I go see my VNS doc tomorrow.

[Belinda5000]

I called my VNS docs office today and he wants me come in tomorrow after I told em I'd gone down in 5 seizure's this month.
They wanted know why I hadn't called earlier;and I was only talking to the receptionist. I've been going to this guy for quite awhile.
I thought it was time i got my VNS turned up I'm on on 2.0.And I'd going to talk to him about the other settings also.
My head cant take much more.
Belinda

[Bernard]

Hopefully an adjustment will give you some positive results.

[seizures4ever]

As always, keeping you in my thoughts Belinda. I hope this "tune up" will decrease these seizures you've been having recently!

My neurologist checks my VNS every visit. When she swipes that scanner over my chest, I always feel like I'm being "scanned" for a price check (like an extra large bag of dog food at Wal-Mart).

Hee hee. Ain't life grand? One time, my VNS magnet clung me to a BMW outside the grocery store. Another time, my magnet stuck me to a filing cabnit at work. And then there's the time I "magically" pulled someone elses grocery cart towards me while at the checkout (they watched wide-eyed as their cart slowly rolled toward me)

Take care and make sure you get plenty of rest. Remember, we are survivors! -Julie

Edited to add: PM me if you need to, ok? Hugs.

[Meetz1064]

Belinda, I certainly hope that it helps......

[Nancy]

Belinda -- I wish I could "really" go with you .... hold you hand and hold you steady - that sort of stuff. Since I can't because of the distance, please know that my heart will be with you. I hope andpray that you have a good, solid SUCCESSFUL visit.

Julie --- I laughed reading your post and you have no idea how much I needed a laugh tonight. THANKS!!

[hawke86]

Good Luck with your appointment. I hope things work out.

[brain]

Belinda:

Hope it all works out and everything gets tuned up
properly! It all sounds like you've been making quite
a progress on your end!

[ashmstng]

Belinda~
I hope your doctor visit turns out good. And the setting of your VNS helps you. Take care.

[Belinda5000]

Nancy thanks for the nice reply.
a friend is taking me to the doctor.
I'll give her some money for gas.
I'm just bummed right nowand I need time with my neck still killing me.
thanks everyone for listening to me gripe.
Belinda

[Belinda5000]

He set it so it goes off every 1 minute to go off.
he's hoping this will decrease my seizures and I will go back in 2 months to see him again.
Belinda

[ashmstng]

Goodluck Belinda!
I hope this setting works out for you. Keep us updated.