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  #21  
Old 04-11-2010, 11:04 AM
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Hi lesleyanne --

A number of people here at CWE experience nocturnal seizures. You can search for posts on this topic (or others) using the tab at the top. I hope you feel free to explore all the forums, and post any questions you may have.

Best,
Nakamova
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  #22  
Old 04-16-2010, 07:34 AM
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I to seem to have an aura which wakes me just before the seizure.
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Old 04-16-2010, 12:12 PM
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do nocturnal seizures make you feel any different than any other day? I am starting to suspect that I am having more and more every day. I have been biting the side of my cheek in my sleep more often. I feel like I havent fall asleep but I have and noticed the bed sheet has come off. Today I woke up from a huge jerk from my left leg.

Today when I was having a dream it felt like my body was vibrating, which then my body woke up but nothing seemed any different from the position I was last in.
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Old 04-16-2010, 02:10 PM
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I've had nocturnals all my life, but I wake up from mine before due to having aura's.

Sometimes I have to get out of the bed as I am having visualisations during the seizure that someone is trying to stab me; therefore my main aim at the time is to leave the 'horrible' place where it is happening - hence I get out of bed.

Other times I still have them in bed, aura first, but am able to just fight it through, and then sleep.

Over the past year or two I've noticed that I will wake up earlier too, if I've had a nocturnal seizure - great, huh ?....just what we need when we're already feeling shattered !

I have woken the next day not completely sure if I had one, or not. Sometimes I may get a flash-back that suggests it DID happen, but I try my best not to bother pondering on if I did or didn't, and just getting on with the day, and my life.
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Old 04-16-2010, 02:19 PM
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Something about my nocturnal seizures that I only remembered because I had one a couple of nights ago, is that I almost always have to pee after one of them. I occasionally have to pee after a regular day seizure but almost always if it's nocturnal.

I haven't found any connection between the noc seizures & drinking liquids before bed though.
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Old 04-16-2010, 02:28 PM
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Originally Posted by epileric View Post:
Something about my nocturnal seizures that I only remembered because I had one a couple of nights ago, is that I almost always have to pee after one of them. I occasionally have to pee after a regular day seizure but almost always if it's nocturnal.

I haven't found any connection between the noc seizures & drinking liquids before bed though.
I used to pee the bed when I was a kid, because of my seizure's.

I think Bernard posted somewhere before about the peeing being a form of 'release' after shock, so to speak (not as detailed as Bernard was able to explain, but you catch my drift?)

I have still by accident found in the morning that I may have made a 'line' on the carpet too Still, it happens I guess.
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Old 04-16-2010, 02:58 PM
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nigh fighting


Hey everyone,

I have seizures 7nights a week,but I am also waiting for spinal surgery so some times I am not sure whats what.

The night usually goes like this--approx 10-15 minutes before falling asleep
arms and legs start twitching quite heavily sometimes followed by feet kicking each other and curling toes.When I fall asleep activity gets much worse.
I wake up several times a night punching and or kicking the wall or myself.
Alot of pelvic thrusting followed by straight back with stomach in the air.
I wake up often with a strange grunt or aaaaahhh and am sitting up right.
(hard to tell if that is from my constant nightmares or not.)
In morning,often wake up with bad headaches and or severe abdominal pain,
confused and spacey.Worst part is muscles from waist down are in so much pain I often cannot get out of bed for about 6 hours.Sometimes I wake up with toes and feet in skijump position-facing my head.

Also druel alot,grind teeth and chomp.(many of my teeth are half broken)
I then wake up to have seizures most of the day.

I know this from myself and is confirmed by partener.
Hope this helps.
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  #28  
Old 04-16-2010, 03:13 PM
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Yeesh nightfighter... you sound more broken than you actually appear in life

I definitely can confirm these things to be true *sigh* You grunted last night again, and the toes curling, and rubbing your feet, ski-jump legs, and you had rhythmic jerking of your shoulders/arms. Remind me to record that in the diary.
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