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Old 09-13-2009, 01:25 PM
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Lightbulb i had a sz the other week!!


hi all, long time not spoken to you guys when i been here before it help me out with my epilepsy!!!

how is everybody?

well he goes!!!

i had a seizure a few weeks ago now, ryan was there with me lucky he was there with me,


the other week, i went to bed about 9:30pm watch somet tv went to sleep, later on my other half came to bed, at about 11ish, i remmber talking to my other half then i trun over the go to sleep close my eyes and remmber that something was going on, eg had no control of this i remmber going all stiff, and after that dont remmber much,

ryan the next day wrote down what happined

could this of been an aura before hand,??

this is what ryan wroten

To whoever this may concern.

I am writing to you to wutiness what i saw tuesday 25th August 2009.

Caroline was in bed with me, i am her partner, and after listening to a book she fell assleep.

durin sleep, she started shaking and then i asked herto see if she was ok, in response she sort of moaned as if she was scared but i asked again and she awoke to ask me what had happened. it didn't last for more than 2 seconds as i think waking her up brought her out of it.

She clung on to meshe was fritened of the whole experience and kept saying "don't leave me" "don't lave me!".

During sleep every night i have noticed that she twitches quieta lot as well.

I am giving you thsinformation so that hopefully something can be done to resolve the matter.

If you need more information write to me at the above address.

yours sincerely



Ryan Roberts


can anybody help here?
thanks cazzie
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Old 09-13-2009, 03:34 PM
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Sounds as


if you might be due for a trip to the neurologist, and ask for an EEG that lasts a MINIMUM of 48 to 72 hours. This way, it will catch what happens in your sleep. From the sounds of it, you may be having some nocturnal seizures going on, so you need to show this note to your neurologist, and get things worked out, ASAP.

Good luck!
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Old 09-13-2009, 08:18 PM
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I would definitely show this note to neurologist. Keep as many notes or observiations as possible. If you have the equipment, video tape it, even on a cell phone is possible. This would allow a neurologist to see each phase of the event and time it and so on.
Write down notes about her memory, time it happened, what she did before it and how she acted afterwards.
Sounds like she was in a panic attack or extreme fear of being left alone.
If she was condused, how long? Is she in pain from shaking or no?

I hope neurologist can help. A good long EEG would definatley help look at how she is sleeping and if any seizure activity is happening.
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Old 09-14-2009, 07:19 AM
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i'm the one with Epilepsy!!!
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Old 09-15-2009, 02:33 PM
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I hope that you can get it staightened out. I am sorry this is happening to you. We are here if you need to talk.
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Old 09-16-2009, 02:48 AM
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thanks you what do you all think it is i think it simple partial, but i dont now of anything also
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