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#1
02-11-2011, 04:44 PM
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i got to see it  so i just got home from beth israel hospital and i'm so happy to be sleeping in my own bed soon. on wednesday night, i had a tonic clonic and i'm exhausted but i asked my neurologist and he showed me what it looked like. its a weird feeling to watch yourself do something so out of the ordinary, and you don't remember anything about it. it was kinda cool.my neurologist also changed my diagnosis. he said i have all of the seizures associated with juvenile myoclonic epilepsy but i also have partial seizures. my tonic clonic started in my right occipital lobe, stopped, and then started again but generalized. just wondering, what are your experiences with lamictal? he just put me on it and im hoping it will work.
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with."     |
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#2
02-11-2011, 05:16 PM
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| That's cool -- My neurologist never let me see my EEG printouts. I wanted to get a copy to use in an art project, but she said they were destroyed after the digital info was analyzed  Lamictal has a decent reputation in terms of side effects. It's been okay for me, but your mileage may vary... The first few months I had restless sleep, very vivid dreams, hair loss, mild headaches, dry mouth and eyes, mild dizziness, blurry vision, mild headaches, mild acne. The first 4 side effects went away, but the others linger. It's important to ramp up slowly in small increments in order to minimize the possibility of an allergic reaction. If your schedule of increases seems slow, that's why. (If it's not slow -- then your doc is and needs schooling!). |
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#3
02-11-2011, 05:43 PM
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| thanks nakamova, i didn't just see the readout, i got to see me seizing on the video. it was cool. this week and next week i'm on 100mg once a day(extended release, they look like donuts  ) and then on week three i go up to 200 once a day.
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
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#4
02-12-2011, 10:32 AM
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| That actually seems to be a pretty rapid ramp-up! Per my neurologist's instructions I went up in tiny increments, at times razoring 25mg tablets in half. And the Lamictal XR info site recommends this schedule: First 2 weeks: start at 25 mg every day Weeks 3 and 4: 50 mg/day Week 5 and onward towards a maintenance dose: Increase by 50mg/day, staying a week or two at each level before increasing. "Standard" maintenance dose is anywhere from 225 to 400mg/day, in 2 divided doses. BTW, there is no single target therapeutic plasma level for Lamictal. Basically, whatever works, works. In my case, the standard dose is 175mg/day. |
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#5
02-12-2011, 11:23 AM
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| i don't know why i'm being ramped up so fast but i guess i will see what happens
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
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#7
02-12-2011, 12:01 PM
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| i will, but i'm not sure i wanna get rid of the extremely vivd dreams, they are fun lol
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
