second my husband takes me home. All my tests are fine (well, we'll find out about the EEG Wednesday). I'm not sure what to do with my doc. I understand they've added a "seizure expert" (epidemiologist?). We'll see what happens this week. In the mean time bring someone with you and scream in stereo
 
BlueCat said:
. I'm not sure what to do with my doc. I understand they've added a "seizure expert" (epidemiologist?). We'll see what happens this week. In the mean time bring someone with you and scream in stereo
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Maybe you mean an epileptologist- an epilepsy specialist. An epidemiologist is a dr. who studies diseases.
 
I used spell check and that's what came up. Brain still not fully functional...
 
My neurologist does have a number. but the thing that made me think it was a an emergency was the excruciating migraine that came with it. Consider it lesson learned. This is the first seizure to wake me up so I genuinely didn't know what to do. Maybe I can get the migraine med from the doctor to keep on stand by.
 
Hmm, i think it's best to work things out with your doctor and if that doesn't work, get a new one.

My doc sent me a message after an MRI i had that my tumor had started to regrow, i got this mail on a friday, so that ruined my whole weekend. But i was totally surprised, since i always get a copy of the MRI and i could not see anything regrowing, with my untrained eye. So I emailed him asking where the new tumor was, he said he made a mistake and rather then it regrowing there was nothing there, no regrowth. I should've fired him right there, but i'm glad i didn't because he has helped me out since.

So don't take things to drastically, find a happy compromise. Doctors are human and they can make mistakes as well.

:piano: :pop:
 
I recently had a TC when I was in the waiting room alone while my husband was having surgery.

The hospital admitted me to the ER which I agree doesn't seem to know much about epilepsy. My dad and husband came to the ER and I had a partial while I was still in there. The ER wanted to hook me up to all sorts of IV's and maybe run tests on me too. I don't know for sure because I was out of it. My husband and dad kept arguing with the ER to just let me go for a few minutes and I'd be out of the seizure. They kept bickering back and forth and I did come out of the seizure before the ER got a chance to do anything.

Belinda5000 said:
I've been in the E/R and they ask what meds I take and the doctor repeats something completely different and I'm in there system.
And the Keppra she said I took I'm allergic to.
When E/R docs keep asking me if I've my meds even after I've told them I'm refractory.
Click to expand...

I keep a paper in my purse that has all my medical information on it. Medicines, allergies, drs names and phone numbers, emergency contacts, surgeries I've had and all the other sorts of things that you normally get asked when you go to a dr or ER.

When I came back to normal I saw they had that paper so I don't know if they were digging through my purse looking for something, medical card perhaps, and came across the paper or if my dad or husband found it. I know all my info is in their system too, hope it's right. I wear a medic alert bracelet that states I have epilepsy and my allergies on it.

I have screamed at a dr before, felt really good. She's a nurse practitioner though so I don't know if that counts? When she see's me in the office she won't come near me, just a nice little smile then takes the long way around the room!
 
Yes, when I had a tonic during pregnancy the ER doc told me my baby might be brain damaged (and didn't bother to even say it with compassion, just cold and matter of fact). This was 17 years ago, and I still have such anger about that. My OB told me that was not going to be the case and he never should have said that, but I didn't stop worrying the whole pregnancy (what expectant mother would)? Sorry you had a frustrating experience!
 
Yeah docs are human, but so are we. I'm coming from where as nurse I helped them to become md's and they have to think back to some rememberence of humanity. For many of them once they are released onto humanity they foerget that they are held accountable because there is not a senior or rn to say you made a mistake. There is no safety net out there. WE are the rat labs they are testing on so be careful. Yeah, to err is human , but in every village is an idiot!
 
I keep a paper in my purse that has all my medical information on it. Medicines, allergies, drs names and phone numbers, emergency contacts, surgeries I've had and all the other sorts of things that you normally get asked when you go to a dr or ER.

I have my backup meds in my purse with some (albeit not enough) info. Problem is when I had my sz last week my colleagues locked up my purse in my desk. I went to ER with no ID or anything other than what had been provided. Miraculously that hospital had some link to Kaiser so were able to look stuff up, and even with that and me telling them (I think) what I took/dosage levels, the ER doc gave me the wrong dose. As soon as they adjust my meds I'm getting a medicalert necklace so that doesn't happen again.
 
tiggy'smom said:
I had a doc once ask me "you were a nurse, how would you treat a patient in this situation"? I said better than you and walked out to never return. And repeated it in the reception area that was crowded
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:roflmao: :rock: :clap: :woot: :mrt: :bigsmile:

WELL DONE!
 
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