I hope this wasnt a seizure! :(

[momof3boys]

Well, Its been almost 3 months since my level has been where it needs to be, since only being on Keppra XR. This morning I woke up, took the kids to school, our youngest went back to bed. I had some phone calls to make. So I stayed up. I normally lay back down with our youngest. I was up at 7am, and got back home around 8am. I stayed up, watched alittle tv, made the phone calls, etc. At around 10am, i decided to lay on the couch and watch some tv. the minute I layed down and closed my eyes, I had this feeling go through me. It felt like when you are on a roller coaster and youre about to go down the first hill.... how your stomach gets that feeling. It was a weird feeling that made my body jump! I immediately opened my eyes and sat straight up. I was still feeling it and asking myself what the heck is that?

I decided to go lay back down in bed since the light was coming through the window. I went to lay down, and about 25 minutes later, our youngest boy wakes up. I remember hearing him going to the bathroom, and feeling like a truck hit me. I had to help him, so i literally had to drag myself out of my own bed to help him. I felt so tired. I remember feeling so tired. I got up after that, and had a dull ache in my left side of my head. Not a bad headache like im use to having after a seizure, but just a dull ache. I remember sitting at my computer thinking my jaw hurt so bad. I just had two fillings done last week on my left side, so i thought it was just that. But when I went to check in the mirror, my tongue on my left side was cut, it looked like I may have bit my tonge. My mom kept telling me to make sure I get enough sleep. Last night I didnt get much, maybe 5 hours? Plus Ive been really stresed out lately. So much it affected my menstrual cycle. I was a week late.

I was so hoping the keppra xr alone would work for me.

Has anyone ever had a seizure while asleep? And if so, how did you wake up feeling?

Im just worried thats what happened. It would explain how aweful Ive been feeling today.

 

[Nakamova]

I hope it wasn't a seizure too... There may be no way to know for sure. If it isn't one, you might as well consider it a warning sign. It could be a combo of stressors kicking in -- the ones you mentioned, plus maybe a "hangover" from the dental work last week. Maybe you have a low-grade infection? You might want to take some painkillers (if you haven't already).

I hope you feel better soon.

 

[momof3boys]

I went to bed last night feeling so tired. The minute I closed my eyes, that feeling I had in my stomach yesterday returned, but it wasnt as strong. When I have seizures, my head will turn to the right. I layed in bed for about five minutes, and I had that feeling that something bad was going to happen. So I layed on my right side. (the last time I layed on my left side, I had a seizure, which pushed my head to the right, and made my body stiffen and then I ended up going to my back during the seizure). The seizure feeling I get before one is to start came over me and I tried my hardest to fight it off. I woke up feeling completly run down and I slept for over 14 hours. The headache is still there too. I took pain medication, but its not taken care of the headache so far. I really hope this isnt a sign I need to be on two seizure medications.

 

[Mnm8405]

I really hope it wasnt a seizure either, but it does sound very familiar to mine. My first t/c seizure was while I was sleeping, I would get "episodes" of simple-partials all through the night, for months.. sometimes 5 or 6 a night.. and they all end with that roller coaster feeling that jolts me awake. When I had my t/c I had the roller coaster feeling but didnt "wake" up, but rather started convulsing. Everyone is different from what I've researched, so hopefully this wasnt the same as my experiance!

 

[momof3boys]

I woke up this morning just not feeling "right". My mom called to check on me and I told her I kept having that stomach feeling all morning long. Its a feeling like youre getting sick to your stomach, but its like right in the pit of my stomach area that I get it. My head doesnt hurt alot, just right above my left ear area, where my epilepsy is at. (left temporal lobe area) My mom said it would be a good idea to run this by the dr and let them know about this. So I called and left a voicemail for the drs nurse. I know Ive been under alot of stress lately, and the night before I didnt get much sleep. It was wednesday morning I woke up feeling that way and the headache lasted the entire day. I'm trying to remember the time period yesterday morning. I recall laying down on the couch at around 10am. Shortly after then is when I had that "rollercoaster feeling in my stomach". I just felt "off". So I went to lay down in my bed and it had to have been within that time period, shortly after 10am til around 11am that If I had a seizure, it would have happened while I was asleep. When I woke up, it was the same feeling I had after having a seizure while I was doing my VEEG in March. It just feels like a truck ran you over and your body is so weak and tired. I kept thinking why am I feeling this way? I just felt sluggish the whole day yesterday. I'll see what if the drs nurse calls me back and see what they say about it.

 

[elizzza811]

I've had seizures in my sleep. When I have them, I wake up very confused, disoriented, and I don't know what day (or month) it is. I've already forced myself to think of one thing I'd done the day before, and I draw a complete blank. Now if I have a seizure during the daytime, that's when I get my headaches...immediately afterwards.

 

[momof3boys]

I had a headache all day yesterday after it happened. Today my stomach has been not feeling the best. When I relax, and not up doing things around the house, my stomach starts to get that feeling again, like In the pit of my stomach, a feeling like I want to throw up. My head starts to hurt, and I get a kind of "offish" feeling. Its so hard to describe. Im going to try to get to bed earlier and see if extra sleep may help me.

 

[Nakamova]

Do you have a fever?

 

[chris2kids]

Kristin, I had some similiar feelings as you are describing and it could be just a combination of not enough sleep, dental work and your menstrual cycle. I have gotten several times a jolt as I described to my doctor when falling asleep. My seizures only happened when i was sleeping and I do not remember having any jolt so try not to stress but maybe ask your doctor if you should increase your medicine for now. I get a headache after the jolt also. The stomach issues could be your getting sick or you have a bug. Let me know how you are doing.

Chris

 

[momof3boys]

Thanks everyone. I just got off the phone with my drs nurse and she said it def sounds like I had a seizure. But with not getting enough sleep Tuesday night, she is going to put that down and think its due to lack of sleep that caused it. Wednesday I felt terriable, with a headache, felt like a truck ran me over, and noticed my tounge was bit, and just having no energy at all. Thursday was alittle better, but I kept having that stomach feeling come and go all day and felt very tired all day long. I made sure to get at least 9 hours of sleep last night, and then after the kids went to school this morning, I layed back down again for a couple more hours and Im feeling much better.

She said to make sure I get plently of sleep, cause that can cause seizures to come about if I dont. She said if it happens again, to let them know. But for now, she doesnt want to mess with my medication or adding a new one, if that seizure was just due to lack of sleep. But if it continues or things get worse, to call them back, and let them know.