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#1
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help me distinguish please!!!
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
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#2
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| Oh, yeah. That's Kepprage. It can last a whole day, or longer. An emotion seizure is much shorter - like under 5 minutes. And those are almost never anger, usually more like fear or euphoria (although anger has been known to happen). I used to go play raquetball during a kepprage attack. There was something so satisfying about the THWAK THWAK THWAK of hitting the ball. I'd imagine it was someone's head. Terrible, now that I think about it. I'm such a pacifist. lol... |
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#3
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| thank you, that does make me feel better though. because my emotion seizures ARE alot shorter. im just pissed right now... like really really really pissed
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
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#4
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| So let loose, baby. How do you really feel? Let it all out! (better here than at the people at home) |
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#5
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| i wanna take a giant glass sphere and throw it off the empire state building! haha imagining that actually helps. and the fact that its impossible helps even more lol
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
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#6
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| I wanna see it smash on the ground, especially in the snow. |
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#7
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| (it would be really glittery) it just gets so frustrating when people who have never had the side affects or needed the medication are the ones that are around. i don't mean to get bitchy at the people who support me but its like something you don't want in your body in the first place is controlling you and yet, you still put more inside
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
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#8
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| I have one of those bounceback thingies -- you know, a wooden paddle attached to a superball that you thwack? I find it very satisfying to thwack when I'm peeved. |
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#9
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| everyt time i try those things i end up hitting myself in the face lol, i don't have great coordination. i gaurantee i will be known in my yearbook when i graduate as "the clutziest"... if only i could spell correctly. but you get the point :/
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
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#10
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| I have two squeezeballs. Supposed to be to prevent repetitive strain injuries (they don't call it that anymore, but you know what I mean - overuse syndrome?), and when I get tense, I tense up on those. And I don't even take Keppra! Or throw them around my office... Which I don't share, by the way. Or I put them under my shirt and pretend they are giant boobs - always gets a laugh from the cleaning staff LOL I like the idea of the paddle with the attached ball, Nak! I have a tennis ball which velcroes to your finger so you can bounce it against a wall and never lose it. Except, I can't find it... I'm getting silly. Must be time for bed! Chel |
| The Following User Says Thank You to Chel For This Useful Post: | ||
gr33nr0se (02-02-2011) | ||
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#11
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| I do not take Keppra but what helps me through those times when my brain is misbehaving, and every little bit of sensory input such as light, noise, and or heat, seems to be just another irritant and I feel I am getting hostile, I will go into my bedroom or bathroom where it is cool and dark and I will put in my ear buds from my MP3 player and sit quietly, breathing in a relaxing manner, until my brain starts to calm down (just a minute or two) then I listen to a playlist of some soothing music at a comfortable volume. I find that the when sitting or laying quietly with ear plugs/buds, I can feel the pressure of all the stress and tension lifting from my body almost like the force of gravity has relaxed a bit, kind of weird but it makes me smile. Smiling also helps relieve stress, but it can be hard to smile when you are PO'd! The music after the quiet seems to set a more relaxed "rhythm" to my brain which helps to keep the stress low. It might help you too. |
| The Following User Says Thank You to Frink For This Useful Post: | ||
gr33nr0se (02-02-2011) | ||
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#12
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I think I said before, I'm not on Keppra, but if this feels like something you're not in control of, then you are probably right, and this is medication-induced. At least by knowing this, you will be able to put a lid on it very quickly, rather than having the fear that you're turning into a monster mixing in with everything else you are feeling. Negative feelings can be like a giant ball of string, growing and growing unchecked. Knowledge is like a pair of scissors that snips them and keeps them short. Heh. I just made that up. LOL. Keep debriefing - that's the key. Chel |
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#13
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| thanks guys, im trying. and i feel better today so im just hoping it lasts. i won't have to deal with it at all next week because i have another four day video EEG off meds so i won't have to worry about side affects
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
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#14
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| Punching bag is an excellent anger reliever, tried that many times, especially the one that looks like the human body, even better(can be anyone you want) Have tried the glass sphere, it is pretty in the snow! |
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#15
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| Could also be that nasty snow and ICE we're all getting up here. Throw a few snowballs or ice balls against a fence. If we didn't have all that bad weather, I'd suggest taking a long walk outdoors, but that would be incredibly cold. Can you do some shoveling to take out the frustrations for either your family or neighbors? Exercise does wonders for one's coordination and frustration levels.
__________________ __________________________________________ WARNING: Humor may be hazardous to your illness. -Ellie Katz |
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#16
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| i actually threw a tantrum at a snowbank last week and it felt alot better. i don't mean to be turning your guys' ideas down but cold weather actually triggered a pretty bad seizure last time i shovelled so i'm kinda wary about doing that for more than five or ten min
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
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