I don't "know" when I am having a seizure.

[wonderdogs]

Does anyone else have this type of epilepsy? I don't have any indication when I am having a seizure. I don't have any obvious loss of consiousness or bizzare behavior.

My seizure activity was very evident throughout my EEG. It was not worsened by the flashing lights but it was influenced by hyperventilation.

I just started a low dose of Keppra and I am to increase it as I tolerate. I am doing fine although I am very drowsy. Hopefully this effect will wear off as my body gets used to the medication.

Thanks for your advice.

[wonderdogs]

Just wanted to add...

I would like to do a seizure diary but I am finding it difficult to do because of the mystery behind when my seizures occur. I also wonder if I should have done a seizure diary before I strated taking the Keppra.

[RobinN]

For my daughters "diary", which is a calendar, I mark anything that I think is out of the norm for her. Any change in dietary habits, any changes in emotions, and social upheavels, hormonal changes, amount of drug, what supplements were given, what meds were forgotten, sodas, late nights.... I think you get it. I make note of everything.

Poor kid thinks she lives under a microscope. I guess in a way she does. In more ways than one.

You can't really think of what you should'a done... you can only go from here. For you it might be easier, because you can really make it into a journal, and tell what you are feeling at any given moment of the day.

[Bernard]

When I first met Stacy, she would not have been able to keep an accurate seizure diary because she was largely unaware of all the absence seizures she was having.

Even now, she is largely unaware of her infrequent complex partial seizures. When witness one and tell her about it, her immediate reaction is to argue with me!

[Bee91]

I have some seizures where I am not aware I am having. I try best as I can to keep a journal of all the seizures so my doctor can read it, but it's nearly impossible when you don't know all of you seizures. At school, I have a friend in every class make sure kind of watch to see if I have a seizure. And if I do have one that I don't remember; I ask them to describe the seizure and how long it was. At home, my parents do a pretty good job at telling me what I miss...

But if you want to keep a journal, then I would find someone that is with you most of the day and just ask them to keep an eye out and tell you when you do have a seizure.

[Nancy]

I can offer no help but I know what you're talking about.
Last April when I was in the hospital 5 days for a video EEG I was told I had those mysterious (to me) "seizures" ..... That "seizure" shows on the EEG but absolutely NOTHING shows to the experienced people carefully watching me by camera, nothing shows on the recorded film and I am aware of nothing.
~shiver~

[Grneydgurl]

Sorry I can offer no help as well. I have tonic-clonic seizures. I too underwent a video EEG test and the alarms were going off, but nothing on the EEG and no seizure. I have also had spikes during sleep (which would be no help for me if I was sleeping), stress and hyperventalation. I get some funky signs, tunnel vision, tingling around my mouth but they said that it could be a number of things.

[brain]

When I first met Stacy, she would not have been able to keep an accurate seizure diary because she was largely unaware of all the absence seizures she was having.

Even now, she is largely unaware of her infrequent complex partial seizures. When witness one and tell her about it, her immediate reaction is to argue with me!

I have to argue with Bernard with this one!


I find myself in his wife's own seat! I think
they're all telling fish stories! And some of
the things they say, makes me go ...



And I think THEY are on drugs!

But he's actually telling the 100% truth!
HONEST!

If you remember the not too old television
show "FAMILY MATTERS"?
Steve Urkel? Of how he would go ...
"Did I do daaaaaaaat??"

Well ... that would be my reaction!

[Nancy]

Ooops ... I read what I wrote and saw that I was not clear, was I?
I said " and I am aware of nothing." I meant that I was wide awake and went ahead doing exactly what I was doing before. I was fine. I was 100% active (as possible in the hospital bed).
When I said "aware of nothing" I meant that I was not aware of having any sort of seizure or anything being wrong.