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#1
02-03-2009, 11:33 AM
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Keep your fingers crossed! Neurofeedback Two things to mention: 1) Tomorrow I go for my first consultation for neurofeedback! I found someone who has an office located close to my home. He is even petitioning my insurance to become a provider...please keep your fingers crossed that they will at least let him be out-of-network if nothing else.  His fees are based on a sliding scale. Because I am relatively low income, I qualify for a reduced out-of-pocket fee.  I am looking forward to tomorrow. Most of you guys know that I have daily seizures and a truck-load of daily medication; I can't wait to get started with the neurofeedback! 2) Next week (the 11th). I am going to an epileptologist at the Medical College of Georgia. PLEASE wish me luck! I REALLLLLLLY want off of some of this Keppra. Maybe he'll look at my Keppra, Trileptal, Zonagran, and Klonopin and say, "Why in the world are you on this many seizure meds?"  I'm not sure what to expect, but a new prospective is always exciting! Please keep me in your thoughts for tomorrow and the 11th, and I'll update you as soon as I know anything. Love you guys. -Julie
__________________ "I WILL NEVER GIVE UP ON MY DREAMS; I WILL JUST MODIFY MY PATH FOR REACHING THEM" -j (me)  "Life is better left to chance. I could have missed the pain, but I'd have had to miss the dance." -Garth Brooks     |
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#2
02-03-2009, 12:21 PM
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| I am so excited for you Julie. For your sake I do hope you are able to reduce those meds. Keep us posted
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#3
02-03-2009, 01:26 PM
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| Good luck with your first session and fingers crossed that Neurofeedback makes a difference for you.
__________________ "Be What You Are" - Stiff Little Fingers Lyrics |
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#5
02-03-2009, 02:17 PM
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#6
02-03-2009, 02:57 PM
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| Awesome news Julie. I'm wishing you the best. 
__________________ New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads. Would you like to help support this forum? |
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#7
02-03-2009, 06:49 PM
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| Good luck Julie. We'll be anxiously awaiting a very positive update from you! |
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#8
02-03-2009, 06:52 PM
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| ENJOY! I'll keep all of my fingers and toes crossed!---LMT |
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#9
02-03-2009, 07:00 PM
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| Thanks everyone! I am so excited. My appointment is tomorrow at 2:30 pm. Hopefully, I'll have something to update by tomorrow early evening. (fingers crossed, prayers being said) Wishing us all a seizure-free tomorrow! -Julie
__________________ "I WILL NEVER GIVE UP ON MY DREAMS; I WILL JUST MODIFY MY PATH FOR REACHING THEM" -j (me) "Life is better left to chance. I could have missed the pain, but I'd have had to miss the dance." -Garth Brooks |
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#10
02-03-2009, 08:34 PM
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| I pray everything goes even better than you are expecting. This is so exciting. I'm looking forward to hearing the update tomorrow. Good luck!
__________________ Read About Our Story At: Overcoming Epilepsy First say to yourself what you would be; and then do what you have to do. ~Epictetus  |
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#12
02-04-2009, 06:38 PM
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| Hi everyone, Got a terrible migraine, and just now having auras now, but wanted to post. The feedback went great! It was just a consultation, but I got to see how biofeedback works using my pulse. Anyway, he showed me on the screen and it beeped because I did good. He's calling me soon to get the fee set. I gotta go. I hate seizures. Took my imitrex. If I do good maybe I won't have anymore seizures.
__________________ "I WILL NEVER GIVE UP ON MY DREAMS; I WILL JUST MODIFY MY PATH FOR REACHING THEM" -j (me) "Life is better left to chance. I could have missed the pain, but I'd have had to miss the dance." -Garth Brooks |
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#13
02-05-2009, 06:06 AM
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| Originally Posted by seizures4ever  :
Biofeedback (pulse) can help you learn how to maintain a calm state, but it isn't what we're talking about with regards to the studies and research on normalizing brain activity.
__________________ New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads. Would you like to help support this forum? |
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#14
02-05-2009, 08:58 AM
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| Originally Posted by Bernard :
I had several auras as I tried to post last night. I couldn't think to fully explain myself...so I mainly just let you all know that I went and was encouraged. He showed me the EEG/graphs that we will be using if I decide to continue and do neurofeedback. The consultation yesterday was free. I was shown that we can control functions in our CNS that most people do not consider possible. The session was very interesting. I am supposed to hear back from him before the end of the week...my insurance is dragging their feet responding to his request. All the best. -Julie
__________________ "I WILL NEVER GIVE UP ON MY DREAMS; I WILL JUST MODIFY MY PATH FOR REACHING THEM" -j (me) "Life is better left to chance. I could have missed the pain, but I'd have had to miss the dance." -Garth Brooks |
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#15
02-07-2009, 12:32 AM
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| Good for you!! I'm still looking.I might be moving to New York by my brother so maybe I'll have a better chance. Teresa
__________________ Climb out on a limb, that is where the future is! |
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#16
02-07-2009, 08:18 AM
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| Thank you Teresa! And good luck to you. Hope you and your son have a seizure-free day! -Julie
__________________ "I WILL NEVER GIVE UP ON MY DREAMS; I WILL JUST MODIFY MY PATH FOR REACHING THEM" -j (me) "Life is better left to chance. I could have missed the pain, but I'd have had to miss the dance." -Garth Brooks |
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That is so coooool 
