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Old 10-23-2009, 04:43 PM
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Katie Couric Reports On Epilepsy: A Fight For The Cure


(CBS) "Susan and David Axelrod's oldest daughter Lauren had tried 23 different medications and an unsuccessful brain surgery to control her epilepsy by the time she was 18.

When doctors could not stop her dangerous and devastating seizures, the Axelrods realized that they would have to do something themselves to help Lauren. Today, they are fighting for a cure for epilepsy by raising awareness and funding for innovative research.

Susan and David, President Obama's senior advisor, will appear in a Katie Couric 60 Minutes report on epilepsy to be broadcast this Sunday, Oct. 25, at 7 p.m. ET/PT.

"Why can't they stop a seizure? I mean, this is a disease that's been known since Biblical times. The research, and the ability to treat and control is so primitive," says Susan. David describes what it is like to live with the constant threat of seizures. "Epilepsy is like terrorism of the brain. You don't know when it's going to strike, where you're going to be," he tells Couric.

Epilepsy affects nearly three million Americans, more than cerebral palsy, Parkinson's and multiple sclerosis combined. What's more, the disease strikes and kills about as many in the U.S. each year as breast cancer, but gets five times less federal funding for research than breast cancer receives.

In addition, there is a new population at increased risk of developing epilepsy: veterans of the wars in Iraq and Afghanistan who have suffered serious traumatic brain injury.

Eleven years ago, Susan Axelrod helped found CURE, a non-profit organization dedicated to raising awareness for epilepsy and generating funds for research into new treatments and a greater understanding that could one day lead to a cure. One of the scientists whose work is partly funded by CURE is Dr. Frances Jensen at Children’s Hospital in Boston.

Asked by Couric if she is maddened by the lack of attention paid to epilepsy, Jensen replies "Yes. People don't realize that it's happening to two in 100 people, and even more than that, in five or six out of every 100 children."

There is some progress being made. A new device implanted in patients' brains has reduced seizures in some patients in an ongoing clinical trial.

And Lauren Axelrod, now 28, finally found a drug that made a difference for her, controlling her seizures and improving her life. "There was a time when we have given our right arm for just a week of good days," says David. "And now, she has them consistently. So, you know, that's a big victory."

http://www.cbsnews.com/stories/2009/...n5414456.shtml
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Old 10-23-2009, 09:26 PM
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Looking forward to this. I have seen their story before and it is quite helpful for public awareness.
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Old 10-23-2009, 11:02 PM
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I'm really looking for to this! I already have it set on my DVR
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Old 10-24-2009, 03:56 PM
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Just remember the football will be on, so the show may start late. Give yourself an extra 15 minutes.
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Old 10-24-2009, 07:54 PM
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you would think someone so close to the president could get his ear about this topic.
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Old 10-24-2009, 11:01 PM
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Is this the family that was interviewed in "Parade" magazine?
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Old 10-25-2009, 05:41 PM
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Yes, it is. And they were also responsible for the Newsweek cover story about epilepsy!
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Old 10-25-2009, 06:43 PM
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And it


was an EXCELLENT clip, I thought. I won't ruin it for those that haven't see it yet....
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Old 10-25-2009, 06:55 PM
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I thought it was a good start... But I always want more -- I want at least a whole hour devoted to epilepsy, and I want more about the alternative treatments.
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Old 10-25-2009, 07:06 PM
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There was


a commercial just now for CURE, during Amazing Race......
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Old 10-25-2009, 08:24 PM
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I do think the emphasis for the need for more funding was great -- it seems like we're on the cusp of a lot of treatments related to brain disorders. Increased funding could do so much.
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Old 10-25-2009, 08:32 PM
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A nice start but as we all know we need much more. Glad to see their daughter doing so well now.
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Old 10-25-2009, 09:10 PM
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Since I got diagnosed a year and half ago, I have tried explaining to my mom how serious it is. I had called her this week and told her about the show and then called her again when it was coming on and she actually watched! She called me afterwards and said she never understood how deadly it could be. Baby steps! I think it was a good start to help people understand.
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Old 10-25-2009, 10:04 PM
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That's great jgb. It's good to know it made a difference already.
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Old 10-26-2009, 08:53 AM
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There's a DVD on the segment that's going to be made available by Amazon.com. To pre-order, simply click: www.amazon.com/60minutes. The segment will show up as the first listed on the left. They don't list the pice, yet. Sorry.
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Old 10-26-2009, 10:41 AM
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60 Minutes has the piece on their site.



Thats great jgbmartin I'm estranged from my mother I hope she watched ot too.
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