Issues with strobe lights

[DanKingLaw]

Hello all,

So i have been with my girlfriend for about a year and a half and since that time she has had 1 seizure that was associated with strobe lights. Usually what happens when she is exposed is she gets a massive headache if it is a short period of time. We currently live in California and love amusement parks. We have been able to cope thus far with her sensitivity however we are currently at a crossroads. Neither of us have been to Universal Studios Halloween Haunt but really want to go this year. We are informed that there WILL be strobe lights at this event throughout the park. Are there any glasses or equipment she can wear to avoid having a seizure for that night?

She is currently not on medication and does not wish to start taking any medication. It is not often she will have a seizure however, I dont want her having a headache all night either.

 

[resaebiunne]

Based on your description of what is going on, I really have to recommend seeing a neurologist. You have given two reasons: 1) Seizures. 2) Headaches (which could possibly be migraines).

If you are aware of the trigger of the headaches and seizures, it is best to avoid those things, but if you really can't do that, I would suggest medication. Consider that medication need only be taken on an "as needed" basis, not all the time.

If she has only had 1 seizure, how do you know for sure strobelights are the trigger? Has she had an EEG?

I cannot say whether sunglasses will help with photosensitive epilepsy.

 

[DanKingLaw]

Based on your description of what is going on, I really have to recommend seeing a neurologist. You have given two reasons: 1) Seizures. 2) Headaches (which could possibly be migraines).

If you are aware of the trigger of the headaches and seizures, it is best to avoid those things, but if you really can't do that, I would suggest medication.

I cannot say whether sunglasses will help with photosensitive epilepsy.

I am unsure of the testing that had been done but she was diagnosed by a neurologist before we met. I've spoken to her primary care doctor and he indicated that the seizures can be brought on by strobe according to the report of the specialist. She refuses medication

 

[valeriedl]

After most seizures I'll have a horrible headache that will sometimes last for hours. All I can do is lay with a bag of ice on my head in a dark room until it goes away. If I don't it just keeps getting worse and worse.

Strobe lights are something that can cause many people to have seizures. I don't know of any type of glasses that can help. She could close her eyes or wear some type of mask but if she were to do that then she'd wouldn't get to see what's going on.

When you have epilepsy, or any type of medical condition, there are just unfortunately things that you have to realize you aren't able do sometimes. It's hard to deal with at times and I know it makes you want to punch a wall!

I would highly suggest that she talk to a dr about this. Is the only time that she has seizures if it's when she's around strobe lights or does she have them other times too? If it's only strobe lights then the dr may just say to stay away from them and she may not have to take meds - don't hold me to that though.

There are some diets that people go on that help with their seizures, there are a few posts on here about them. If she doesn't want to take meds then she could talk to the dr about the diet and see what he has to say about that. He could say go ahead and try it and see if that does anything before putting her on any meds.