Coping With Epilepsy EEG Institute
10% off neurofeedback training for CWE members - Woodland Hills, CA
Neurofeedback Partner - Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen


Reply
 
LinkBack Thread Tools
  #1  
Old 06-22-2008, 02:32 PM
Loudmouth's Avatar
Weaving the Community Fabric
 
Join Date: Jun 2008
Location: Colchester,Essex,England
Posts: 459
Thanks: 0
Thanked 3 Times in 2 Posts

Help!!!


My ex partner brought my 4 1/2 yr old son back from his visit today and said he had a 4 min period of " blankness" in his kitchen,where he laid on the floor,would not respond to his name,when he picked him up he was totally stiff.I have Epilepsy,My nan has Epilepsy,there's a high possibility that my 10 yr old daughter has Epilepsy (diagnosed at 5,then "undiagnosed" again,on the basis that a 20 min EEG at 10 did not pick up a sseizure-what ever!)this is almost the same age that concerns were first brought up about my daughter,it really couldn't happen AGAIN could it?? he seems fine,but has fallen asleep MUCH earlier than usual tonight...tiredness after seizure perhaps....I cant get him to doctor til tomorrow mornign,do I now INSIST upon tests for him,when they already think i'm a neurotic mother? (I would also like to add that I do have another son that there is NO such health concerns with,and both my daughter and the son that I'm worried about have other problems,i.e learning difficulties,ASD and hypermobility syndrome,which my middle son is not affected by any of these problems,so I don't think I'm being neurotic) Could God be that cruel? Don't they have enough to cope with?AM I just being nerotic wanting testing done,if only to rule it out now??!!
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #2  
Old 06-22-2008, 02:43 PM
tinasmom's Avatar
Esteemed Pillar of the Community
 
Join Date: Nov 2007
Location: Janesville, WI
Posts: 636
Thanks: 5
Thanked 1 Time in 1 Post
I would definitely insist on testing. Mother's instincts are usually always right. If your doctor now will not do testing, find a doctor that will. As for God being cruel, he is a loving God and only gives us what we can handle. Sometimes we look at things that happen to us as a punishment from God, but it is not. There are times when I think to myself that I just can't handle anymore, but then God shows me the way. Sometimes I feel that I am given the highest mountain in the world to climb and just can't get to the top. Then I finally get to the top and things are easy for while I'm going down that mountain.
__________________
Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal

"I put my hand in your hand so you know that you are not alone."
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #3  
Old 06-22-2008, 05:10 PM
Birdbomb's Avatar
Super Moderator / VNS Guru
 
Join Date: Apr 2005
Location: Las Vegas, Baby!
Posts: 2,383
Thanks: 133
Thanked 190 Times in 108 Posts
You CAN have a normal EEG and still have seizures. An abnormal EEG is NOT the definitive of epilepsy neither is a normal the exclusion of epilepsy.

Trust you gut! You in your heart as this child's mother KNOWS something isn't right. If it's epilepsy, so what? You know how to deal with it. You will do what you have to. Have faith in yourself.


__________________




"If you are going through hell, keep going."
(Sir Winston Churchill, 1874-1965)

Work like you don't need money,
Love like you've never been hurt,
And dance like no one's watching.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #4  
Old 06-22-2008, 05:55 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,643
Thanks: 86
Thanked 504 Times in 403 Posts
Send a message via Yahoo to RobinN
I am going with my gut and I think you should ... wait.
Give him the best nutrition you can, keep stress at a minimum. Heal from the inside out.
Testing isn't really going to tell you much more than you most likely know at this moment.
__________________
Robin
Neurofeedback - Rebecca's Story
Feedback Matters- blog
Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #5  
Old 06-22-2008, 05:55 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,643
Thanks: 86
Thanked 504 Times in 403 Posts
Send a message via Yahoo to RobinN
I am going with my gut and I think you should ... wait.
Give him the best nutrition you can, keep stress at a minimum. Heal from the inside out.
Testing isn't really going to tell you much more than you most likely know at this moment.
__________________
Robin
Neurofeedback - Rebecca's Story
Feedback Matters- blog
Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On



All times are GMT -5. The time now is 10:20 AM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.