Hello everyone, My name is Amanda and I live in Sydney Australia. I am 31years old and had my first seizure at 14months old. When I was young my seizures were quite severe but they have gotten better and even to the point that I wasn't having any at all for a very long time (13years).
Recently I trialled moving over to a new medication (from Sodium Valproate to Lamotrigine) and I had bad side effects and even seizures. Today I had an EEG and it showed that I am having increased epileptic activity particularly in the photosensitive part of the test. Last time I had an EEG it also showed some photosensitive activity but every other EEG from my current dr (who I have been seeing since I was 18) doesn't show this activity. In light of what's been happening with my medication i've decided to go back on the Epilim and put up with the side effects of weight gain.
I'm not really suprised at the PSE activity being there though since being around disco and flickering lights have always made me feel unwell. I'm just wondering though, is there a way that I can deal with disco lights even though I have PSE? Are polarised glasses or something similar going to help or is that only good for helping with outdoors when trying to avoid sunlight flickering between trees etc. I'm a teacher and our school has a disco coming up. I really want to be involved with it and hate having to miss out. I've never been in a situation before where I couldn't avoid this kind of lighting but it seems like this is going to be one of those times (I mean, i'm sure I would be allowed to miss it but I don't want to) Is there anything I can do to get around this problem?
Recently I trialled moving over to a new medication (from Sodium Valproate to Lamotrigine) and I had bad side effects and even seizures. Today I had an EEG and it showed that I am having increased epileptic activity particularly in the photosensitive part of the test. Last time I had an EEG it also showed some photosensitive activity but every other EEG from my current dr (who I have been seeing since I was 18) doesn't show this activity. In light of what's been happening with my medication i've decided to go back on the Epilim and put up with the side effects of weight gain.
I'm not really suprised at the PSE activity being there though since being around disco and flickering lights have always made me feel unwell. I'm just wondering though, is there a way that I can deal with disco lights even though I have PSE? Are polarised glasses or something similar going to help or is that only good for helping with outdoors when trying to avoid sunlight flickering between trees etc. I'm a teacher and our school has a disco coming up. I really want to be involved with it and hate having to miss out. I've never been in a situation before where I couldn't avoid this kind of lighting but it seems like this is going to be one of those times (I mean, i'm sure I would be allowed to miss it but I don't want to) Is there anything I can do to get around this problem?